Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,939 members•6,969 posts

All posts for October 2022

A TIMELY REMINDER

Dear All, if you haven't 'Done' your Clocks, do it now. Back One Hour, as British Summer Time ends. Still enjoy the Extra Hour everyone.

Dear All, if you haven't 'Done' your Clocks, do it now. Back One Hour, as Britis...

•2 years ago

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Those of you with vasculitis......

how do you cope day to day? I am waiting on tests - then no doubt more tests - I am fairly sure I will get a diagnosis of vasculitis. I developed...

how do you cope day to day? I am waiting on tests - then no doubt more tests ...

•2 years ago

Co-trimoxazole

hi Trying to find out who else takes Co-Trimoxazole? I have been taking it since August 2021 , I pill daily, along with Prednisolone. I am currently reducing...

hi Trying to find out who else takes Co-Trimoxazole? I have been taking it sin...

•2 years ago

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A bit 'off Subject' but a Lovely Day, I thought I'd Share

Dear Everyone, Today, actually Yesterday now- it's 12:12- I had a lovely meal, with my Mother and some friends. I hadn't seen H&J for some time due, to a...

Dear Everyone, Today, actually Yesterday now- it's 12:12- I had a lovely meal, ...

•2 years ago

Joint pain and walking and rash

I have not been diagnosed with vasculitis but have new symptoms appearing. I have a persistent rash on lower legs and hands. Could be steroids I know. Does...

I have not been diagnosed with vasculitis but have new symptoms appearing. I ha...

•2 years ago

a bit more concerned now......

Had an appointment at the unit that has looked after me for the last five years. The biological meds have stopped as they simply didn't make enough of a...

Had an appointment at the unit that has looked after me for the last five years...

•2 years ago

Covid without Rituximab - Any Similar Experiences

We’ll here’s a strange one! I was at the Hospital today having my 3 monthly bloods in prep for my Rituximab in November. Sat in the waiting area was a bloke...

We’ll here’s a strange one! I was at the Hospital today having my 3 monthly bloo...

•2 years ago

West Country Vasculitis Group pre Xmas lunch

Calling those in Devon! The West Country Vasculitis Support Group will be having a pre Christmas lunch on Saturday 3rd December at The Smugglers Inn, 27...

Calling those in Devon! The West Country Vasculitis Support Group will be havin...

•2 years ago

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Rituximab for Rheumatoid Vasculitis

hi,. I have Rheumatoid Vasculitis (diagnosed April 2022), RA, Peripheral Neuropathy and several lung problems. I had an infusion of Rituximab on June 2022...

hi,. I have Rheumatoid Vasculitis (diagnosed April 2022), RA, Peripheral Neurop...

•2 years ago

I'm No 'Drinker' but this IS Pleasant.

Dear Everybody, I went over, to my Local Shop, about an hour ago mainly to buy some more Cooked Meat, Whilst there I 'Noticed' a Bottle of 'VK Orange And...

Dear Everybody, I went over, to my Local Shop, about an hour ago mainly to buy ...

•2 years ago

radio program

anyone else listen to radio 4 last night “Inside Heath” about being immune suppressed and shielding. Worth a listen .

anyone else listen to radio 4 last night “Inside Heath” about being immune suppr...

•2 years ago

Chicken Pox

Am a GPA sufferer taking Steroids and methotrexate to suppress. Working well to be honest Grandchildren have Chicken Pox going round their school. Will...

Am a GPA sufferer taking Steroids and methotrexate to suppress. Working well to...

•2 years ago

Sjogrens and

can anyone tell me anything about the links between Sjogrens, vasculitis, and possibly GERD as well?

can anyone tell me anything about the links between Sjogrens, vasculitis, and ...

•2 years ago

Prednisolone reducing and Adrenal insufficiency

Finished the last of the Cyclophosphamide infusions 2 weeks ago and had already started reducing the Pred a little while ago from 10mg by 1mg monthly. Half way...

Finished the last of the Cyclophosphamide infusions 2 weeks ago and had already ...

•2 years ago

Nasal problems

Hi all i would like to know if anybody has suffered with a deviated septum due to vasculitis gpa and did it cause any breathing problems i ask this because i...

Hi all i would like to know if anybody has suffered with a deviated septum due t...

•2 years ago

Good News On Toe Fungus

Dear All, As some of you may already know, like many of us- who are immuno-suppressed- I developed Toe Fungus. This 'Nasty Little Condition' grows UNDER the...

Dear All, As some of you may already know, like many of us- who are immuno-supp...

•2 years ago

Covid Jabs

what is the recommendation for Covid jabs now?

what is the recommendation for Covid jabs now?

•2 years ago

Covid Jabs

My son had Vasculitis in 1995 so I am interested in how often you are getting covid jabs.

My son had Vasculitis in 1995 so I am interested in how often you are getting co...

•3 years ago

Reactions to latest vaccines

Has anyone had any bad reactions to the latest modified Pfizer Covid Vaccine? The only one of the 4 vaccines I've had that i didn't suffer really bad...

Has anyone had any bad reactions to the latest modified Pfizer Covid Vaccine? ...

•3 years ago

Looking for options with hearing loss

I am only 2 months into my diagnosis of GPA, weaning down on the prednisone, but continue to have a lot of ringing in my ears and hearing like I have ear muffs...

I am only 2 months into my diagnosis of GPA, weaning down on the prednisone, but...

•3 years ago

Sixth Covid Jab Today

Dear All, Today I had my Sixth Covid 'jab' which, coupled with the Flu Jab- last week- SHOULD offer me 'Some Protection'! I say 'should' because I'm Very...

Dear All, Today I had my Sixth Covid 'jab' which, coupled with the Flu Jab- las...

•3 years ago

Evusheld availability in UK

Actually, I did receive a dose of Evusheld back in January 2021 as part of the PROVENT trial when it was called AZD7442. It was a painless intramuscular...

Actually, I did receive a dose of Evusheld back in January 2021 as part of the P...

RichardGPA65yrs

•3 years ago

Joining the dots......

I was diagnosed with eosinophilic asthma in 2017. I had rhinitis and nasal polyps prior to being diagnosed - I was 45 when I was diagnosed. Unfortunately...

I was diagnosed with eosinophilic asthma in 2017. I had rhinitis and nasal polyp...

•3 years ago

Update on change of meds

Hi all just a little update i saw my consultant yesterday he has now increased my myfenax from 500mg a day to 1500mg a day still on 15mg preds i asked again...

Hi all just a little update i saw my consultant yesterday he has now increased m...

•3 years ago