Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,780 members • 6,753 posts

All posts for March 2021

Help with blood test results please

Hi, I’ve recently got access to my full records on Patient Access . In July 2020 I had a lot of blood tests done as I was being being checked for POTS, and I...

Hi, I’ve recently got access to my full records on Patient Access . In July 2020...

•3 years ago

Swollen head

Hi everyone, has anyone ever experienced a swelling on the back of their heads, an inch down from the ear?

Hi everyone, has anyone ever experienced a swelling on the back of their heads, ...

•3 years ago

Vasculitis UK website COVID19 page Update - Regarding Shielding

More than 3.7 million clinical extremely vulnerable people in England will no longer have to shield from the coronavirus from 1 April. The #VasculitisUK...

More than 3.7 million clinical extremely vulnerable people in England will no lo...

Volunteer•3 years ago

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New diagnosis HUVS

my daughter (17) has just been diagnosed with HUVS hypocomplementemic urticarial vasculitis syndrome. I’m still doing my research on this condition. Was just...

my daughter (17) has just been diagnosed with HUVS hypocomplementemic urticarial...

•3 years ago

As part of Rare Disease Day 2021, RCPCH &Us together with The British Paediatric Surveillance Unit (BPSU), are launching a survey for young

read more details of the survey here https://www.vasculitis.org.uk/news/raredisease-survey-for-13-25s Part two will follow in a few days time.

read more details of the survey here https://www.vasculitis.org.uk/news/raredise...

Volunteer•3 years ago

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Travel

Hi hope everyone is keeping safe and as well as you can. For those who are on RTX when would you think would be the best time to travel abroad, before or...

Hi hope everyone is keeping safe and as well as you can. For those who are on R...

•3 years ago

Huv s vasculitis

Hi has anyone heard of Huvs Vasculitis, as my grandaughter has been diagnosed with it.??

Hi has anyone heard of Huvs Vasculitis, as my grandaughter has been diagnosed wi...

•3 years ago

Off meds but anxious 😟

Hi all. I have been off Azathioprine and prednisolone since April 2019. Whilst I’m glad I’m not on them I feel vulnerable and anxious about relapsing. (I was...

Hi all. I have been off Azathioprine and prednisolone since April 2019. Whilst I...

•3 years ago

We have had further results back today. Can anyone give me some understanding of them.

So my daughter has had some bloods taken to get a diagnosis of HUV or lupus they had been looking to see if it may even be EDS syndrome. We have had some more...

So my daughter has had some bloods taken to get a diagnosis of HUV or lupus they...

•3 years ago

1st Appointment with Vascular Surgery

Hi, my GP thinks I may have Vasculitis and referred me to local hospital, they contacted me today and have an appointment with Vascular surgery next week....

Hi, my GP thinks I may have Vasculitis and referred me to local hospital, they c...

•3 years ago

For those with an interest - last week’s The People’s Friend - discussing GCA Giant Cell Arteritis with VUK secretary , Kelly.

As soon the link becomes available on The Peoples Friend website we will share the ink on the VUK website

As soon the link becomes available on The Peoples Friend website we will share t...

Volunteer•3 years ago

Hi everyone

I’m interested in any help or support groups in the Essex area . Recently diagnosed with Churg Strauss Syndrome (EGPA VASCULITIS)

I’m interested in any help or support groups in the Essex area . Recently diagno...

•3 years ago

Need help please

Hi everyone, I’ve recently been diagnosed with EGPA Vasculitis after suffering different symptoms for a few years and then fighting for my life at Christmas...

Hi everyone, I’ve recently been diagnosed with EGPA Vasculitis after suffering d...

•3 years ago

Google Analytics for the Vasculitis UK Website February 1st - March 1st 2021

Google analytics for the VUK website from 1st Feb - 1st March 2021 - the numbers of users are the highest ever recorded. 30k users ( highest ever ) 37k pages...

Google analytics for the VUK website from 1st Feb - 1st March 2021 - the numbers...

Volunteer•3 years ago

Confused

I have had Iga vasculitis for about 18 years. Swollen feet and ankles and constant pain in my joints. I take colchicine and dapson for this condition and also...

I have had Iga vasculitis for about 18 years. Swollen feet and ankles and consta...

•3 years ago

Does anyone with IgA vasculitis monitor their urine for protein and blood? My daughter's level of protein and blood is up and down.

My daughter is 14 months post diagnosis for HSP/IgA vasculitis. She is still having symptoms including rashes, swelling and bruising. She often feels unwell...

My daughter is 14 months post diagnosis for HSP/IgA vasculitis. She is still hav...

•3 years ago

Cold Sores and Rituximab

Hi Everyone Great news about the very positive effect the vaccines are having on Covid cases - onwards and upwards. Does anyone have any ideas why I have had...

Hi Everyone Great news about the very positive effect the vaccines are having on...

•3 years ago

Xray results

wondering if anybody could give me their thoughts on this result.

wondering if anybody could give me their thoughts on this result.

•3 years ago