Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,939 members•6,969 posts

All posts for November 2020

Polymyalgia question

Please help. I have developed quite quickly severe bilateral shoulder and pelvic pain. It is much worse on damp days, when I feel as if I have flu but no...

Please help. I have developed quite quickly severe bilateral shoulder and pelvi...

•4 years ago

Losartron medication

Hi. My new nephrologist (I’ve relocated) has taken me off Ramipril and put me on Losartron, 50 mg. Is anyone else on this? He said there are over 400...

Hi. My new nephrologist (I’ve relocated) has taken me off Ramipril and put me on...

•4 years ago

? Live Vaccine

I have heard that the Oxford COVID 19 vaccine is partly made up of a live attenuated vaccine. Does this mean that it cannot be given to immunosuppressed...

I have heard that the Oxford COVID 19 vaccine is partly made up of a live attenu...

•4 years ago

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https://healthunlocked.com/vasculitis-uk/posts/144857559/your-help-needed-again-please-health-care-during-the-covid19-pandemic?utm_source=notification&utm_mediu

https://healthunlocked.com/vasculitis-uk/posts/144857559/your-help-needed-again-...

•4 years ago

Your help needed again please - health care during the COVID19 pandemic

Susan has been asked to ask in the group if there are any issues anyone is experiencing in relation to their healthcare during this COVID19 pandemic? Are you...

Susan has been asked to ask in the group if there are any issues anyone is exper...

Volunteer•4 years ago

Covid Vaccine Priority Groups

I was just wondering what people’s thoughts are on the government’s interim advice on priority groups for the Covid-19 vaccines (see link)....

I was just wondering what people’s thoughts are on the government’s interim advi...

Chris-Bromsgrove

•4 years ago

Visiting New Zealand with Vasculitis - Any advice please

Hi all, this post is full of ifs buts and maybes so I apologise in advance. Now the gloom surrounding COVID seems to be showing some signs of positivity due to...

Hi all, this post is full of ifs buts and maybes so I apologise in advance. Now ...

•4 years ago

Rituximab and pregnancy

Has anyone had rituximab and tried for a baby? I’m roughly 7 years diagnosed and had only 1 relapse in between. GPA vasculitis

Has anyone had rituximab and tried for a baby? I’m roughly 7 years diagnosed and...

•4 years ago

Covid: Jab for people who cannot be vaccinated trialled

https://www.bbc.co.uk/news/health-55022288

https://www.bbc.co.uk/news/health-55022288

•4 years ago

Rituximab and covid vaccination

Hi All I have a dilemma and would be interested if anyone can help with information. I am due to have rituximab infusions starting next week which are...

Hi All I have a dilemma and would be interested if anyone can help with informat...

•4 years ago

Significantly Elevated LFT Levels

Good Evening, Hoping everyone is keeping well in these highly stressful times. I had some bloods done at my GP yesterday (CRP, FBC, LFT & UE). I get these...

Good Evening, Hoping everyone is keeping well in these highly stressful times. I...

•4 years ago

Your help is needed - Neuropathy Study

Your help is needed again .... Neurologist Dr Robert Hadden of Kings College Hospital, London has teamed with Professor Raashid Luqmani of Oxford to launch an...

Your help is needed again .... Neurologist Dr Robert Hadden of Kings College Hos...

Volunteer•4 years ago

Unsure on what this all means. Any advice would be very much appreciated.

Update on my previous post. My 17 year old daughter has been to see a Rheumatologist and the results for her bloods came back yesterday. She has made an...

Update on my previous post. My 17 year old daughter has been to see a Rheumatolo...

•4 years ago

Mycophenolate effects

Hi, I have posted before last year. I live in Ireland but this site is excellent. I was diagnosed with Wegeners/GPA exactly ten years ago - very severe in...

Hi, I have posted before last year. I live in Ireland but this site is excellent...

•4 years ago

Covid-19 Vaccine

There has been plenty of talk in the media today about a vaccine for Covid -19 being available fairly soon. Does anyone know whether the vaccines which are...

There has been plenty of talk in the media today about a vaccine for Covid -19 ...

•4 years ago

Flu Vaccine

We need your help please Has anyone been “advised by their GP practice” by phone or in any other way eg: by letter or email to have this years seasonal flu...

We need your help please Has anyone been “advised by their GP practice” by phon...

Volunteer•4 years ago

Rituximab & work

Hello all I’m wondering if anyone has any advice on the following please...? Has anyone been on Rituximab and is a health care worker in the community. I’m...

Hello all I’m wondering if anyone has any advice on the following please...? H...

•4 years ago

Reducing steroids

Hi Looking for some more advice please. OH is reducing his steroids since RTX X 2 and starting Mmf after a relapse of his GPA. He is now on 7.5mgs which he to...

Hi Looking for some more advice please. OH is reducing his steroids since RTX X...

•4 years ago