Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for October 2014

APS

Hi I had a stroke in February had lots of test no one was telling nothink was so down at no knowing a think then was told I had APS I have been so tired all...

Hi I had a stroke in February had lots of test no one was telling nothink was so...

Lesley61

•10 years ago

5 Replies

Clomid

Does any one have an opinion on taking Clomid? Any success or horror stories please!

Does any one have an opinion on taking Clomid? Any success or horror stories ple...

Teacher71

•10 years ago

8 Replies

New Use for your Tax Disc Holder. Medi Alert

Found this on the AF site and well worth using. If you drive a car with the new no tax disc rules, use the holder to show your medical issues and treatment...

Found this on the AF site and well worth using. If you drive a car with the new ...

Offcut

•10 years ago

5 Replies

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specialist in scotland

Hi, i have read the replies to my last post. i was wondering if anyone could recommend an APS specialist in Scotland. As everyone says i should see someone who...

Hi, i have read the replies to my last post. i was wondering if anyone could rec...

Totallysick

•10 years ago

20 Replies

Saf spain foundation

Dear mary or administrator. . as you know we create a new foundation in spain. We start to move the knowledge of our patology in facebook and internet. Like...

Dear mary or administrator. . as you know we create a new foundation in spain. W...

salva76

•10 years ago

4 Replies

finally after much research, I think I might have found a doctor!!

I think I might have finally found a doctor that can help me find the answers I am looking for! As some of you may remember, I have been very confused about my...

I think I might have finally found a doctor that can help me find the answers I ...

becca10

•10 years ago

25 Replies

Help

I had some blood tests taken about a month ago ordered by a Rheumatologist and went to the GP for the results. The abnormal ones are High ESR, High CRP, Low...

I had some blood tests taken about a month ago ordered by a Rheumatologist and w...

lorac1

•10 years ago

12 Replies

Glucosamine

I know this is slightly off topic but i wondered if any of you took glucosamine. Why im asking is ive just started taking it (after checking with gp) as i have...

I know this is slightly off topic but i wondered if any of you took glucosamine....

margaretjo

•10 years ago

7 Replies

APS after 3 miscarriages and a still birth AND a premature baby?!!

Hi all, I don't know how this works but I thought I will give it a go. I was recently diagnosed with APS after I had 3 miscarriages and still birth but they...

Hi all, I don't know how this works but I thought I will give it a go. I was rec...

Nafisah

•10 years ago

14 Replies

should I be working ?

Hi, im attempting to write a post again (2nd attempt) Im totally new to this.But i cant find any advice on working. I am a Self Employed Driving Instructor....

Hi, im attempting to write a post again (2nd attempt) Im totally new to this.B...

Totallysick

•10 years ago

11 Replies

Ranbaxy vs. sandoz inc. hydroxychloroquine

Hi everyone, I've been on hydroxychloroquine for about six weeks and I have been feeling really good overall. The first pill was an oblong white tablet made...

Hi everyone, I've been on hydroxychloroquine for about six weeks and I have bee...

Mom3mmc

•10 years ago

3 Replies

Hi all

well be off awhile my mother is passing -- will be with her till it's done and she is gone and with my Dad in heaven . Your prayers would be deeply...

well be off awhile my mother is passing -- will be with her till it's done a...

jetjetjet

•10 years ago

15 Replies

APS Specialist

Could anyone recommend a consultant in the Midlands specialising in APS please? I tried to book with Dr Sue Pavord but she has left the hospital in Leicester.

Could anyone recommend a consultant in the Midlands specialising in APS please? ...

Kazzapeaky

•10 years ago

23 Replies

Questions, questions

My mom was diagnosed with APS nearly thirty years ago. (She is now 74) She has been on coumadin for nearly all that time. She does self tests at home and...

My mom was diagnosed with APS nearly thirty years ago. (She is now 74) She has...

apsdaughter

•10 years ago

7 Replies

Plaquenil rash

I just started taking Plaquenil a few weeks ago. I stared with 100mgs every second day for a week then 100mgs daily for a week. Now I am taking 100mgs and...

I just started taking Plaquenil a few weeks ago. I stared with 100mgs every seco...

AvsG

•10 years ago

8 Replies

Confused about beta2glycoprotein cutoff

Hi, I have tested positive for beta2glycoprotein IGM 3 times in the past 4 months. My value was 21 each time and the cutoff for positive is 20. The...

Hi, I have tested positive for beta2glycoprotein IGM 3 times in the past 4 month...

wannamuffin

•10 years ago

8 Replies

For Mary re Thyroid issues

Hi Mary I have read your posts about thyroid issues with interest as im sure i fit 'the bill' but all my tests have been negative. I remember reading (at least...

Hi Mary I have read your posts about thyroid issues with interest as im sure i f...

margaretjo

•10 years ago

8 Replies

Fatigue - update

The number one life impacting symptom for me has been debilitating fatigue. It impacts every decision I make and how I spend each limited molecule of energy....

The number one life impacting symptom for me has been debilitating fatigue. It ...

Tranquility1

•10 years ago

16 Replies

Hip pain mystery, any detectives out there?

Please can someone suggest what I can do next? I used to be fit and strong, even with 20 years of undiagnosed lupus symptoms (exhaustion, thinning hair, sun...

Please can someone suggest what I can do next? I used to be fit and strong, even...

Roromatic

•10 years ago

10 Replies

Clexane and nausea

Hi all, Here's another question for you- does anyone know if clexane can cause vomiting? The jabs were started on wednesday/thursday just gone and the...

Hi all, Here's another question for you- does anyone know if clexane can cause ...

Squeezer

•10 years ago

6 Replies

Head shot (new to this)

Can any one help! I've only just been diagnosed with Hughes Syndrome, and am trying for a baby.

Can any one help! I've only just been diagnosed with Hughes Syndrome, and am tr...

Teacher71

•10 years ago

12 Replies

Anyone have/had Endometrial Hyperplasia?

Just been told after 6 months of excessive and almost continuous menstrual bleeding, that I have Endometrial Hyperplasia. I was wondering if anyone else had...

Just been told after 6 months of excessive and almost continuous menstrual bleed...

Nat1969

•10 years ago

5 Replies

Professor Graham Hughes August 2014 Blog

Professor Graham Hughes August 2014 Blog The medical journal LUPUS, which publishes many of the research papers and conference reports on Hughes syndrome, runs...

Professor Graham Hughes August 2014 Blog The medical journal LUPUS, which publis...

MaryF

Administrator•10 years ago

4 Replies

AVascualr Necrosis update

Hi all, I just thought I would update you all with my rather scary news: Well, been back to Guys and it seems I have to have part of the femur, my knee and...

Hi all, I just thought I would update you all with my rather scary news: Well,...

Lesley_D

•10 years ago

5 Replies

Do I really need a medical tag?

Hello, I was diagnosed with APS after having miscarriages. I have yearly appointments at ST Thomas' and the last tests revealed my antibodies are still high....

Hello, I was diagnosed with APS after having miscarriages. I have yearly appoin...

dancingvicster

•10 years ago

20 Replies

High warfarin dosage but INR still crashing

Hi all, Has anyone else been in the situation where INR crashes every few days even though warfarin levels are being increased each time? INR is currently 1.1...

Hi all, Has anyone else been in the situation where INR crashes every few days e...

Squeezer

•10 years ago

17 Replies

Advice needed

I have recently had 3 miscarriages, after the first 2 i was tested and found to have APS. I was not put on any meds at that time, i then fell pregnant in...

I have recently had 3 miscarriages, after the first 2 i was tested and found to ...

Roxywedd

•10 years ago

9 Replies

Even more confused than ever

I had posted the other day about some concerns I was having and wondered if it had to do with the diagnosis I was given 2 years ago of APS. I had to start...

I had posted the other day about some concerns I was having and wondered if it h...

becca10

•10 years ago

16 Replies

71% of CAPS patients & 9% of APS patients are hyperferritinemia (high blood iron)

Fascinating. Low iron can cause blood clots. High iron can cause blood clots. It's a fine line. Study from 2013 found that 71% of patients suffering from...

Fascinating. Low iron can cause blood clots. High iron can cause blood clots. ...

Tranquility1

•10 years ago

4 Replies

Surgery update..

Good morning everyone, I am back home from surgery last week. They removed the mass's that were attached to my ovary. They took the mass's in one complete...

Good morning everyone, I am back home from surgery last week. They removed the m...

beccafullcircle

•10 years ago

12 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for October 2014

APS

Clomid

New Use for your Tax Disc Holder. Medi Alert

specialist in scotland

Saf spain foundation

finally after much research, I think I might have found a doctor!!

Help

Glucosamine

APS after 3 miscarriages and a still birth AND a premature baby?!!

should I be working ?

Ranbaxy vs. sandoz inc. hydroxychloroquine

Hi all

APS Specialist

Questions, questions

Plaquenil rash

Confused about beta2glycoprotein cutoff

For Mary re Thyroid issues

Fatigue - update

Hip pain mystery, any detectives out there?

Clexane and nausea

Head shot (new to this)

Anyone have/had Endometrial Hyperplasia?

Professor Graham Hughes August 2014 Blog

AVascualr Necrosis update

Do I really need a medical tag?

High warfarin dosage but INR still crashing

Advice needed

Even more confused than ever

71% of CAPS patients & 9% of APS patients are hyperferritinemia (high blood iron)

Surgery update..

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