Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for November 2015

Raynauds symptoms

Hi, I've just read something really interesting to me on Arthritis Research. Once of the symptoms of vasculitis is Raynauds (which I have been told I've got,...

Hi, I've just read something really interesting to me on Arthritis Research. On...

babssara

•9 years ago

6 Replies

Faking it?

I recently read an online article about people with chronic illness being wrong judged or accused of 'faking' their illness and the negative impact this has on...

I recently read an online article about people with chronic illness being wrong ...

Hidden

•9 years ago

45 Replies

Winchester to Addenbrookes via Southampton

Thank you everybody for all the good advice that you gave me - which worked. I was transferred from Winchester to Southampton yesterday, and when I get there...

Thank you everybody for all the good advice that you gave me - which worked. I w...

BronteM

•9 years ago

5 Replies

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Rare Disease UK Tweeted this survey this morning regarding data sharing.

If you would like to complete the survey just follow this link , it does explain in more detail https://www.surveymonkey.co.uk/r/NDGreview Thank you Susan

If you would like to complete the survey just follow this link , it does explain...

Suzym2u

Moderator•9 years ago

3 Replies

New drug trial for GCA

Thttps://www.gsk.com/en-gb/media/press-releases/2015/gsk-announces-start-of-phase-iii-study-of-sirukumab-in-giant-cell-arteritis/ This was posted on the VUK...

Thttps://www.gsk.com/en-gb/media/press-releases/2015/gsk-announces-start-of-phas...

Hidden

•9 years ago

4 Replies

Annie

Hi fellow sufferers. I was disagnosed with Wegeners GPA in June 2014 after suffering bad joint pain, swellings etc. for a couple of years and then 12 months...

Hi fellow sufferers. I was disagnosed with Wegeners GPA in June 2014 after suff...

poppet2

•9 years ago

10 Replies

Individual Vasculitis Diseases -pdf downloads from the VUK website.

All the individual vasculitis disease pages are now available as a pdf download which can also be printed. Each page will have the VUK logo at the top of the...

All the individual vasculitis disease pages are now available as a pdf download ...

Suzym2u

Moderator•9 years ago

1 Reply

Nephrotic Syndrome

Due to the rcent death of Jonah Lomu, there's been a lot in the press recently on Nephrotic Syndrome. Is Nephrotic Syndrome not the downstream result of WG? Or...

Due to the rcent death of Jonah Lomu, there's been a lot in the press recently o...

Lalamum

•9 years ago

4 Replies

Wegeners (GPA)

I've recently been diagnosed with Wegeners and have had my first course of Rituximab. On daily steroids and generally feeling a lot better. My nose has changed...

I've recently been diagnosed with Wegeners and have had my first course of Ritux...

Marcus1988

•9 years ago

6 Replies

Accidentally visiting Winchester and Southampton

After a close encounter with a slippy carpet and an ancient radiator at my daughter' house, I'm stuck in the orthopaedic ward at Winchester. I've torn some...

After a close encounter with a slippy carpet and an ancient radiator at my daugh...

BronteM

•9 years ago

16 Replies

Vasculitis UK Autumn Newsletter 2015

The Vasculitis UK Autumn Newsletter should have dropped on doormats yesterday. VUK would like to thank Graham and Kevin for doing a fantastic job of the new...

The Vasculitis UK Autumn Newsletter should have dropped on doormats yesterday. V...

Suzym2u

Moderator•9 years ago

4 Replies

Vasculitis UK Christmas cards

Hi everyone. I hope everyone is doing well and looking forward to some relaxing at Christmas. Here at vasculitis UK we are selling our Christmas cards, which...

Hi everyone. I hope everyone is doing well and looking forward to some relaxing ...

Emperor

•9 years ago

1 Reply

Benefits and Work newsletter.

News from the benefits and work:...

Hidden

•9 years ago

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Treatment for CSS

I suffer from ANCA positive vasculitis, they think a crossover of GPA/CSS and I am currently on 6 monthly Rituximab and Prednisilone but it is not controlling...

I suffer from ANCA positive vasculitis, they think a crossover of GPA/CSS and I ...

Maudy1

•9 years ago

3 Replies

Vasculitis East Midlands Support Group Christmas Party/Lunch 2015

If you are going to the Vasculitis East Midlands Christmas Party on the 12th of December could you let Dorothy know by the 25th November. The numbers are...

If you are going to the Vasculitis East Midlands Christmas Party on the 12th of ...

Suzym2u

Moderator•9 years ago

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New items in the Vasculitis UK Shop - "Christmas Cards" and "Beads of Unity Bracelets"

The Vasculitis UK shop has a new item on offer - 'Beads of Unity' bracelets. Find out more about these, and VUK's very own Christmas Cards, on the shop page...

The Vasculitis UK shop has a new item on offer - 'Beads of Unity' bracelets. Fi...

Suzym2u

Moderator•9 years ago

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Christmas Craft and Food Fair for Vasculitis UK November 15th 2015

Not sure if some of the 'older' members of the group remember Debbie's Cakes and Bakes recipe book, published in memory of a lovely lady called Debbie who lost...

Not sure if some of the 'older' members of the group remember Debbie's Cakes and...

Suzym2u

Moderator•9 years ago

1 Reply

Angina

I have had GPA vasculitus for 6 years ,I take Azathiaprine,Prednisolone,and various other medication,I have just been diagnosed with Angina and I am waiting to...

I have had GPA vasculitus for 6 years ,I take Azathiaprine,Prednisolone,and vari...

ARFalk

•9 years ago

15 Replies

CNS..Vasculities Celebral Vascular disease

Hi To; whom it my concern..I've been diagnosed 4 a Selebral Vascular Diseases ..CNS.Vasculities..started one morning 2004 i have 5 kids one girl 4 boys at the...

Hi To; whom it my concern..I've been diagnosed 4 a Selebral Vascular Diseases .....

lucierna

•9 years ago

2 Replies

Christmas Craft & Food Fair for Vasculitis UK - Sunday 15th November

Christmas Craft & Food Fair for Vasculitis UK - Sunday 15th November Once again the Lathkil Hotel http://www.lathkil.co.uk/ in the beautiful Peak District...

Christmas Craft & Food Fair for Vasculitis UK - Sunday 15th November Once again...

Suzym2u

Moderator•9 years ago

Be the first to reply

Chicken Pox

Dear all, I don't know if 'Everyone' knows how dangerous Chicken Pox can be, to Imuno-Suppressed people-it CAN be lethal! If not, as a lady who was asked to...

Dear all, I don't know if 'Everyone' knows how dangerous Chicken Pox can be, to...

AndrewT

•9 years ago

6 Replies

Can anyone point me in the right direction please?

I wonder if anyone can throw any light on any of it for me or point me where to go for help? I am worried and I don't seem to be getting anywhere. I feel like...

I wonder if anyone can throw any light on any of it for me or point me where to ...

vix66

•9 years ago

7 Replies

Depressed

Have just seen a photo of myself, who is that fat old lady? Almost 3 years of steroids and lack of exercise have certainly taken their toll. No matter how...

Have just seen a photo of myself, who is that fat old lady? Almost 3 years of st...

valwood

•9 years ago

8 Replies

Chicken pox

Hi Im on mychophenolate and predisolone for GPA. My grandson has developed chicken pox. Should I avoid contact with him. I have had chicken pox and shingles in...

Hi Im on mychophenolate and predisolone for GPA. My grandson has developed chick...

ludo

•9 years ago

17 Replies

mpa vasculitis info please!

hello all! I'm fairly new to this site. diagnosed in April of this year with microscopic polyangitis (mpa). i'd like any information with anyone's personal...

hello all! I'm fairly new to this site. diagnosed in April of this year with mic...

karat

•9 years ago

30 Replies

How bad is cyclophosphamide??

Has anyone had cyclophosphamide for Vasculitis with relapsing Polychondritis????

AmyS1

•9 years ago

4 Replies

Ritiximab?

Anyone on this?any side effects?

asilanna

•9 years ago

22 Replies

Asprin

Hi, everyone. Got a letter from my Rheumy yesterday ,apologising as apparently he meant to prescribe me Asprin, a low dose, but forgot to put it on my...

Hi, everyone. Got a letter from my Rheumy yesterday ,apologising as apparently h...

j-e-a-n

•9 years ago

9 Replies

Kidney Pain

Hi all hope had a good weekend. Has anyone had any trouble with their kidneys with vasculitis. Had pain off and on for 2 weeks now yesterday constant. Any...

Hi all hope had a good weekend. Has anyone had any trouble with their kidneys wi...

jeannette65

•9 years ago

13 Replies

Memory loss

Hi hope someone will be able to give some advice. I have recently returned to work after being off for 7 months. I am a sales secretary and I am having...

Hi hope someone will be able to give some advice. I have recently returned to w...

Foggy56

•9 years ago

17 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for November 2015

Raynauds symptoms

Faking it?

Winchester to Addenbrookes via Southampton

Rare Disease UK Tweeted this survey this morning regarding data sharing.

New drug trial for GCA

Annie

Individual Vasculitis Diseases -pdf downloads from the VUK website.

Nephrotic Syndrome

Wegeners (GPA)

Accidentally visiting Winchester and Southampton

Vasculitis UK Autumn Newsletter 2015

Vasculitis UK Christmas cards

Benefits and Work newsletter.

Treatment for CSS

Vasculitis East Midlands Support Group Christmas Party/Lunch 2015

New items in the Vasculitis UK Shop - "Christmas Cards" and "Beads of Unity Bracelets"

Christmas Craft and Food Fair for Vasculitis UK November 15th 2015

Angina

CNS..Vasculities Celebral Vascular disease

Christmas Craft & Food Fair for Vasculitis UK - Sunday 15th November

Chicken Pox

Can anyone point me in the right direction please?

Depressed

Chicken pox

mpa vasculitis info please!

How bad is cyclophosphamide??

Ritiximab?

Asprin

Kidney Pain

Memory loss

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