Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,941 members•6,973 posts

All posts for December 2024

Happy New Year

Wishes for health and prosperity!

Wishes for health and prosperity!

Administrator•3 months ago

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Blisters under skin - caused by vasculitis?

Hello, I just wanted to ask if anybody has experience of blisters under the skin being caused by vasculitis. My 21-year-old daughter has a diagnosis of IgA...

Hello, I just wanted to ask if anybody has experience of blisters under the ski...

•3 months ago

Vasculitis and Acute Pancreatitis

Hello I recently achieved the Induction phase with my renal limited vasculitis and was about to start Maintenance when I was hit with acute pancreatitis....

Hello I recently achieved the Induction phase with my renal limited vasculitis a...

•4 months ago

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Season's Greetings

We, from Vasculitis UK are wishing you Happy Holidays!

We, from Vasculitis UK are wishing you Happy Holidays!

Administrator•4 months ago

Positive anca and uveitis, does this mean I have vasculitis? Seeking advice pre-diagnosis

hi everyone, I’m not yet diagnosed with vasculitis, but it has been raised as a possibility following a positive anca blood test. I’m waiting for some more...

hi everyone, I’m not yet diagnosed with vasculitis, but it has been raised as a...

•4 months ago

Severe mouth ulcers

I was diagnosed with GPA in March and have been undergoing treatment with steroids and rutixumab Infusions (last one in August) and next one pla ned for Feb...

I was diagnosed with GPA in March and have been undergoing treatment with steroi...

•4 months ago

Young Behcets patients

If you are a young person with Behcets or if you have a child with Behcets you can help create resources to support fellow sufferers. Vasculitis UK works...

If you are a young person with Behcets or if you have a child with Behcets you c...

Administrator•4 months ago

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Survey

Important! Vasculitis, rheumatology and other autoimmune diseases patient survey from the University of Cambridge. This survey asks about your...

Important! Vasculitis, rheumatology and other autoimmune diseases patient surve...

Administrator•4 months ago

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Seeking Support: APS Suspicions, Lymphocytic Vasculitis, and Persistent Skin Lesions (No Ulcerations)

Hello, everyone! I’m Alex, 41 years old, from Romania, and I’m looking for support and insights from others who may have faced similar challenges. Here’s a...

Hello, everyone! I’m Alex, 41 years old, from Romania, and I’m looking for supp...

•4 months ago

Please support the VOICES study

The Versus Arthritis Research Highlight of the Year competition is open. We have supported one of these research projects and it is the first to collect data...

The Versus Arthritis Research Highlight of the Year competition is open. We have...

Administrator•4 months ago

Takayasu Arteritis?

I’m not from the UK, the US unfortunately but this is the only forum i’ve found that have many people with this issue so i figured i’d be welcomed anyway!!...

I’m not from the UK, the US unfortunately but this is the only forum i’ve found ...

•4 months ago

Bilirubin levels.

Hi, has anyone else had high bilirubin levels. I was diagnosed 4 years ago with gpa. This is the first time my bilirubin has came back very raised. I have an...

Hi, has anyone else had high bilirubin levels. I was diagnosed 4 years ago with ...

•4 months ago

Benralizumab for EGPA patients

Vasculitis UK is appraising benralizumab. I would welcome quotes from EGPA patients who are on benra, or have been refused benra to include in...

Vasculitis UK is appraising benralizumab. I would welcome quotes from EGPA pati...

Administrator•4 months ago