Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for February 2018

Royal London Hospital

Anyone with DR Ravi Rajakariar and whats your experience been like. His a nephrologist consultant.

Anyone with DR Ravi Rajakariar and whats your experience been like. His a nephr...

rrahman

•7 years ago

5 Replies

Royal Free London

Anyone under the care of Professor Alan Salama at the Royal Free?

Puttystuff

•7 years ago

12 Replies

Nasal septum biopsy

Hi, I have had a nasal ulcer for the past two years that just will not heal despite antibiotics and steroid spray. I have tried the Neil Med sinus rinse and...

Hi, I have had a nasal ulcer for the past two years that just will not heal desp...

pancake123

•7 years ago

12 Replies

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Skin Problems Associated with PMR/ GCA?

I have a likely diagnosis of PMR/GCA; I also have many red marks, particularly on my lower legs , ankles and feet in various shapes; I have had many small...

I have a likely diagnosis of PMR/GCA; I also have many red marks, particularly o...

Alliand

•7 years ago

4 Replies

Lincolnshire Support Group

Sandy and I have booked the snug area at the Kings Head in Navenby (LN5 0EE) 7for a meeting on Saturday April 7 at 11 a.m. The King's Head is very friendly,...

Sandy and I have booked the snug area at the Kings Head in Navenby (LN5 0EE) 7f...

BronteM

•7 years ago

1 Reply

Recent publication

A series of articles on GCA from “experts “ dealing with all aspects of the disease....

A series of articles on GCA from “experts “ dealing with all aspects of the dise...

Hidden

•7 years ago

Be the first to reply

the beginning

i had a seizure at work and woke up in an ambulance. it took 18 months and had a brain lesion removed . several specialist later and my rheumatologist finally...

i had a seizure at work and woke up in an ambulance. it took 18 months and had a...

bgfan

•7 years ago

1 Reply

Vasculitis pain

Has anybody tried anti-inflammatory diet or ashwagandha or baking soda water for pain?

Has anybody tried anti-inflammatory diet or ashwagandha or baking soda water fo...

4VRHLTHY

•7 years ago

2 Replies

Persistent fatigue with GPA

Hi Advise please. My husband seems to have less energy now than when he was facing his infusions and high doses of steroids. He is in drug reduced remission...

Hi Advise please. My husband seems to have less energy now than when he was faci...

Main1234

•7 years ago

4 Replies

Persistent fatigue with GPA

Hi Advise please. My husband seems to have less energy now than when he was facing his infusions and high doses of steroids. He is in drug reduced remission...

Hi Advise please. My husband seems to have less energy now than when he was faci...

Main1234

•7 years ago

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When there is throat or ear involvement with MPA, what is that like? I have pain in both but not like flu.

MPA with throat or ear pain.

PattyMPA

•7 years ago

7 Replies

Egpa questions

After further reading I have more questions that perhaps the group can help to clarify.... Are ANCA positive and ANCA negative egpa both forms of vasculitis?...

After further reading I have more questions that perhaps the group can help to c...

Cathywp

•7 years ago

14 Replies

Shingles

I want to 'Pick' everyone's brains here. I was told, when I was first diagnosed (Non-Specific ANCA Vasculitis-Several 'Overlapping' Strains) to avoid Chicken...

I want to 'Pick' everyone's brains here. I was told, when I was first diagnosed ...

AndrewT

•7 years ago

15 Replies

Atypical ANCA positive

So I have found out that my test was atypical ANCA positive. The MPO and PR3 ran with it were all low and within range. It says no known clinical relevance....

So I have found out that my test was atypical ANCA positive. The MPO and PR3 ran...

lc24

•7 years ago

3 Replies

Rituxan Infusions- Afraid

Rituxan Infusions. Starting Rituxan infusions along with Azanthopine was recommended by my rheumatologist several months ago; I have as yet not given consent....

Rituxan Infusions. Starting Rituxan infusions along with Azanthopine was recomme...

Alliand

•7 years ago

12 Replies

Prednisone issues??

Hi all, Has anyone had any issues with taking Pred? I’ve been out cycling this morning to try and keep ‘normal’ and when I got back my heart was all over the...

Hi all, Has anyone had any issues with taking Pred? I’ve been out cycling this ...

Wengle82

•7 years ago

16 Replies

Just diagnosed with GPA and trying to keep positive

Hi all, just wanted to post about my recent illness and final diagnosis and to say hi really. I’ve been suffering with sinus issues since Early last year,...

Hi all, just wanted to post about my recent illness and final diagnosis and to s...

Wengle82

•7 years ago

22 Replies

In need of some advice! ANCA positive and sinus infections? Could it possibly be vasculitis?

In need of some advice again, been really unwell for a long time now, I have low B12, peripheral neuropathy (I have had 5 loading doses of B12 as neurologist...

In need of some advice again, been really unwell for a long time now, I have low...

lc24

•7 years ago

8 Replies

Feeling of walking on bubble pack

Bernrun

•7 years ago

2 Replies

Has anyone got good pastures ?

Hi ive been diagonised with vasculitis with positive anti gbm last july. I have veen on pred starting on 60mg and now down to 5mg, had 10 plasma exchanges and...

Hi ive been diagonised with vasculitis with positive anti gbm last july. I have ...

jolittle93

•7 years ago

7 Replies

Vasculitis

This is my first time here and just trying to read all the post and responses so I can learn something each and everyone. My boyfriend was diagnosed with...

This is my first time here and just trying to read all the post and responses so...

Edgenius

•7 years ago

1 Reply

Is there a link between surgical mesh and autoimmune conditions?

Hi. I developed Wegener's Granulomatosis or GPA 3 yrs after being treated with vaginal mesh implants for a prolapsed womb. I have read that some people are of...

Hi. I developed Wegener's Granulomatosis or GPA 3 yrs after being treated with v...

macrstq

•7 years ago

2 Replies

Silly, but harmless, joke

Where do you find a spider that doesn't have any legs? Simple, wherever you left it......

Where do you find a spider that doesn't have any legs? Simple, wherever you left...

AndrewT

•7 years ago

2 Replies

Azathioprine ?

Just would like to hear about your experience with azathioprine. i developed more sheathing despite 12.5 mg Prednisone. Also interested in suggestions....

Just would like to hear about your experience with azathioprine. i developed mo...

arcr

•7 years ago

13 Replies

Are you artistic and would like to support Vasculitis UK and Arthritis Research UK ??

Please follow this link and read Glynnis’s Story http://www.vasculitis.org.uk/news/gravelly-barn-2018-02

Please follow this link and read Glynnis’s Story http://www.vasculitis.org.uk/n...

Suzym2u

Moderator•7 years ago

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Eosophils

Has anyone found a way of reducing Eosophil levels without Predisolone. Looking for a non drug alternative

Has anyone found a way of reducing Eosophil levels without Predisolone. Looking ...

Madamec1

•7 years ago

9 Replies

New and in limbo

Hi, I just been diagnosed with urticarial vasculitis after a biopsy and am now waiting for more blood test results. Feeling as if I'm in limbo at the moment as...

Hi, I just been diagnosed with urticarial vasculitis after a biopsy and am now w...

Boudica1

•7 years ago

17 Replies

Doctor says egpa does not affect your brain

Ok so now I'm back to where I was a year ago. Today was my third visit to the rheumatologist and I told her my symptoms seem to be returning since tapering...

Ok so now I'm back to where I was a year ago. Today was my third visit to the r...

Cathywp

•7 years ago

19 Replies

In Memory of Prof Paul Bacon - an early pioneer for Vasculitus

In Memory of Prof Paul Bacon , an early pioneer for Vasculitis , please take a moment to read about Prof Bacon who did so much not only to support patients...

In Memory of Prof Paul Bacon , an early pioneer for Vasculitis , please take a m...

Suzym2u

Moderator•7 years ago

2 Replies

Proof of vasculitis

This is probably a silly question but .... How would I know if I have vasculitis if my ANCA panel always is negative? Is there anything other than a biopsy of...

This is probably a silly question but .... How would I know if I have vasculitis...

Cathywp

•7 years ago

7 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for February 2018

Royal London Hospital

Royal Free London

Nasal septum biopsy

Skin Problems Associated with PMR/ GCA?

Lincolnshire Support Group

Recent publication

the beginning

Vasculitis pain

Persistent fatigue with GPA

Persistent fatigue with GPA

When there is throat or ear involvement with MPA, what is that like? I have pain in both but not like flu.

Egpa questions

Shingles

Atypical ANCA positive

Rituxan Infusions- Afraid

Prednisone issues??

Just diagnosed with GPA and trying to keep positive

In need of some advice! ANCA positive and sinus infections? Could it possibly be vasculitis?

Feeling of walking on bubble pack

Has anyone got good pastures ?

Vasculitis

Is there a link between surgical mesh and autoimmune conditions?

Silly, but harmless, joke

Azathioprine ?

Are you artistic and would like to support Vasculitis UK and Arthritis Research UK ??

Eosophils

New and in limbo

Doctor says egpa does not affect your brain

In Memory of Prof Paul Bacon - an early pioneer for Vasculitus

Proof of vasculitis

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