Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,780 members • 6,753 posts

All posts for April 2021

Stage 4 pancreatic cancer -

My dad got diagnosed with stage 4 pancreatic cancer last week. We didn't even know he had cancer. He had been complaining about back pain so hospital took a...

My dad got diagnosed with stage 4 pancreatic cancer last week. We didn't even k...

•3 years ago

Egfr results

I had an appt with my renal consultant on the 26th April which was canx & re-scheduled for 10th May. I went onto patient view & checked my bloods etc from...

I had an appt with my renal consultant on the 26th April which was canx & re-sch...

•3 years ago

Sinus/Nose Pain

Hi, I’m awaiting results of blood tests and chest x-ray from first appointment with Rheumatologist a month ago. My GP referred me as he suspects vasculitis as...

Hi, I’m awaiting results of blood tests and chest x-ray from first appointment w...

•3 years ago

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Normal blood tests

How can I possibly make doctors understand. I’ve got all the symptoms and diagnosis to put me here but my pcp and dermatologist agree even with my vasculitis...

How can I possibly make doctors understand. I’ve got all the symptoms and diagno...

•3 years ago

Delay in Rituximab

Hi my OH was due his second RTX as part of his 2 year schedule. He has developed a throat infection and after contacting the hospital his RTX for tomorrow is...

Hi my OH was due his second RTX as part of his 2 year schedule. He has developed...

•3 years ago

Tired of fatigue.

I was diagnosed with LVV in December 2020 and l am still trying to understand what l have got. One thing l do have is fatigue, but what is responsible for it,...

I was diagnosed with LVV in December 2020 and l am still trying to understand wh...

•3 years ago

Pred help!

Can forgetting a dose of pred for one day (15mg) cause a sudden flare that night of pain in every joint? I’m asking for my husband who has vasculitis...

Can forgetting a dose of pred for one day (15mg) cause a sudden flare that nig...

•3 years ago

Shingles

Hi. I have GPA. Has anyone been diagnosed with Shingles following their Covid vaccinations.? I just wondered if there was a connection. I developed Shingles...

Hi. I have GPA. Has anyone been diagnosed with Shingles following their Covid va...

•3 years ago

Covid vaccinations

I live in France and have Churg Strauss. I am to get my first Covid vaccination on tuesday, at last! My specialist has said I should have 3 in all. Has anyone...

I live in France and have Churg Strauss. I am to get my first Covid vaccination...

•3 years ago

Any advice?

Hi all. I’ve just joined here and recently been diagnosed with ANCA vasculitis. I’d never heard of it and had a series of tests. I’d love to hear any stories...

Hi all. I’ve just joined here and recently been diagnosed with ANCA vasculitis. ...

•3 years ago

Fruit

What fruit is good for vasculitis?

What fruit is good for vasculitis?

•3 years ago

Covid jab

Hello all It has been a while since I have posted, I wanted to ask you a question that has caused some confusion in our house. Would you or I assume that if...

Hello all It has been a while since I have posted, I wanted to ask you a questio...

•3 years ago

Nerve damage

Hi i was diagnosed with EGPA last year ive been left with severe failure and i am now having to have a s-icd fitted and nerve damage on my left leg and...

Hi i was diagnosed with EGPA last year ive been left with severe failure and i a...

•3 years ago

Sinus headaches

I was diagnosed with GPA in 2016 and have been off meds for 18 months. I have regular check ups with a rheumatology specialist and a renal consultant and they...

I was diagnosed with GPA in 2016 and have been off meds for 18 months. I have re...

•3 years ago

Antibodies and Covid19 with EGPA

Covid Antibodies after Covid vaccine....I have EGPA and on Mycophenolate and Benralizumab. Had first Covid jab and was subsequently asked to do a Covid...

Covid Antibodies after Covid vaccine....I have EGPA and on Mycophenolate and Ben...

•3 years ago

Weaker response to Covid vaccination

Interesting Article in the Daily Mail today, concerning autoimmune conditions and a weaker response to the jab. Has anyone spoken to there consultants about...

Interesting Article in the Daily Mail today, concerning autoimmune conditions an...

•3 years ago

I was diagnosed with Wegeners Granulomatosis, now known as Granulomatosis with Polyangiitis, 20 years ago this month.

My wife Susan has written my vasculitis story for the VUK website for those who have an interest. https://www.vasculitis.org.uk/john-mills-story

My wife Susan has written my vasculitis story for the VUK website for those who ...

Volunteer•3 years ago

Utter exhaustion ..........

Good morning . My diagnosis is / was Cryogobulemic vasculitis in 2017. Having had all the treatments listed ( started on mycophenolate which damaged my lungs...

Good morning . My diagnosis is / was Cryogobulemic vasculitis in 2017. Having ha...

•3 years ago