Sticky Blood-Hughes Syndrome Support
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First of all I want to wish my APS family a very merry Christmas.

Had a really good run since starting Amitriptyline. Then Christmas kicked in at work !! I am a retail manager , not the perfect job for stress levels . Tingling , nausea , high blood pressure , numbness etc etc started creeping in and I’m now in bed feeling rubbish with a blood pressure monitor for company . How does everyone handle stress ? Please give me some tips . Next year I have to be strong and get this under control . My daughter had a kidney transplant in 2011 and its now starting to reject . Makes APS look like a pussy cat xx

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I de-stress by walking my dogs or if really bad - I prune the garden!!

Trouble is we carry on and over do it - then come crumbling down when its holiday time.

Hopefully you will be up and rested by Christmas day.

Puts everything in perspective when you here about your daughter - I really hope you have some good family time xx

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Four days of mother and daughter time ❤️❤️

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So Sorry to hear your not feeling well and about your daughter. Pacing is an important part of handling this disease.

There are some very good Pain Management courses that deal mostly with this aspect in many conditions so will be worth asking your GP to refer you on to one.

Try and have a good rest over the coming days.

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There are a number of books out now about meditation/mental attitude “hacks” to lower blood pressure. A book which Cleveland Clinic recommended for me (and I will admit, I have not yet read it) is “Heart Math.” If you have time you might check it out. — maybe we can both up our stress levels by seeing which one of us reads it first? 😜

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I am very sorry to read about your daughter, no wonder you are feeling anxious, stressed, worried. This is normal. What works for one person, doesn't necessarily work for all.

One of the ways is to find someone with whom you can talk - not family or friend. I am referring to see a therapist. Talking does work. Your GP may be able to help; there may be a service at your GP practice or they can recommend a service or therapist.

It's easy to say, relax and enjoy Christmas with your family, but being with family is important.

With good wishes,

Ros

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Walking and also meditation is great for stress and of course any form of exercise. Have a great Christmas. MaryF

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Journal things, it helps you to hone in on what is at the center of what’s bothering you. Not that your daughter and the holiday season in your line of work isn’t enough. It can also be cathartic. Plus it really doesn’t cost much. Write it down and throw it away! Good luck and best of holidays. It is the time of year for miracles- I hope your daughter is one of the miracles. I wish you peace ahead, Cindy Merry Christmas🎄🎄🎄

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I’m so sorry. You must feel completely overwhelmed. I hope everyone’s suggestions can help.

I’m concerned about the nausea as far as day to day ( hour to hour ) functioning for the short haul . There’s no functions with it.

Dysautonomia I believe you and I once discussed? Nerve dysregulation between brain and bowels?

Mrs Mouse ( user name on this forum) has APS and dysautonomia. She takes an anti spasmodic med for bowel issues for her dysautonomia. You might PM her and ask her which med it is. She is also a member of a British dysautonomia forum on line.

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