Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for August 2017

Prosthesis

Hello Everyone !!!! Robert is having made a prosthesis to cover his palate hole he got due to GP vasculatis.. a denture will be implanted as well. Does any one...

Hello Everyone !!!! Robert is having made a prosthesis to cover his palate hole ...

thecatsathome2

•7 years ago

2 Replies

HSP Nephritis

Hello, I've been diagnosed with HSP Nephritis in August 2017. I was on 20mg prednisolone for 5 days and 20mg cozaar daily. On Day 3 I had a bad flare up of...

Hello, I've been diagnosed with HSP Nephritis in August 2017. I was on 20mg pre...

AP38

•7 years ago

7 Replies

Moving to Durham

I am moving from London to Durham and think the closest specialised hospital will be Newcastle? that deal with Vasculitis PANCA and Cerebral? and have heard...

I am moving from London to Durham and think the closest specialised hospital wil...

anthony01

•7 years ago

16 Replies

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If vasculitis is remissioned, progression of renal damage is stopped?

Or the patient will reach inevitabitable throughout his life the terminal renal failure?

Or the patient will reach inevitabitable throughout his life the terminal renal ...

Wizzi

•7 years ago

10 Replies

Urticarial Vasculitis

Hello. I'm new to this part of the forum, having only been in the Lupus UK part until now. I've had lots of tests for Lupus and despite my CRP and ESR being...

Hello. I'm new to this part of the forum, having only been in the Lupus UK part ...

kazmac45

•7 years ago

4 Replies

DVLA

Hello all Just become aware that you are required to notify the DVLA if you suffer from peripheral neuropathy. Has anyone any experience of the subsequent...

Hello all Just become aware that you are required to notify the DVLA if you suff...

Riff1954

•7 years ago

10 Replies

Drug name

This one is called canakinumab, not sure if it's the same drug?

luggsey

•7 years ago

2 Replies

New anti inflammatory drug?

I saw on the news there have been successful trials of a new anti inflammatory drug. I would like to find out if vasculitis sufferers could benefit from this...

I saw on the news there have been successful trials of a new anti inflammatory d...

luggsey

•7 years ago

2 Replies

Help needed for a proposed research study.

To support a proposed research study into access to timely and coordinated specialist care for vasculitis patients, we urgently need very brief accounts of...

To support a proposed research study into access to timely and coordinated speci...

Suzym2u

Moderator•7 years ago

2 Replies

Advice on Rituximab Infusions?

Hello Been a while since I posted but would be really grateful for some advice from anyone who has experienced rituximab infusions. I am due to have 4 over 4...

Hello Been a while since I posted but would be really grateful for some advice f...

Galaxy2

•7 years ago

17 Replies

Anyone here with Takayasu Arteritis?

Hi all I've been recently diagnosed with TA, previously thought to be PMR, my age (46)!!, and PMR with a GCA overlap. I have been to see a Private...

Hi all I've been recently diagnosed with TA, previously thought to be PMR, my a...

Trixiechamp

•7 years ago

6 Replies

My Eyes!!

I went to hospital yesterday for a screening visit for a drug trial. My consultant picked up that there was something wrong with my right eye! This is new! It...

I went to hospital yesterday for a screening visit for a drug trial. My consulta...

HFox

•7 years ago

17 Replies

Weak Positive C-ANCA (A) ?

Hello everyone, i hope you're all feeling well :) this is new to me so bare with me lol. I had loads of blood tests done at addenbrookes hospital recently...

Hello everyone, i hope you're all feeling well :) this is new to me so bare with...

leahcim

•7 years ago

11 Replies

Burning & tingling sensation

Hi, I've been getting a tingling & burning sensation in my feet since last year & feel like it's getting worse. My mom had pheriphal vascular disease & was...

Hi, I've been getting a tingling & burning sensation in my feet since last year...

sallym123

•7 years ago

8 Replies

For those who care for children and adolescents who take Methotrexate & would like to take part in research

Workshop at Alder Hey Hospital Liverpool

Suzym2u

Moderator•7 years ago

Be the first to reply

Swollen Feet, Ankles, Lower Legs, and Rash

I'm from USA and am a 29 year old female... This issues has been coming and going for me for years, but now it's worse than ever. I had been prescribed...

I'm from USA and am a 29 year old female... This issues has been coming and goi...

Zyganat

•7 years ago

1 Reply

Swollen Feet, Ankles, Lower Legs, with Rash

8-20-2017 Swollen Ankles & Feet –Part 2– This is how my feet/legs look now... I'm from USA and am a 29 year old female... This issues has been coming and...

8-20-2017 Swollen Ankles & Feet –Part 2– This is how my feet/legs look now... I...

Zyganat

•7 years ago

4 Replies

Fluorescent lights

Hi my name is Lucy and I live in the United States. I was out with my husband, feeling fine, stopped at a Home Depot and after being in the store for a little...

Hi my name is Lucy and I live in the United States. I was out with my husband, f...

Calalucy

•7 years ago

7 Replies

Of possible interest..

https://academic.oup.com/rheumatology/article-lookup/doi/10.1093/rheumatology/kex163

https://academic.oup.com/rheumatology/article-lookup/doi/10.1093/rheumatology/ke...

Hidden

•7 years ago

Be the first to reply

Wegener's GPA and Nasal Discharge Changes

Since becoming ill last year, my nasal discharge because milky white, opaque and thick. I have allergies so have good amount of nasal discharge down my...

Since becoming ill last year, my nasal discharge because milky white, opaque and...

MarciaEileen

•7 years ago

2 Replies

RIP Dad

Dear All I wanted to come and say thank you for the support and kindness given to me over the last year when I came looking for information regarding my Dad....

Dear All I wanted to come and say thank you for the support and kindness given t...

Hidden

•7 years ago

19 Replies

Vasculitis Relaspse after Injury?

Hi , I am Priya . I had often had cutaneous vasulitis concentrated on my lower legs during my childhood . Often had painful ulsers on both legs which healed on...

Hi , I am Priya . I had often had cutaneous vasulitis concentrated on my lower l...

PriyaSomasundaran

•7 years ago

2 Replies

Bank Holiday reminder from NHS Choices

Bank Holiday Reminder from NHS Choices

Suzym2u

Moderator•7 years ago

Be the first to reply

never ending story

hello everyone!!! Roberto when thru is second round of Rituxan here in san diego California. his breathing which is the main problem improves but after 2...

hello everyone!!! Roberto when thru is second round of Rituxan here in san diego...

thecatsathome2

•7 years ago

2 Replies

Recent Diagnosis - Churg Strauss

My fiancé has recently been diagnosed with Churg-Strauss vasculitis. Is there anyone else on here with EPGA/Churg Strauss. It would be helpful to chat with...

My fiancé has recently been diagnosed with Churg-Strauss vasculitis. Is there a...

bev0113

•7 years ago

4 Replies

Churg-Strauss Vasculitis and Foot Drop

Hello, I am from the US. My fiance' was recently diagnosed with Churg-Strauss and has a severe foot drop and paralysis in same leg due to loss of nerve. Has...

Hello, I am from the US. My fiance' was recently diagnosed with Churg-Strauss a...

bev0113

•7 years ago

10 Replies

ANCA-positive and MPO - OR???

I am new here and sorry for my English I am from Denmark. This month one year ago my husband get ill. He had it like af flu for perhaps almost two weeks and...

I am new here and sorry for my English I am from Denmark. This month one year ag...

Lima51

•7 years ago

5 Replies

When Walking, feeling like stepping on to a deflated Balloon or a bubble sheet!

I am 80 years old, very healthy, no major complaints of health except for the following discomfort. I have a Teetotal life style, pure vegetarian, non-smoker...

I am 80 years old, very healthy, no major complaints of health except for the fo...

Aravindam

•7 years ago

4 Replies

Knee replacement

Just wondering if anyone suffering with vasculitus has had a knee replacement?

Just wondering if anyone suffering with vasculitus has had a knee replacement? ...

JanetDavis

•7 years ago

14 Replies

Flying with Mycophenolate and MPA

Hi, I have microscopic polyangiitis along with bronchiectasis. I am on the BLF forum but thought I would ask here. I need to travel for work abroad but was...

Hi, I have microscopic polyangiitis along with bronchiectasis. I am on the BLF ...

BilboBagshot

•7 years ago

4 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for August 2017

Prosthesis

HSP Nephritis

Moving to Durham

If vasculitis is remissioned, progression of renal damage is stopped?

Urticarial Vasculitis

DVLA

Drug name

New anti inflammatory drug?

Help needed for a proposed research study.

Advice on Rituximab Infusions?

Anyone here with Takayasu Arteritis?

My Eyes!!

Weak Positive C-ANCA (A) ?

Burning & tingling sensation

For those who care for children and adolescents who take Methotrexate & would like to take part in research

Swollen Feet, Ankles, Lower Legs, and Rash

Swollen Feet, Ankles, Lower Legs, with Rash

Fluorescent lights

Of possible interest..

Wegener's GPA and Nasal Discharge Changes

RIP Dad

Vasculitis Relaspse after Injury?

Bank Holiday reminder from NHS Choices

never ending story

Recent Diagnosis - Churg Strauss

Churg-Strauss Vasculitis and Foot Drop

ANCA-positive and MPO - OR???

When Walking, feeling like stepping on to a deflated Balloon or a bubble sheet!

Knee replacement

Flying with Mycophenolate and MPA

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