Posts - Vasculitis UK | HealthUnlocked

Moderator•11 years ago

Paul Hunter will bravely take to the skies on 3rd September and skydives not only for Vasculitis UK but for Jessica Jessica is 13 years old and was...

Paul skydives for Jessica and Vasculitis UK

Paul Hunter will bravely take to the skies on 3rd September and skydives not on...

Moderator•11 years ago

I have had 'uncategorised' ANCA vasculitis, for about seventeen years now. A lot of fellow members do 'know' me I am aware. I was just wondering if, my...

Starting a discussion on Vasculitis & Kidney Disease

I have had 'uncategorised' ANCA vasculitis, for about seventeen years now. A lo...

AndrewT

•11 years ago

Berkshirebird created this beautiful embroidery from our grand daughter's drawing.. She is donating 50% of the fee she charges for doing this to Vasculitis...

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A picture drawn by a child transformed into a lovely piece of embroidery

Berkshirebird created this beautiful embroidery from our grand daughter's draw...

This is James, the partner of Tanya Taylor, who was diagnosed with ‪‎Wegener's Granulomatosis‬ (GPA) on the 6th August 2014, raising awareness of...

Moderator•11 years ago

2 Replies

In memory of Tanya Taylor by her partner James.

This is James, the partner of Tanya Taylor, who was diagnosed with ‪‎Wegener's G...

I an aware that research is being carried out in regenerative tissue production especially heart muscle tissue. My question is: If the heart muscle is damaged...

Moderator•11 years ago

1 Reply

Regenerative heart muscle tissue

I an aware that research is being carried out in regenerative tissue production ...

Albasain

•11 years ago

This is aimed at carers of those diagnosed with Vasculitis, who live in the Norfolk/Suffolk area, if anyone maybe interested. "Well Being for Carers...

"Well Being - Carers Workshops" Norfolk/Suffolk area September 2014

This is aimed at carers of those diagnosed with Vasculitis, who live in the Norf...

Moderator•11 years ago

Came across this one a little bit late, but if you live in or around Suffolk and have vasculitis it might be worth a visit, there is the last one tomorrow....

The NHS West Suffolk Clinical Commissioning Group (CCG) is on the road again this summer, with a series of market stall health road shows.

Came across this one a little bit late, but if you live in or around Suffolk and...

Moderator•11 years ago

The next West Yorkshire Support Group Meeting will be held on Sunday 14th September 2014. The meeting will again be held at the Gomersal Park Hotel, Moor...

West Yorkshire Support Group Meetng

The next West Yorkshire Support Group Meeting will be held on Sunday 14th Septem...

LynneJ

Vasculitis UK•11 years ago

Public to have their say on major health reforms in a series of 'Question Time' debates just follow the link for details...

If you have Vasculitis and live in the Manchester area these meetings might be of interest.

Public to have their say on major health reforms in a series of 'Question Time' ...

Moderator•11 years ago

Congratulations to Georgia Ben Kathleen and Chloe cycling for Vasculitis UK and raising £5000. Especially to Ben who was diagnosed with Polyarthritis Nodosa...

Congratulations to Chloe Hopwood, Kathleen McNee, Georgia Upjohn and Ben Upjohn for cycling from Lands End to John O'Groats for VUK

Congratulations to Georgia Ben Kathleen and Chloe cycling for Vasculitis UK and...

Moderator•11 years ago

Annie is taking part in the Great North Run on 7th September. She will also be busy on Saturday 6th September holding a coffee morning, cake stall and...

Coffee Morning for Vasculitis in Tynemouth

Annie is taking part in the Great North Run on 7th September. She will also b...

Moderator•11 years ago

I have GPA and started Rituximab just under 12 weeks ago. My inflammatory markers are normal and ANCA result now negative, pred down to 15mg daily. Despite...

Rituximab Advice

I have GPA and started Rituximab just under 12 weeks ago. My inflammatory marke...

Maudy1

•11 years ago

6 Replies

Hsp/iga vasculitis

Hi all I'm new to this, is there anybody out there with hsp/iga vasculitis? I've looked in here but posts are very old over a year ago.

Hi all I'm new to this, is there anybody out there with hsp/iga vasculitis? I've...

Ravi35

•11 years ago

25 Replies

Circulation boosting machines

Has anyone tried these circulation boosting ISO rocker machines? I have regenerating peripheral nerves and wondered if they are recommended, any good or a...

Has anyone tried these circulation boosting ISO rocker machines? I have regene...

RareStap

•11 years ago

Gareth was diagnosed with an extremely rare type of Vasculitis, 3 years ago. If you follow the first link below, it will take you to the newspaper article....

Gareth Garner, 19, will take up a place at the University of Chester next month to read bio medical sciences. "Newgate Journal August 2014"

Gareth was diagnosed with an extremely rare type of Vasculitis, 3 years ago. If ...

Hi, I was recently diagnosed with lupus and I'm only 15. I was wondering if I could be taking water retention pills to help with the bloating. Because I'm...

Moderator•11 years ago

2 Replies

Bloating with lupus

Hi, I was recently diagnosed with lupus and I'm only 15. I was wondering if I co...

Zaniahfriesen

•11 years ago

I have had very red infected legs for 4monthes now been going to nurse regularly. For dressings was old it was cellulitis then was referred to vascular...

Infected legs

I have had very red infected legs for 4monthes now been going to nurse regularl...

Yorkie369

•11 years ago

This may be of some support if you have Vasculitis and live in North Yorkshire...

Harrogate Chronic Pain and Chronic Fatigue Support Group

This may be of some support if you have Vasculitis and live in North Yorkshire.....

Moderator•11 years ago

After a few falls due to CSS vasculitis in my feet, I now have chronic sciatica, wonderful! Anyone had the same, any recommendations - doing the excercises...

Vasculitis and sciatica

After a few falls due to CSS vasculitis in my feet, I now have chronic sciatica,...

RareStap

•11 years ago

For some time now, I have been getting feelings of nausea (at almost anytime, including the middle of the night!), bloating, feeling full quickly when eating...

Anyone been diagnosed with gastroparesis?

For some time now, I have been getting feelings of nausea (at almost anytime, in...

Ayla

Volunteer•11 years ago

8 Replies

Raynaud’s and Scleroderma Annual Conference September 5th/6th 2014

For those who have Vasculitis crossovers with Raynauds & Scleroderma and also for those diagnosed with Raynauds and Scleroderma. This year the annual...

For those who have Vasculitis crossovers with Raynauds & Scleroderma and also fo...

Moderator•11 years ago

Eating grapefruit or drinking grapefruit juice can affect some medicines. In most cases, it increases the level of the medicine in your blood. This can...

Some Important Information Regarding Grapefruit and Certain Medicines.

Eating grapefruit or drinking grapefruit juice can affect some medicines. In mos...

Moderator•11 years ago

http://kidney.org.uk/home/news-2/changes-to-dialysis-tariff-payments-latest/...

Kidney Dialysis Funding Cuts Announced August 2014

Moderator•11 years ago

I have pins and needles in my lower legs and feet, and the skin looks very blue. I also get what seems like electric shock feelings in my legs and feet, and...

Symptoms of peripheral vasculitis

I have pins and needles in my lower legs and feet, and the skin looks very blue...

bowler

•11 years ago

8 Replies

Experts believe a molecule in parasitic worms could help explain why worm infections can effectively treat a range of autoimmune diseases.

Experts believe a molecule in parasitic worms could help explain why worm infections can effectively treat a range of autoimmune diseases, including multiple...

Experts believe a molecule in parasitic worms could help explain why worm infect...

Moderator•11 years ago

Hi there, I am 49year old. Almost 3 years ago I developed pains and stiffness in neck, shoulders, bottom, hips and thighs. After 14 month of suffering I was...

Advice regarding possible Giant cell Arteritis

Hi there, I am 49year old. Almost 3 years ago I developed pains and stiffness in...

Runrig01

•11 years ago

14 Replies

The UK Ghostbusters Team up with Vasculitis UK

Thought I would share this, Jann Landles one of VUK's trustees is now also a trustee of ARMA. ( Arthritis and Musculoskeletal Alliance.) She suggested I wrote...

Thought I would share this, Jann Landles one of VUK's trustees is now also a tru...

Grandaughter had MMR live vaccine I am immunosuppressed do I need to stay awAy from her and if so how long?

Moderator•11 years ago

4 Replies

MMR vaccine

Grandaughter had MMR live vaccine I am immunosuppressed do I need to stay awAy f...

Hidden

•11 years ago

Each week, until the end of August, JustGiving.com will enter Vasculitis UK into a free £1000 draw. All that is required is that each week at least 100 people...

With your help Vasculitis UK could win £1000 - JustGiving 100 Care Challenge

Each week, until the end of August, JustGiving.com will enter Vasculitis UK into...

Moderator•11 years ago