Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for December 2014

Appointments

I was diagnosed with WG in Jan 2013 and am still not in remmission, it has affected my kidneys I am class 4 KFD, I have just been sent an appointment for...

I was diagnosed with WG in Jan 2013 and am still not in remmission, it has affec...

valwood

•9 years ago

16 Replies

Thank You from all at Vasculitis UK

Just wanted to say thank you to all VUK's followers, supporters and fundraisers for not only fundraising for Vasculitis UK but for raising awareness of...

Just wanted to say thank you to all VUK's followers, supporters and fundraisers ...

Suzym2u

Moderator•9 years ago

4 Replies

Brief diary of Vasculitis UK - 2014

As it is the last day of 2014 I thought I might share some of the News Items from the website for 2014. First is VUK's involvement for NICE to give the green...

As it is the last day of 2014 I thought I might share some of the News Items fr...

Suzym2u

Moderator•9 years ago

4 Replies

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GPA vasculitus with nose pain

Hi. My friend has ( we think) GPA vasculitus and at the moment has a very painful, burning pain in his nose. He is seeing a specialist but has anyone...

Hi. My friend has ( we think) GPA vasculitus and at the moment has a very painfu...

35merlin

•9 years ago

15 Replies

Maybe someone can help

Hi everyone, On going odd symptoms and been tested for many things..however i feel i am being sent to the wrong kind of specialist. The purpose of this post is...

Hi everyone, On going odd symptoms and been tested for many things..however i fe...

yorkshiregirl44

•9 years ago

7 Replies

Jenny

Hi, my dad has WG and his hip joint has deteriorated significantly and now needs a hip replacement. He was also recently told that it appears as though his...

Hi, my dad has WG and his hip joint has deteriorated significantly and now needs...

jenny_hanly

•9 years ago

10 Replies

West Country vasculitis support group lunch

Hi everyone, hope you all were able to enjoy the Christmas festivities. Here's a date for your diaries when things have quietened down: Sunday 1 February...

Hi everyone, hope you all were able to enjoy the Christmas festivities. Here's ...

DevonLottie

•9 years ago

1 Reply

Methotrexate

Hi. I was diagnosed with PAN in September after four years of it affecting my skin and nerves. Have just completed six cyclophosphamide infusions and am now...

Hi. I was diagnosed with PAN in September after four years of it affecting my sk...

Bindy68

•9 years ago

6 Replies

http://www.theguardian.com/science/2014/dec/20/anti-inflammatory-drugs-could-fight-depression-immune-disorders

Worth reading this! For most of my adult life I had very severe depression (caused by several factors, including symptoms of ME but I had a GP who treated such...

Worth reading this! For most of my adult life I had very severe depression (caus...

Hidden

•9 years ago

14 Replies

GPA vasculitus

Hi, does anyone on here gave GPA vasculitus? Just wanted to have a general chat as a friend has been diagnosed.

Hi, does anyone on here gave GPA vasculitus? Just wanted to have a general chat ...

35merlin

•9 years ago

18 Replies

Ref. the NICE recomendations

Patients with AAV should have a nominated clinician within clinical networks linked to centre of expertise. I have a clinician but there doesn't seem to be a...

Patients with AAV should have a nominated clinician within clinical networks lin...

tom21

•9 years ago

8 Replies

This notice is for those living in Wales, but anyone who has an interest is also invited ...

You are invited to an event looking at Improving access to specialised services and therapies for Welsh rare disease patients, hosted by Lindsay Whittle AM,...

You are invited to an event looking at Improving access to specialised services ...

Suzym2u

Moderator•9 years ago

Be the first to reply

UK Ghostbusters are fundraising for Vasculitis UK in January

Ghostbusters UK have been raising funds for Vasculitis UK during 2014 and will continue to do so in 2015. Digi-Con - Doncaster will be their first event for...

Ghostbusters UK have been raising funds for Vasculitis UK during 2014 and will c...

Suzym2u

Moderator•9 years ago

5 Replies

is it a flare

i have wg but supposedly in remission.i had kidney failure a few yrs ago but with meds there ok now.for the last week i have had dull ache around the right...

i have wg but supposedly in remission.i had kidney failure a few yrs ago but wit...

tracey65

•9 years ago

3 Replies

South Wales Vasculitis Support Group Meeting January 2015

The speaker on this occasion will be Emma Hughes from Genetic Alliance UK/Rare Disease UK who will update the meeting on changes to NHS in Wales. This will be...

The speaker on this occasion will be Emma Hughes from Genetic Alliance UK/Rare D...

Suzym2u

Moderator•9 years ago

3 Replies

James Paget Hospital, Lowestoft

We've moved back to Norfolk and back to being treated at Addenbrookes which is fine but quite a way to travel. Is anyone with Vasculitus (my husband has...

We've moved back to Norfolk and back to being treated at Addenbrookes which is f...

Nadine99

•9 years ago

5 Replies

Cold feet when wearing socks

By the end of the day of wearing socks, my feet start to feel very cold. And when I take my socks off my feet start to warm up again. I don't understand why...

By the end of the day of wearing socks, my feet start to feel very cold. And wh...

sanah

•9 years ago

19 Replies

Vasculitis Education Day December 4th

Just wanted to say that the Vasculitis Education Day in Manchester was excellent. It was attended by about 112 doctors, nurses and patients. ( about 10...

Just wanted to say that the Vasculitis Education Day in Manchester was excellent...

Suzym2u

Moderator•9 years ago

10 Replies

Free prescriptions for Vasculitis Patients

Hello everyone, I have set up a e-petition for the above. If we get 10,000 signatures it will get a mention in Parliament. I would be grateful if you...

Hello everyone, I have set up a e-petition for the above. If we get 10,000 s...

JacquiM

Volunteer•9 years ago

37 Replies

*** Copywriter

Hello, I have a question. I found amazing audios for Relaxation Techniques, and I want to burn then on CD for me and my Co-workers, and I have a free workshop...

Hello, I have a question. I found amazing audios for Relaxation Techniques, and ...

cabrallove

•9 years ago

5 Replies

MPA and pneumonia

I have MPA for the last year and a half , I have a friend who has had antibiotics for pneumonia for the last 3 weeks . I don't want to upset her but am I safe...

I have MPA for the last year and a half , I have a friend who has had antibiotic...

Jase222

•9 years ago

3 Replies

Mycophenolate and low blood pressure

Does anyone get they have low blood pressure as a side effect of mycophenolate? I have been getting unexplained dizziness for a long time which no one can...

Does anyone get they have low blood pressure as a side effect of mycophenolate? ...

Galaxy2

•9 years ago

5 Replies

Meeting with the HealthUnlocked Team this Friday

We have a meeting with the HU team this Friday afternoon. If anyone has any suggestions about improvements for the VUK HU community please let me know. You can...

We have a meeting with the HU team this Friday afternoon. If anyone has any sugg...

Suzym2u

Moderator•9 years ago

1 Reply

Vasculitis UK Autumn/Winter Newsletter 2014

This is the link to the Vasculitis UK Autumn and Winter Newlsetter 2014. In this copy Research is the main topic, but also includes Education medical...

This is the link to the Vasculitis UK Autumn and Winter Newlsetter 2014. In this...

Suzym2u

Moderator•9 years ago

Be the first to reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for December 2014

Appointments

Thank You from all at Vasculitis UK

Brief diary of Vasculitis UK - 2014

GPA vasculitus with nose pain

Maybe someone can help

Jenny

West Country vasculitis support group lunch

Methotrexate

http://www.theguardian.com/science/2014/dec/20/anti-inflammatory-drugs-could-fight-depression-immune-disorders

GPA vasculitus

Ref. the NICE recomendations

This notice is for those living in Wales, but anyone who has an interest is also invited ...

UK Ghostbusters are fundraising for Vasculitis UK in January

is it a flare

South Wales Vasculitis Support Group Meeting January 2015

James Paget Hospital, Lowestoft

Cold feet when wearing socks

Vasculitis Education Day December 4th

Free prescriptions for Vasculitis Patients

*** Copywriter

MPA and pneumonia

Mycophenolate and low blood pressure

Meeting with the HealthUnlocked Team this Friday

Vasculitis UK Autumn/Winter Newsletter 2014

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