Anyone have/had Endometrial Hyperplasia?

[Nat1969]

Just been told after 6 months of excessive and almost continuous menstrual bleeding, that I have Endometrial Hyperplasia.

I was wondering if anyone else had this or know if there is a link to Lupus, APS or Thyroid, which I've had for many years now.

[GinaD]

Before menopause ( hooray! I'm there!) I had copious bleeding and extreme pain. And feinting spells. And low blood pressure. And several wake-up-in-the-emergency-room episodes. All this continued whether I was taking HRT or not -- With the exception of compounded topical progesterone. That stuff was wonderful; Pain erased, energy restored, monthly bleeds normalized.

For the 30 odd years I lived through this, taking regular HRT or not had nothing to do with my issues. At least twice - once while in my teens and once in my Tweens-- HRT was tried. But the pills never helped . At all. Since I had a family history of lupus, docs were unwilling to keep me on pills that seemed to make no difference on my monthly adventures. A hysterectomy was recommended. I said no in the hopes that someday things would sort out without such massive intervention. And, following the experience of many female relatives on my maternal grndmother's side, after the birth of my first child, my periods went from extreme to normal.

Good luck. And now that it is mentioned above, I'm thinking, Yes, I'll bet there is a common denominator between horrid periods and autoimmunity.

[MaryF Administrator]

I hope you feel better soon, hormones and autoimmune are a minefield of discovery at times for the best solution. MaryF

[dianamariewright]

I have had this for over one year

[Nat1969]

When I first visited the GP, she mentioned the possibility of taking the pill to help with the bleeding (not specifically Norethisterone though) and also tranexamic acid tablets - bit I'd already had sound advise from this site about these treatments in relation to people with APS as not being good. When I told my GP about the advise I'd received from the site, she investigated further as well as contacting my Rheumy. The result is the contraceptive pill is not an option for me.

Thanks for the reply though Dobiedogz.

[Nat1969]

I had an internal scan on Friday and the lining is 18mm - 10mm more than 3 weeks ago on the external scan. I've no idea what is going on.

However, I'm in good hands. I'm just waiting for an appointment to come through for a Hysteroscopy. They're going to check with the camera, do a biopsy and if all is OK, they will insert the mirena coil - in the hope that this will help in the long-run. Although, I've been advised it's not a quick fix and I need to at least give it 6-12 months. If it doesn't work, we're talking a hysterectomy down the line.

Anyway, thanks for the replies ... I just wondered if there was a link. It seems to me APS/LUPUS guys just seem to go from one thing to the next.