Posts - Vasculitis UK | HealthUnlocked

I'm losing A lot of hair from my head, a lot comes out when washing/brushing it, even if I run my fingers through it I have a good couple of strands. I hardly...

Moderator•10 years ago

2 Replies

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Methotrexate & pred

I'm losing A lot of hair from my head, a lot comes out when washing/brushing it,...

Ravi35

•10 years ago

10 Replies

There have been many questions and enquiries regarding the Flu Vaccine, so we thought we would share this information from PHE.

John has just been talking to Public Health England regarding their advice regarding the flu vaccine and being immunosuppressed. This is their advice.:- If...

John has just been talking to Public Health England regarding their advice reg...

Peter Micallef had his four-year-old daughter Olivia cheering him on all the way...and particularly while she sat on his back during all 1,000 press-ups. The...

Moderator•10 years ago

17 Replies

Peter Micallef Warrington Guardian - Fundraising for Vasculitis UK & Liverpool Women's Hospital

Peter Micallef had his four-year-old daughter Olivia cheering him on all the way...

Moderator•10 years ago

I have had concent leg infections for the last 5 months have been under practice nurse weekly have been referred. To see a viability tisshoo nurse has anyone...

Viability. Nurse

I have had concent leg infections for the last 5 months have been under practice...

Yorkie369

•10 years ago

The Vasculitis Autumn newsletter is very soon to be published. This edition is mainly about Vasculitis research and research projects, which is very important...

Vasculitis Autumn Newsletter 2014, Your help is needed :-)

The Vasculitis Autumn newsletter is very soon to be published. This edition is m...

Moderator•10 years ago

Hello im new to this site. I am awaiting my 1st appt to see and or to begin tests to see if i have vasculitis..... suffering very many symptoms over many...

Yesitsme

Hello im new to this site. I am awaiting my 1st appt to see and or to begin tes...

Indeeditsme

•10 years ago

4 Replies

Cellulitous

I have had celluliyouse in both of my legs for 5months been going to nurse weekly to have leg dressed also had compression bandage on but it made my leg...

I have had celluliyouse in both of my legs for 5months been going to nurse wee...

Yorkie369

•10 years ago

A weekend conference at The Royal Marine Hotel DunLaoghaire - Saturday 4th October (11am) to Sunday 5th October (lunch time). The weekend will comprise talks...

Vasculitis Ireland Annual Conference October 4th & 5th Dublin

A weekend conference at The Royal Marine Hotel DunLaoghaire - Saturday 4th Octob...

Moderator•10 years ago

David was diagnosed with Wegeners Granulomatosis (GPA) just over 5 years ago and wants to raise awareness of Vasculitis and fundraise for Vascsulitis UK, so...

Soul Night with a difference for Vasculitis UK

David was diagnosed with Wegeners Granulomatosis (GPA) just over 5 years ago an...

Moderator•10 years ago

If you live around ‪‎Bournemouth‬ ‪Pier‬ and ‪Boscombe‬ Pier and would like to raise awareness of vasculitis, ‪please join Karen, family and friends...

On Sunday 21st September, Karen, family and friends will be walking, running and cycling between Bournemouth & Boscombe piers for Vasculitis

If you live around ‪‎Bournemouth‬ ‪Pier‬ and ‪Boscombe‬ Pier and would like to ...

Moderator•10 years ago

I suddenly developed severe central nervous system symptoms after surgery and repair with titanium plates and screws to repair 2 fractured bones in my ankle...

Vasculitis after surgery and implants?

I suddenly developed severe central nervous system symptoms after surgery and re...

RareLily

•10 years ago

2 Replies

West Country Support Group Lunch

The next West Country Vasculitis Support Group lunch is booked for Sunday 19 October 12.00 noon The Barn Owl Guardian Road Exeter EX1 3PE As...

The next West Country Vasculitis Support Group lunch is booked for Sunday 19 ...

DevonLottie

•10 years ago

Hi, My son has Vasculitis with kidney involvement. He also has autism, and he finds it very difficult to fall asleep. He has been on melatonin for years,...

Melatonin & Vasculitis

Hi, My son has Vasculitis with kidney involvement. He also has autism, and he ...

janjon

•10 years ago

2 Replies

at easter I sufferd with gastroenteritis.my new doctor said he would not give me anything for it,even though I told him about my

depleted immune system.several weeks later it was a water infection,this time, a different doctor.antibiotics and an ultrasound scan. I visited yet another...

depleted immune system.several weeks later it was a water infection,this time, a...

gsmith

•10 years ago

Speaker for the Meeting is Dr Maria Fraser, Clinical Psychologist and the topic is Vasculitis: Coping with Depression

Merseyside Cheshire VSG Meeting 9th October Speaker

Speaker for the Meeting is Dr Maria Fraser, Clinical Psychologist and the topic ...

SusanCh

•10 years ago

4 Replies

Worried

Hi. I was discharged last night following my first cyclophosphamide treatment on Wednesday. So this has been my first day back at home today. The doctor who...

Hi. I was discharged last night following my first cyclophosphamide treatment on...

Bindy68

•10 years ago

8 Replies

West Yorkshire VSG

Don't forget, if you live in the West Yorkshire area that Lynne, Sam and Richard are holding a vasculitis support group on Sunday 14th September....

Don't forget, if you live in the West Yorkshire area that Lynne, Sam and Richard...

PatriciaAnn

•10 years ago

I've been given methotrexate from last week, as the steroids prednisolone And mycophenonlate are not making a difference to my condition. Has anyone had...

Hsp/iga- methotrexate medication

I've been given methotrexate from last week, as the steroids prednisolone And my...

Ravi35

•10 years ago

11 Replies

Head Pain

I have had a pain the in the left base of my skull which hurts to touch for 5 days now with a bad headaches which goes up the back and over the top of my head....

I have had a pain the in the left base of my skull which hurts to touch for 5 da...

vickylou01

•10 years ago

6 Replies

Andrew Willows memorial charity golf match presentation evening,

Andrew Willows memorial charity golf match presentation evening, Ormond Fields Golf Club, Codnor. John is with Emily Willows & Debbie Willows. £1635 was raised...

Andrew Willows memorial charity golf match presentation evening, Ormond Fields G...

Moderator•10 years ago

Hi. I'm Lynda and I've just been Dx with vasculitis (although they haven't identified a cause so likely to be idiopathic). I started with mononeuritis...

Newcomer

Hi. I'm Lynda and I've just been Dx with vasculitis (although they haven't ident...

Bindy68

•10 years ago

13 Replies

Tooth pain update - Can vasculitis cause this?

I have posted previously about trouble with tooth pain (upper right side at back). This week a had a funny sensation in the same teeth so I took the naproxen...

I have posted previously about trouble with tooth pain (upper right side at back...

AllyGY2013

•10 years ago

10 Replies

Honest Benefit Claim & Fine Given -- warning

I recently had my Incapacity Benefit moved over to Employment Support Assistance. So when I went to the dentist he asked if on Benefits and I told him about...

I recently had my Incapacity Benefit moved over to Employment Support Assistance...

anthony01

•10 years ago

3 Replies

Scientists have made an important breakthrough in the fight against debilitating autoimmune diseases such as multiple sclerosis.

This news sounds hopeful :-) Scientists have made an important breakthrough in the fight against debilitating autoimmune diseases such as multiple sclerosis...

This news sounds hopeful :-) Scientists have made an important breakthrough in ...

In the FB group there has been a question regarding Vitiligo and if there is a connection with Vasculitis.

Moderator•10 years ago

6 Replies

Does anyone suffer with Vitiligo as well as Vasculitis?

In the FB group there has been a question regarding Vitiligo and if there is a c...

I have Polymyalgia and for the last 18 months have had symptoms if GCA. Burning temes, jaw cramping, tongue pain with spasms, head pain with tenderness in the...

Moderator•10 years ago

12 Replies

Undiagnosed GCA

I have Polymyalgia and for the last 18 months have had symptoms if GCA. Burning ...

Runrig01

•10 years ago

The Department of Work and Pensions has set up an independent review of how the Personal Independence Payment (PIP) is working. The deadline for input to the...

PIP SURVEY

The Department of Work and Pensions has set up an independent review of how the...

Jann

•10 years ago