Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for May 2013

Medical alert bracelets - best options

Hi. I have takayasu's arteritis and have narrowing of my left sub-clavian artery which means that I have no pulse in my left wrist and very low blood pressure...

Hi. I have takayasu's arteritis and have narrowing of my left sub-clavian artery...

JElsom

•12 years ago

11 Replies

West Yorkshire Support Group Message

We will be having a get together for lunch at the Gomersal Park Hotel on Sunday 9th June. My husband and I will be there from 12.30pm. to eat at 1.00pm It...

We will be having a get together for lunch at the Gomersal Park Hotel on Sunday ...

LynneJ

Vasculitis UK•12 years ago

1 Reply

Vasculitis awareness – it’s harder than I thought

I take my hat off to all of you who have flown the flag for Vasculitis awareness month by contacting the media and getting articles published and even...

I take my hat off to all of you who have flown the flag for Vasculitis awareness...

Chris-Bromsgrove

•12 years ago

9 Replies

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Help please.

Hi all, new here I'm sad to say... Mum is in hospital with vasculitus, symptoms started off with pneumonia which she had antibiotics for, went downhill over...

Hi all, new here I'm sad to say... Mum is in hospital with vasculitus, symptoms ...

luggsey

•12 years ago

13 Replies

Ulterior Motive

Ulterior Motive 22nd of June is a poplar day to walk. Vasculitis Trustees are crossing their fingers for sun for the many walkers out on behalf of the...

Ulterior Motive 22nd of June is a poplar day to walk. Vasculitis Trustees are c...

Jann

•12 years ago

1 Reply

Might be a silly question

I received a letter about my latest consultation and its says that my lymphocyte count is only 0.22, should I be worried? I've been trying to google what it...

I received a letter about my latest consultation and its says that my lymphocyte...

turtleface

•12 years ago

3 Replies

What Hemisphere are we in?

In the Northern hemisphere, the beginning of the meteorological summer is 1 June. In the Southern hemisphere, the beginning of the meteorological winter is 1...

In the Northern hemisphere, the beginning of the meteorological summer is 1 June...

Jann

•12 years ago

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Feeling a bit disheartened at the moment...

Within the last week, I've been told by 12 people who were planning to Walk the Worcestershire Way with me that they can no longer do so. I feel quite...

Within the last week, I've been told by 12 people who were planning to Walk the ...

Wellsie

•12 years ago

11 Replies

Has anyone seen this? Conservatives consider limit on GP visits

http://www.telegraph.co.uk/health/healthnews/10081220/Conservatives-consider-limit-on-GP-visits.html Susan

http://www.telegraph.co.uk/health/healthnews/10081220/Conservatives-consider-lim...

John_Mills

Volunteer•12 years ago

9 Replies

I have read on some sites that the anthrax vaccination can cause vasculitis does anyone know whether this is true or not?

i had the vaccination in 2002 before deploying to Iraq, but yet i didn't start to get symptoms till 2011 (moved to a very demanding and stressful job, so...

i had the vaccination in 2002 before deploying to Iraq, but yet i didn't start t...

matk

•12 years ago

5 Replies

Just when you thought you could take it easy

Vasculitis UK has two big events coming up shortly. They are both very remarkable in their own way. Julie Scott will be undertaking a 5K Race for Life or as...

Vasculitis UK has two big events coming up shortly. They are both very remarkabl...

Jann

•12 years ago

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Airplane flight yes or no

My daughter is in medicament induced remission.She has MPA.I would like take a flight to Germany with her.Is it save for her.

My daughter is in medicament induced remission.She has MPA.I would like take a f...

tamidi

•12 years ago

16 Replies

The Grand Finale for Vasculitis Awareness Month

The official launch of Vasculitis Awareness Ireland will take place on Tuesday 28th May.. At 2.30pm there will be an AGM to be held at the Gortland Rooms, St...

The official launch of Vasculitis Awareness Ireland will take place on Tuesday 2...

Jann

•12 years ago

3 Replies

Thank you to everyone who supported Kira Conroy

This is a quick message from Kira who today completed her 2.3km run today in aid of Vasculitis UK. http://www.justgiving.com/Kira-Conroy Kira is also...

This is a quick message from Kira who today completed her 2.3km run today in aid...

jamescaldwell

•12 years ago

2 Replies

New Device

Hope the weather is going to be kind for all of us this Bank Holiday!!.Just been reading the Daily Express,interesting article on page 18 regarding a new...

Hope the weather is going to be kind for all of us this Bank Holiday!!.Just been...

jackrussell

•12 years ago

6 Replies

Yorkshire Dales Walking Festival - Sunday 18th August

Hi Everyone, As announced at the AGM, we have arranged to partner Jane Tomlinson's on their Yorkshire Dales Walking Festival. We’ll be looking for...

Hi Everyone, As announced at the AGM, we have arranged to partner Jane Tomlin...

RichardE

Volunteer•12 years ago

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How would you dress for Halloween?

Would you go for a traditional costume such as a monsters, ghosts, skeletons, witches, and devils or would you go for a more modern take perhaps a scary...

Would you go for a traditional costume such as a monsters, ghosts, skeletons, wi...

Jann

•12 years ago

1 Reply

Postponement of the informal VSG lunch at Bentham Hall, Essex

Were you hoping to go to the informal VSG lunch at Bentham Hall, Essex this coming Wednesday 29th May? If so please note that Jules is somewhat "under the...

Were you hoping to go to the informal VSG lunch at Bentham Hall, Essex this comi...

PatriciaAnn

•12 years ago

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Probably a rhetorical question

I think I probably know the answer to this, but no harm in asking anyway. We have discussed on here several times about Travel Insurance, but has anyone...

I think I probably know the answer to this, but no harm in asking anyway. We ...

Kentish_Man

•12 years ago

3 Replies

Diagnosed with vasculitic lesions in December, in addition to lupus. DVT & MI within the last 4 weeks, & now awaiting kidney biopsy.

It's difficult to take all that's happened recently. So support & advice would be very gratefully received. I thought I basically had Lupus, & have been...

It's difficult to take all that's happened recently. So support & advice would b...

roobarb

•12 years ago

8 Replies

I give up

over last two weeks seen renal and rheumotologist and both have said dont think my sypmtons are due to the vasculitis any more.grrrr so im still feeling tired...

over last two weeks seen renal and rheumotologist and both have said dont think ...

tracey65

•12 years ago

3 Replies

My husband has WG and after over 3 years of treatment is now having problems with his bloods. Cells, platelets, haemoglobin have crashed.

His bone marrow is not functioning properly. Has anyone had this and what does it mean? The hospital have done some tests but we have no answers yet. He had...

His bone marrow is not functioning properly. Has anyone had this and what does i...

maira

•12 years ago

8 Replies

Oxford Gene Technology has announced the development of a novel autoantibody biomarker panel for improved diagnosis of Lupus

Picked up on this on the Lupus HU group. Maybe it has some bearing for research into biomarkers for Vasculitits ?...

Picked up on this on the Lupus HU group. Maybe it has some bearing for research ...

RichardE

Volunteer•12 years ago

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Meet the New Trustees for Vasculitis UK and read their stories.

http://www.vasculitis.org.uk/about/meet-the-trustees

John_Mills

Volunteer•12 years ago

2 Replies

Round-up of the best bank holiday activities

Want a round-up of the best bank holiday and half-term activities and events taking place across Britain. Tomorrow is the first meeting of the new...

Want a round-up of the best bank holiday and half-term activities and events tak...

Jann

•12 years ago

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Forthcoming Changes to the Health Unlocked Platform

As some of you may already know, Health Unlocked will be rolling out a new improved platform soon. Here is a YouTube clip from their recent open day which...

As some of you may already know, Health Unlocked will be rolling out a new impro...

RichardE

Volunteer•12 years ago

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Remission???

My daughter was diagnosed with Systemic Vasculitis 4 years ago. The only thing that has happened is that the symptoms continue and get worse. No sign of any...

My daughter was diagnosed with Systemic Vasculitis 4 years ago. The only thing ...

02061949

•12 years ago

2 Replies

It is official

It is the coldest spring in 30 odd years fingers crossed the summer sun will shine on Charlotte and her friends in The Den, Teignmouth – Join them between...

It is the coldest spring in 30 odd years fingers crossed the summer sun will sh...

Jann

•12 years ago

2 Replies

I did contact GOSH

Yes they asked me to get her checked out , took ECG with me , went local GP as quite clued up as opposed to A& E where you don't know Adam . She was' nt sure...

Yes they asked me to get her checked out , took ECG with me , went local GP as q...

Motherof4

•12 years ago

5 Replies

Thank you for all the support

Just wanted to say thank you for the overwhelming support and kindness that everyone has given my family ! I don't feel alone anymore this is truly an amazing...

Just wanted to say thank you for the overwhelming support and kindness that ever...

Motherof4

•12 years ago

2 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for May 2013

Medical alert bracelets - best options

West Yorkshire Support Group Message

Vasculitis awareness – it’s harder than I thought

Help please.

Ulterior Motive

Might be a silly question

What Hemisphere are we in?

Feeling a bit disheartened at the moment...

Has anyone seen this? Conservatives consider limit on GP visits

I have read on some sites that the anthrax vaccination can cause vasculitis does anyone know whether this is true or not?

Just when you thought you could take it easy

Airplane flight yes or no

The Grand Finale for Vasculitis Awareness Month

Thank you to everyone who supported Kira Conroy

New Device

Yorkshire Dales Walking Festival - Sunday 18th August

How would you dress for Halloween?

Postponement of the informal VSG lunch at Bentham Hall, Essex

Probably a rhetorical question

Diagnosed with vasculitic lesions in December, in addition to lupus. DVT & MI within the last 4 weeks, & now awaiting kidney biopsy.

I give up

My husband has WG and after over 3 years of treatment is now having problems with his bloods. Cells, platelets, haemoglobin have crashed.

Oxford Gene Technology has announced the development of a novel autoantibody biomarker panel for improved diagnosis of Lupus

Meet the New Trustees for Vasculitis UK and read their stories.

Round-up of the best bank holiday activities

Forthcoming Changes to the Health Unlocked Platform

Remission???

It is official

I did contact GOSH

Thank you for all the support

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