Posts - Vasculitis UK | HealthUnlocked

Just a reminder about our fundraising efforts to keep this group going, Sponsor us doing the relay team Belfast marathon 7th May, (a lot of effort has gone...

Volunteer•13 years ago

1 Reply

A message from Vasculitis Awareness Ireland

Just a reminder about our fundraising efforts to keep this group going, Sponsor ...

Volunteer•13 years ago

The May e-News started circulating this morning (Monday 30th April). If it doesn't appear in your Inbox today then please check your Spam. If it isn't there...

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VASCULITIS UK - MAY e-NEWS

The May e-News started circulating this morning (Monday 30th April). If it doesn...

PatriciaAnn

•13 years ago

http://www.justgiving.com/Charlotte-WilliamsVasUK I'm Charlie and I'm doing a bungee jump to raise money for Vasculitis UK, I want to raise awareness of...

Charlotte is half way to her target!! Charlotte has Wegeners Granulomatosis and is doing a bungee jump for Vasculitis Uk

http://www.justgiving.com/Charlotte-WilliamsVasUK I'm Charlie and I'm doing a...

Volunteer•13 years ago

I need some help and advice with my consultant appointment this week. I have vasculitis but not WG and am currently taking Plaquenil and MXT 25mg by injection...

help needed with consultants appointment

I need some help and advice with my consultant appointment this week. I have vas...

Porky

•13 years ago

i have wg which afeected my kidneys ,had loads of scans on lungs and have been told they are clear.however have real problems with breathing and coughs, a...

coughing up specks of blood

i have wg which afeected my kidneys ,had loads of scans on lungs and have been t...

quinnster

•13 years ago

3 Replies

I have had wg for 5 years but has urine problems

recently I had 2 episodes of what I thought was an urine infection, blood proetin nitrates ect in uring. Am experiencing pain and discomfort. the specialist...

recently I had 2 episodes of what I thought was an urine infection, blood proeti...

kath12341

•13 years ago

1 Reply

Nerve Damage and Peripheral Neuropathy

I was diagnosed with Vasculitis 18 months ago(Microscopic polyangitis).I had treatment with the usual steroids and cyclophosphamide.It was all going pretty...

I was diagnosed with Vasculitis 18 months ago(Microscopic polyangitis).I had tre...

gibson100

•13 years ago

i dont know why i bother going for my regular check up at the renal clinic,its the same old thing .bloods are looking great,mmm realy so why do i feel like...

fed up with stupid consultants

i dont know why i bother going for my regular check up at the renal clinic,its t...

tracey65

•13 years ago

36 Replies

Chicago Vasculitis Symposium?

I have just read the Chicago Vasculitis Symposium sent from Ayla (Thank you). It was very interesting and confirms what I have learnt from this site but I...

I have just read the Chicago Vasculitis Symposium sent from Ayla (Thank you). I...

LynneJ

Vasculitis UK•13 years ago

2 Replies

Stopping Thalidomide treatment; starting Cyclophosphamide (in addition to masses of other stuff)

I blogged in September 2011 about starting Thalidomide treatment. It was going really well, and I was getting my steroids down, with the hope of getting off...

I blogged in September 2011 about starting Thalidomide treatment. It was going r...

vivdunstan

Volunteer•13 years ago

12 Replies

Has anyone felt like they just can't cope and come to terms with wg I don't no what to do about it

Im feeling run down and wanting to give up this disease has took all my confidence and I do not want to see or talk to anyone. Recently I went to doctors and...

Im feeling run down and wanting to give up this disease has took all my confiden...

Louisexx

•13 years ago

I would like my GP to refer me to one but Addenbrookes is a long way for me to travel from Bradford. Are the others as good as the Cambridge one for...

Does anyone know details of how to contact the specialist vasculitis clinics in manchester and Birmingham?

I would like my GP to refer me to one but Addenbrookes is a long way for me to t...

Katie18

•13 years ago

4 Replies

Hi, can someone tell me what normal titre levels are and also what is a protinase 3 antibody level?

Llinos

•13 years ago

4 Replies

What rights have I got if I get dismissed from work due to 'Capability'?

This has happened to me very recently and after reading some of the replies to Jenny's question i am beginning to wonder if I should take matters further...

This has happened to me very recently and after reading some of the replies to J...

Spudgun

•13 years ago

6 Replies

Just to have a nag

This is not a question so you don't need to answer, but when do we stop fighting this awful disease. I have once a gain got a call back from my doctor and...

This is not a question so you don't need to answer, but when do we stop fighting...

Dave_Buzzey_B

•13 years ago

11 Replies

New Vasculitis Support Group in the Liverpool/Cheshire/ area may include North Wales.

There are plans to start a new support group in the Liverpool area. Royal Liverpool University Hospital will also be supporting this new group. if anyone is...

There are plans to start a new support group in the Liverpool area. Royal Liverp...

Volunteer•13 years ago

FOR A CHANGE THE TRUST NEEDS YOUR HELP FOR THE LAUNCH OF THE ROUTE MAP AND FOR VASCULITIS AWARENESS MONTH. Do you have a story to tell about your...

Vasculitis UK needs your help please

FOR A CHANGE THE TRUST NEEDS YOUR HELP FOR THE LAUNCH OF THE ROUTE MAP AND FOR V...

PatriciaAnn

•13 years ago

My employers have arranged this for me to assess whether I am fit to return to work or not. I have been off work for 8 months and they have been very...

Has anyone been to an occupational health medical?

My employers have arranged this for me to assess whether I am fit to return to w...

Galaxy2

•13 years ago

11 Replies

How do i find the hospital ratings

Tidgypud

•13 years ago

2 Replies

Updated Information for the Vasculitis UK AGM and Group Meeting on Sunday May 13th 2012

Vuk AGM Sunday 13th May 2012 at Novotel, Long Eaton ..... Guest Speaker Dr Mike Venning (Consultant Renal Physician at Manchester Royal) Topic:- Coming...

Vuk AGM Sunday 13th May 2012 at Novotel, Long Eaton ..... Guest Speaker Dr Mik...

Volunteer•13 years ago

Janine's time was 3hrs 7 and Tim and Francesca's time was 4hrs 15. Also Tim proposed to Francesca and the finish of the marathon!! :-)...

Just wanted to say thank you to Janine Francesca Tim and Alexandra for raising over £5000 for Vasculitis UK in the London Marathon today!!

Janine's time was 3hrs 7 and Tim and Francesca's time was 4hrs 15. Also Tim pr...

I am just back home after attending the Yorkshire support group meeting. It was really good, so informative, great to meet people who I have spoken to on here,...

Volunteer•13 years ago

2 Replies

Not a question this is a thank you

I am just back home after attending the Yorkshire support group meeting. It was ...

annie330

•13 years ago

3 Replies

Does anyone want a synopsis of yesterday's Chicago Vasculitis Symposium?

I attended this conference through a webinar link. Really useful and informative. Have made some notes and, if anyone would like to read them, please message...

I attended this conference through a webinar link. Really useful and informativ...

Ayla

Volunteer•13 years ago

26 Replies

Should we increase the dose of prednisolone in times of stress?

We know that the body produces higher levels of cortisol to deal with periods of stress (fight or flight situations). If it is true that those of us on more...

We know that the body produces higher levels of cortisol to deal with periods of...

Ayla

Volunteer•13 years ago

7 Replies

Prednisalone and lungs

I mentioned in my last question the fact that I am on three immune suppresant's and one of these is prednisalone. I have had breathing problems just lately...

I mentioned in my last question the fact that I am on three immune suppresant's ...

Dave_Buzzey_B

•13 years ago

7 Replies

Hair falling out and ringing in my ears?

I have recently been put on Mycophenolate having had 9 IV infusions of Cyclophamide (Sept-March) but I have noticed that over the past few weeks my hair has...

I have recently been put on Mycophenolate having had 9 IV infusions of Cyclopham...

ShortSarah

•13 years ago

12 Replies

Wegener's Granulomatosis: Charities, Support Groups and Raising Awareness (Episode 3)

If you haven't seen my posts before I am a young female, 23 to be precise, who has been living with WG since 2009. Before I was diagnosed I was studying for...

If you haven't seen my posts before I am a young female, 23 to be precise, who h...

missm23

•13 years ago