Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for September 2012

DLA APPEAL HEARING

I have my DLA appeal hearing very shortly does anyone have any advice on the subject please.

I have my DLA appeal hearing very shortly does anyone have any advice on the su...

Sunshaz

•12 years ago

3 Replies

Sinus and ear discomfort

Hi all, At the moment I am having a few grumbling symptoms due to my WG. The main issue is my Sinuses - they have been giving me grief for some time now....

Hi all, At the moment I am having a few grumbling symptoms due to my WG. The ma...

Regie79

•12 years ago

6 Replies

going out

My daughter booked to take me to the Harry Potter studio tour for my 60th birthday. We had to postpone it for a few months as I've been quite poorly. We went...

My daughter booked to take me to the Harry Potter studio tour for my 60th birthd...

nannie

•12 years ago

6 Replies

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take a day off

I have "days off", on these days * I'm not in too much pain to get up - I'm having a lie in/lazy day. * it's not that I can't get dressed - I'm having a...

I have "days off", on these days * I'm not in too much pain to get up - I'm ha...

hamble99b

Volunteer•12 years ago

5 Replies

ABRUPT PREDNISOLONE WITHDRAWAL

Hi everyone, I really need done help and advice. Because of TakayaSu's arteritis I was put in 40 mg per day prednislone. Unfortunately this effected my mood...

Hi everyone, I really need done help and advice. Because of TakayaSu's arteriti...

Coffeebix

•12 years ago

3 Replies

All Ireland Vasculitis Conference

ALL IRELAND VASCULITIS CONFERENCE - Don't forget the two day conference takes place next weekend (6th and 7th October) in Dun Laoghaire at the Royal Marine...

ALL IRELAND VASCULITIS CONFERENCE - Don't forget the two day conference takes pl...

PatriciaAnn

•12 years ago

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Look out for the VUK Autumn Newsletter due out in the next few days

The hard copy Autumn newsletter will be dropping on your doorstep in the next few days. :-) All thanks to Patricia. :-) For past Vasculitis UK pdf newsletters...

The hard copy Autumn newsletter will be dropping on your doorstep in the next fe...

John_Mills

Volunteer•12 years ago

3 Replies

Yorkshire (North) Meeting

Hi all Just a quick reminder of the first Yorkshire Support Group meeting (North) Sunday 7th October 2012 Gomersal Park Hotel 1.30pm to 4.30pm Private...

Hi all Just a quick reminder of the first Yorkshire Support Group meeting (No...

LynneJ

Vasculitis UK•12 years ago

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Channel 4 News this evening - regarding ATOS

If you have not seen Channel 4 news this evening... regarding ATOS Assessments...please watch Channel 4 +1 ....

If you have not seen Channel 4 news this evening... regarding ATOS Assessments.....

John_Mills

Volunteer•12 years ago

5 Replies

Wolff Parkinson White syndrome

Does anyone else have this alongside their vasculitis? I was diagnosed last week and spent 24 hours on a heart monitor. Told not to fuss by the cardiologist,...

Does anyone else have this alongside their vasculitis? I was diagnosed last week...

BronteM

•12 years ago

2 Replies

What a difference a day makes!

My last appointment with the rheumatologist at the local hospital left me, my husband, and my GP very confused, and worried. Despite clinical signs of...

My last appointment with the rheumatologist at the local hospital left me, my hu...

BronteM

•12 years ago

6 Replies

Has anyone had a bad reaction or actually had flu from the flu vaccination? If so how did it affect you?

John_Mills

Volunteer•12 years ago

18 Replies

Hospital Parking Charges

I've recently been a bit niggled that the hospital that provides my care provides free parking to oncology patients on chemotherapy. Fair enough. But no...

I've recently been a bit niggled that the hospital that provides my care provide...

Wellsie

•12 years ago

22 Replies

Hemp Oil

Has anyone used Hemp Oil (NOT Hemp Seed) as a natural supplement in their treatment of Vasculitis? I would be interested to know if it made any difference...

Has anyone used Hemp Oil (NOT Hemp Seed) as a natural supplement in their treatm...

HiveMind

•12 years ago

2 Replies

pneumo jab

any weggie have the pneumonia jab while on prednisolone and mtx? my gp is reluctant to ive it. regards, sandra.

any weggie have the pneumonia jab while on prednisolone and mtx? my gp is reluct...

hamble99b

Volunteer•12 years ago

19 Replies

Daily Record Monday 24th September 2012 "Nurse blows whistle on Atos cruel health tests"

http://www.dailyrecord.co.uk/news/scottish-news/nurse-makes-heartfelt-apology-after-1340838

http://www.dailyrecord.co.uk/news/scottish-news/nurse-makes-heartfelt-apology-af...

John_Mills

Volunteer•12 years ago

4 Replies

my duvet hurts!

hurts me that is. I have one of the lightest possible duvets, a single mulberry silk one. I used a microfibre blanket up to now but it's too cold at night...

hurts me that is. I have one of the lightest possible duvets, a single mulberry...

hamble99b

Volunteer•12 years ago

7 Replies

Does anyone with WG have or ever had pericarditis?

Last chemo treatment last week and still on prednisone 5mg daily along with many other pills. If anyone else has/had pericarditis how long did take to recover...

Last chemo treatment last week and still on prednisone 5mg daily along with many...

beljac

•12 years ago

4 Replies

South Wales support group

Unfortunately, I am going to have to postpone the group meeting until next Spring unless someone else would like to organise it. I will help as much as I can,...

Unfortunately, I am going to have to postpone the group meeting until next Sprin...

JackieT

•12 years ago

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Two new fundraising events for your diaries... Table Top and Card Sale in Surrey and Kick Boxing Charity Night in the Midlands

http://www.vasculitis.org.uk/events/kickboxing-nov-12 http://www.midlandskickboxing.com/ There will be a raffle so could you please let the organisors know...

http://www.vasculitis.org.uk/events/kickboxing-nov-12 http://www.midlandskickb...

John_Mills

Volunteer•12 years ago

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Cycle 5, more appointments and a rant about parking costs

Whilst waiting for blood tests last Friday, I worked out that I am spending >£65/month on parking at UHCW, my free NHS hospital. And then about £30/month in...

Whilst waiting for blood tests last Friday, I worked out that I am spending >£65...

Wellsie

•12 years ago

10 Replies

Vasculitis Support Group Meetings and Events... also local support group/contacts and information.

http://www.vasculitis.org.uk/events http://www.vasculitis.org.uk/about/local-support-groups If anyone is holding a vasculitis support group meeting or just...

http://www.vasculitis.org.uk/events http://www.vasculitis.org.uk/about/local-su...

John_Mills

Volunteer•12 years ago

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West Midlands Vasculitis Support Group Meeting (VSGWM) The next meeting will be held at the Hilton Hotel, Bromsgrove on Sunday 14th October

The meeting will start at 1.30pm. The speakers on this occasion will be Dr Julie Williams and Dr Matt Morgan of Birmingham University Hospital....

The meeting will start at 1.30pm. The speakers on this occasion will be Dr Ju...

John_Mills

Volunteer•12 years ago

2 Replies

Rituximab

Could someone please explain to me why is Rituxamab is: a.) Given only to certain patients? b.) WHY is it given (i.e. what benefit do patients get from it?)...

Could someone please explain to me why is Rituxamab is: a.) Given only to certa...

HiveMind

•12 years ago

5 Replies

Big thank you.

Just a big thank you to Jan and her team for organising a very interesting North West meeting at The Tickled Trout last Sunday. Dr Elizabeth Macphie gave a...

Just a big thank you to Jan and her team for organising a very interesting North...

jeang

•12 years ago

3 Replies

Hi, can anyone tell me when the next South Wales group is meeting please?RegardsLlinos

Llinos

•12 years ago

4 Replies

Hi. I have Takayasu's Arteritis and over the last 18 months my disease activity has progressed despite a recent course of cyclophosphamide.

There is now talk of me starting infliximab. I'm interested to hear what people's experiences are with this drug - good or bad! Thanks. Jane

There is now talk of me starting infliximab. I'm interested to hear what people...

JElsom

•12 years ago

3 Replies

Are ear grommets suitable for adult?

I am 70 years of age with CSS and have become partially deaf over the last 3 months. Following tests at the ENT department the cause has been diagnosed as...

I am 70 years of age with CSS and have become partially deaf over the last 3 mon...

Derek

•12 years ago

11 Replies

Microscopic Polyangitiis... and advice?

I'm currently in the middle of the initial treatment and finding it really hard to deal with this change in my life. Any advice welcome, especially on how to...

I'm currently in the middle of the initial treatment and finding it really hard ...

JaneLE

Administrator•12 years ago

9 Replies

West Country Vasculitis Support Group Lunch

Hi, Just a quick reminder about the next West Country Vasculitis Support Group lunch which is to be held on Weds, 3 October at the Mill on the Exe in Exeter....

Hi, Just a quick reminder about the next West Country Vasculitis Support Group l...

DevonLottie

•12 years ago

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Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for September 2012

DLA APPEAL HEARING

Sinus and ear discomfort

going out

take a day off

ABRUPT PREDNISOLONE WITHDRAWAL

All Ireland Vasculitis Conference

Look out for the VUK Autumn Newsletter due out in the next few days

Yorkshire (North) Meeting

Channel 4 News this evening - regarding ATOS

Wolff Parkinson White syndrome

What a difference a day makes!

Has anyone had a bad reaction or actually had flu from the flu vaccination? If so how did it affect you?

Hospital Parking Charges

Hemp Oil

pneumo jab

Daily Record Monday 24th September 2012 "Nurse blows whistle on Atos cruel health tests"

my duvet hurts!

Does anyone with WG have or ever had pericarditis?

South Wales support group

Two new fundraising events for your diaries... Table Top and Card Sale in Surrey and Kick Boxing Charity Night in the Midlands

Cycle 5, more appointments and a rant about parking costs

Vasculitis Support Group Meetings and Events... also local support group/contacts and information.

West Midlands Vasculitis Support Group Meeting (VSGWM) The next meeting will be held at the Hilton Hotel, Bromsgrove on Sunday 14th October

Rituximab

Big thank you.

Hi, can anyone tell me when the next South Wales group is meeting please?RegardsLlinos

Hi. I have Takayasu's Arteritis and over the last 18 months my disease activity has progressed despite a recent course of cyclophosphamide.

Are ear grommets suitable for adult?

Microscopic Polyangitiis... and advice?

West Country Vasculitis Support Group Lunch

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