Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for June 2013

Worcs Way - Mission accomplished

After over 200 miles of training walks, many of which involved carry 28 pounds of weights in a rucksack (building up the legs for those hills), the big day...

After over 200 miles of training walks, many of which involved carry 28 pounds o...

Chris-Bromsgrove

•11 years ago

13 Replies

Anca level high is this a problem ?

I have had AAV vasculitis for eight months now and my anca level has been very high, I now have rituxamab every four months and as of tomorrow I also start a...

I have had AAV vasculitis for eight months now and my anca level has been very h...

essexboy

•11 years ago

8 Replies

Haematology

I have an appointment at Pinderfields Heamatolgy department on Friday 5th July because blood tests show evidence of protein in my bloods - though not in my...

I have an appointment at Pinderfields Heamatolgy department on Friday 5th July b...

ouscribe

•11 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Kidney biopsy. l am having a kidney biopsy on the 10th July to get a definite diagnosis of what my consultant believes to be WG. ,,

I am a little nervous and wondered if anyone could Iet me know what it's actually like. This has all happened rather fast for me, 3 weeks ago I hadn't even...

I am a little nervous and wondered if anyone could Iet me know what it's actuall...

skot

•11 years ago

6 Replies

Is having a fit a normal thing. I had one last week

Hidden

•11 years ago

7 Replies

Hi I have foot drop in my left foot I experience really tight skin in this foot and if I don't wear my ago my foot becomes really heavy.

essexboy

•11 years ago

2 Replies

First ever post...I have a positive c-anca...is it possible that i have no illness at all?

been unwell for 18 months, sinuses, throat, asthma type symptoms, fatigue...my ENT did a c anca test and it came back positive but didn't let me know till next...

been unwell for 18 months, sinuses, throat, asthma type symptoms, fatigue...my E...

Tinkytink

•12 years ago

13 Replies

What is foot drop? I

I am new here and still going thought the testing stage. I have trouble with my feet. Toes joints ache especially second toe from the big toe and the balls of...

I am new here and still going thought the testing stage. I have trouble with my ...

dskizs

•12 years ago

4 Replies

Good Luck to Martyn Chris and the gang walking the Worcestershire Way for VUK today!

https://fbcdn-sphotos-d-a.akamaihd.net/hphotos-ak-prn1/1010196_10151860122048888_914264016_n.jpg?dl=1

https://fbcdn-sphotos-d-a.akamaihd.net/hphotos-ak-prn1/1010196_10151860122048888...

John_Mills

Volunteer•12 years ago

5 Replies

Gluten free and anti-inflammatory diet

My mum, 72, has been suffering from Leukocytoclastic Vasculties for about 7 years now. Her kidney function has been deteriorating gradually till stage 3 CKD...

My mum, 72, has been suffering from Leukocytoclastic Vasculties for about 7 year...

cricket0710

•12 years ago

3 Replies

Will the swollen legs & feet ever go away with CSS?

I'm still learning about vasculitis, as a recently diagnosed patient, and am now in week 10 of my treatment for Churg Strauss Syndrome on daily doses of 10mg...

I'm still learning about vasculitis, as a recently diagnosed patient, and am now...

JontyW

•12 years ago

7 Replies

WWW final prayers

So last night I spent the night with my leg elevated to relieve the swelling that arrived at a most inconvenient time. I'm happy to report some improvement...

So last night I spent the night with my leg elevated to relieve the swelling tha...

Wellsie

•12 years ago

2 Replies

Job vacancy working for Benefits and Work (from home) Welfare Rights Support Worker.

http://www.benefitsandwork.co.uk/news/2301-welfare-rights-support-worker-vacancy

John_Mills

Volunteer•12 years ago

2 Replies

Benefits and Work June 26th Newsletter plus PIP mobility consultation

http://www.benefitsandwork.co.uk/news/2300-26-june-2013-newsletter http://www.benefitsandwork.co.uk/news/2299-pip-mobility-consultation-begins

http://www.benefitsandwork.co.uk/news/2300-26-june-2013-newsletter http://www.b...

John_Mills

Volunteer•12 years ago

Be the first to reply

Question for John Mills please. Could you please let me know where I can obtain the leaflet "understanding Vasculitis" Many thanks.

ipswichlady

•12 years ago

5 Replies

WWW final preparations

Tonight I'll give my marshals their hi-vis vests, instructions and a boot load of water to bring along, so it's now time to get this drug and vasculitis body...

Tonight I'll give my marshals their hi-vis vests, instructions and a boot load o...

Wellsie

•12 years ago

1 Reply

Could anyone tell me where I can obtain leaflet "Understanding Vasculitis"? thanks

ipswichlady

•12 years ago

5 Replies

DILEMMA

I have a very dear friend who is very poorly in hospital with necrossa pancreaitis. I am a WG patient in remission, on 10mg prednisolone and azathioprine, so...

I have a very dear friend who is very poorly in hospital with necrossa pancreait...

fillyhome

•12 years ago

9 Replies

prednisolone questions

Hi all, I have a working diagnosis of Vasculitis with a probability of Behcets or possibly even Neuro Behcets. My main drug at the moment is Imuran but I'm...

Hi all, I have a working diagnosis of Vasculitis with a probability of Behcet...

mandyf

•12 years ago

11 Replies

Final Push for sponsors, and more on WWW

Walk the Worcestershire Way (or WWW as I know abbreviate it to) is looming ever closer... I'm on my final push to alienate as many friends and work...

Walk the Worcestershire Way (or WWW as I know abbreviate it to) is looming ever ...

Wellsie

•12 years ago

5 Replies

Thank you everyone .......

Hi everyone, I just want to say a big thank you to everyone for their advice and help when I have put questions on Health Unlocked in the last six months,...

Hi everyone, I just want to say a big thank you to everyone for their advice ...

Sima1952

•12 years ago

5 Replies

Apprehensive about Rituximab

Well I'm now on course to get Rituximab, since Azathioprine didn't suit me. Just waiting for a date for my first infusion. However, I'm a bit apprehensive in...

Well I'm now on course to get Rituximab, since Azathioprine didn't suit me. Just...

suffolkgirl

•12 years ago

16 Replies

Faith in local media restored

After my slight rant back in May about our local papers not running my submitted article on the Worcestershire Way for Vasculitis awareness month, I am pleased...

After my slight rant back in May about our local papers not running my submitted...

Chris-Bromsgrove

•12 years ago

8 Replies

Bromsgrove Standard Today! Walking the Worcestshire Way :-)

A BROMSGROVE man and his daughter are walking the 31-mile Worcestershire Way on Sunday (June 30) to raise awareness of Vasculitis and funds for the charity...

A BROMSGROVE man and his daughter are walking the 31-mile Worcestershire Way on ...

John_Mills

Volunteer•12 years ago

Be the first to reply

Many thanks to Jackie for S Wales meeting

It was great to meet up with other vasculitis patients (and some partners) at an excellent meeting organised by Jackie! Many thanks - these groups make a real...

It was great to meet up with other vasculitis patients (and some partners) at an...

Hidden

•12 years ago

1 Reply

Chickenpox...

I have been on azathioprine pretty much continuously for nine years. During that time I'd had shingles twice...the second episode was pretty horrible. My...

I have been on azathioprine pretty much continuously for nine years. During that...

laidbackreader

•12 years ago

8 Replies

Doing my homework on vasculitis

Have been reading this site like crazy and trying to think about all this information and keeping it fresh in my brain. I read a blog and they said searching...

Have been reading this site like crazy and trying to think about all this inform...

dskizs

•12 years ago

4 Replies

Latest Poll

Could we have another 18 votes please before we move onto the next stage of the evidence and have another poll Thank you...

Could we have another 18 votes please before we move onto the next stage of the ...

John_Mills

Volunteer•12 years ago

2 Replies

Walk the Worcestershire Way: Saturday's itinerary

For anybody that thought they'd like to pop along but wondered what the plan might be, here it is. At final count, the walking team now consists of Martyn,...

For anybody that thought they'd like to pop along but wondered what the plan mig...

Wellsie

•12 years ago

7 Replies

Anca associated vasculitis study

Have been asked by my hospital to take part in a study for anca associated vasculitis.which I am more than willing to do .has anyone on here been asked if they...

Have been asked by my hospital to take part in a study for anca associated vascu...

Hidden

•12 years ago

13 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for June 2013

Worcs Way - Mission accomplished

Anca level high is this a problem ?

Haematology

Kidney biopsy. l am having a kidney biopsy on the 10th July to get a definite diagnosis of what my consultant believes to be WG. ,,

Is having a fit a normal thing. I had one last week

Hi I have foot drop in my left foot I experience really tight skin in this foot and if I don't wear my ago my foot becomes really heavy.

First ever post...I have a positive c-anca...is it possible that i have no illness at all?

What is foot drop? I

Good Luck to Martyn Chris and the gang walking the Worcestershire Way for VUK today!

Gluten free and anti-inflammatory diet

Will the swollen legs & feet ever go away with CSS?

WWW final prayers

Job vacancy working for Benefits and Work (from home) Welfare Rights Support Worker.

Benefits and Work June 26th Newsletter plus PIP mobility consultation

Question for John Mills please. Could you please let me know where I can obtain the leaflet "understanding Vasculitis" Many thanks.

WWW final preparations

Could anyone tell me where I can obtain leaflet "Understanding Vasculitis"? thanks

DILEMMA

prednisolone questions

Final Push for sponsors, and more on WWW

Thank you everyone .......

Apprehensive about Rituximab

Faith in local media restored

Bromsgrove Standard Today! Walking the Worcestshire Way :-)

Many thanks to Jackie for S Wales meeting

Chickenpox...

Doing my homework on vasculitis

Latest Poll

Walk the Worcestershire Way: Saturday's itinerary

Anca associated vasculitis study

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If you have had covid and contacted a medical professional/hospital what medication/treatments were you offered?

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