Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,780 members • 6,752 posts

All posts for September 2021

Flu Vaccine

Sorry if this doesn't make sense..new here and sound great in my head . Just had my Flu vaccine, there are two apparently....who knew . Given my age 62.. had...

Sorry if this doesn't make sense..new here and sound great in my head . Just had...

Bailey59

•3 years ago

2 Replies

EGPA - link with Eosinophilic oesophagitis (EoE)

Now 6 weeks into this EGPA journey - after initial high dose steroid treatment CRP markers and Eosinophil counts were low going in right direction. Past three...

Now 6 weeks into this EGPA journey - after initial high dose steroid treatment C...

Reboundman

•3 years ago

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EGPA and Nacula

Hi - sorry, two posts in one day but as mentioned I'm new to this CSS club! Can I ask if anyone has investigated whether Nacula could be a long-term...

Hi - sorry, two posts in one day but as mentioned I'm new to this CSS club! Can ...

Reboundman

•3 years ago

28 Replies

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New Biologics Treatment Coming

I have now received the date for my biologics treatment delivery. Then a date for the nurse to attend the next 2 weeks. Anyone else having biologics treatment?...

I have now received the date for my biologics treatment delivery. Then a date fo...

DawnMezza

•3 years ago

14 Replies

This page on the VUK website gives information about boosters AND third vaccines.

https://www.vasculitis.org.uk/news/covid-vaccine-booster-doses-third-vaccine-explained This page on the VUK website gives information about boosters AND third...

https://www.vasculitis.org.uk/news/covid-vaccine-booster-doses-third-vaccine-exp...

John_Mills

Volunteer•3 years ago

6 Replies

Scottish Chief Medical Officer letter re 3rd primary vaccines specifically

Bit late coming, but here finally is the letter from the Scottish Chief Medical Officer re the rollout of 3rd primary doses for the severely immunosuppressed....

Bit late coming, but here finally is the letter from the Scottish Chief Medical ...

vivdunstan

Volunteer•3 years ago

1 Reply

Ronapreve

Has anyone any information regarding Ronapreve ? Am I right in reading it will be given to prevent infection from Covid 19 after being tested for antibodies?...

Has anyone any information regarding Ronapreve ? Am I right in reading it will ...

Main1234

•3 years ago

1 Reply

Back home after spending 10 days in hospital after a TAK flare up.

Was admitted to hospital 10 days ago after a violent flare up from TAK. Screaming headaches, which led to some numbness down my temple, cheek and jaw and heavy...

Was admitted to hospital 10 days ago after a violent flare up from TAK. Screamin...

DawnMezza

•3 years ago

12 Replies

Checking for Scottish 3rd primary vaccine appointments

I’ve been checking the Scottish Covid vaccines appointment online system for some days, hoping a 3rd vaccine appointment would show up there before I’m...

I’ve been checking the Scottish Covid vaccines appointment online system for som...

vivdunstan

Volunteer•3 years ago

2 Replies

Numbness problems

Hi, Me again lol. I'm having problems with numbness and tingling on certain parts of my body. I have fluid retention and nerve damage in my left leg from disc...

Hi, Me again lol. I'm having problems with numbness and tingling on certain part...

Vqueen

•3 years ago

9 Replies

Third Vaccine / Covid 19 immune response

Hi, My husband has GPA and is awaiting third vCivid vaccine. His concern is that he had both initial Covid vaccines whilst undergoing cyclophosphamide...

Hi, My husband has GPA and is awaiting third vCivid vaccine. His concern is tha...

harris1629

•3 years ago

16 Replies

Scottish Chief Medical Officer update re boosters and 3rd primary vaccines

Here is an update today from the Scottish Chief Medical Officer explaining the plans for both the booster and also the third primary vaccine (not booster) for...

Here is an update today from the Scottish Chief Medical Officer explaining the p...

vivdunstan

Volunteer•3 years ago

1 Reply

Lung function tests

My wife has EGPA and has just been sent an appointment for lung function tests It will be two years since she had the last test and is quite apprehensive...

My wife has EGPA and has just been sent an appointment for lung function tests ...

Riff1954

•3 years ago

5 Replies

Heavy legs

I have Urticarial Vasculitis (around 28years) and have for around 6 months have been having cramps in my calves ankles and feet ( and occasionally in other...

I have Urticarial Vasculitis (around 28years) and have for around 6 months have...

jackrussell

•3 years ago

5 Replies

I’m new here

I’ve read lots about the immunosuppressed receiving a additional Covid jab in the UK but my GP says that they are not yet available. Has anyone had the third...

I’ve read lots about the immunosuppressed receiving a additional Covid jab in th...

666s

•3 years ago

15 Replies

Steroid side effects

These are serious and the impact is often forgotten Obesity Diabetes Cataracts Osteoporosis requiring expensive medications eg teraparatide Adrenal...

These are serious and the impact is often forgotten Obesity Diabetes Cataracts ...

AmyS1

•3 years ago

7 Replies

Reply steroids

On pred for 13 years. Couldn't get below 5mg without pain. Adrenals not working so have Addison's and on hydrocortisone. Plus weight gain never been able to...

On pred for 13 years. Couldn't get below 5mg without pain. Adrenals not working ...

metalback

•3 years ago

1 Reply

Help Needed Re - Prednisolone ( Steroid ) serious side effects

We need to make a submission to NICE about the new alternative to steroids - AVACOPAN. Please can you tell me in replies, if you have experienced any serious...

We need to make a submission to NICE about the new alternative to steroids - AVA...

John_Mills

Volunteer•3 years ago

53 Replies

Vasculitis UK Helpline - is open 7 days a week 52 weeks a year.

Helpline Telephone: 0300 365 0075 – we try to answer calls between 9am and 8pm, but we are a small team, and on occasions you may hit our messaging service. We...

Helpline Telephone: 0300 365 0075 – we try to answer calls between 9am and 8pm, ...

John_Mills

Volunteer•3 years ago

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JCVI recommends third vaccine for severely immunosuppressed

Good news tonight for those of us who are on the shielding list for immunosuppression. For the brief version see...

Good news tonight for those of us who are on the shielding list for immunosuppre...

vivdunstan

Volunteer•3 years ago

6 Replies

The quest for Rituximab

Hello all, I haven’t written on here in a while as I have been pretty stable on methotrexate for around 8 or 9 years, however lots of changes recently and now...

Hello all, I haven’t written on here in a while as I have been pretty stable on ...

Dramaticharlie

•3 years ago

9 Replies

Extreme itch

Hi all, I’m new to this so please excuse any uneccesary information. I started with full body hives and extreme itch in March. Physically exhausted, not...

Hi all, I’m new to this so please excuse any uneccesary information. I started w...

3Shell

•3 years ago

8 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for September 2021

Flu Vaccine

EGPA - link with Eosinophilic oesophagitis (EoE)

EGPA and Nacula

New Biologics Treatment Coming

This page on the VUK website gives information about boosters AND third vaccines.

Scottish Chief Medical Officer letter re 3rd primary vaccines specifically

Ronapreve

Back home after spending 10 days in hospital after a TAK flare up.

Checking for Scottish 3rd primary vaccine appointments

Numbness problems

Third Vaccine / Covid 19 immune response

Scottish Chief Medical Officer update re boosters and 3rd primary vaccines

Lung function tests

Heavy legs

I’m new here

Steroid side effects

Reply steroids

Help Needed Re - Prednisolone ( Steroid ) serious side effects

Vasculitis UK Helpline - is open 7 days a week 52 weeks a year.

JCVI recommends third vaccine for severely immunosuppressed

The quest for Rituximab

Extreme itch

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