Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,779 members • 6,752 posts

All posts for November 2021

Toenail Fungus Treatments

Dear All, like a lot of us, who are Immune Suppressed, I get Toe Nail Fungus which causes both 'discolouration', and 'toughness' of the nail. My Dermatologist...

Dear All, like a lot of us, who are Immune Suppressed, I get Toe Nail Fungus whi...

•2 years ago

HSP and alport syndrome

Hello, I was diagnosed 5 years ago as an adult with HSP and associated kidney damage (I was sick for a good 5 years prior to this). I've recently moved house...

Hello, I was diagnosed 5 years ago as an adult with HSP and associated kidney da...

•2 years ago

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Thickening of the lining of lungs, GPA diagnosed 2008

I had a telephone call yesterday from my consultant, following a recent CT scan. Apparently the scan shows thickening on the lining of the lungs, and I now...

I had a telephone call yesterday from my consultant, following a recent CT scan....

•2 years ago

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Wegener's GPA

Diagnosed with Wegener's GPA 3 years ago, I live in Dallas Texas. I really enjoy the outdoors, riding a bicycle, motorcycle and hiking. Wegener's is becoming a...

Diagnosed with Wegener's GPA 3 years ago, I live in Dallas Texas. I really enjoy...

•2 years ago

Rheumatology appointment

I asked my GP to refer me to Prof Justin Mason in London as advised by a few of you on here. Prof Mason accepted my referral and I saw him the other day. He is...

I asked my GP to refer me to Prof Justin Mason in London as advised by a few of ...

•2 years ago

The Second UKIVAS Online Educational Vasculitis Webinar for Medical Professionals

Over two days, November 17th and 18th 2021, UKIVAS, the UK & Ireland Vasculitis Study Group, teamed up in partnership with the Royal Society of Medicine (RSM)...

Over two days, November 17th and 18th 2021, UKIVAS, the UK & Ireland Vasculitis ...

Volunteer•2 years ago

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Vasculitis UK Autumn/Winter Newsletter 2021

For those with an interest, the latest biannual newsletter is now available to read online https://www.vasculitis.org.uk/news/autumn-2021-newsletter-out-now

For those with an interest, the latest biannual newsletter is now available to r...

Volunteer•2 years ago

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Great occupational therapist visit

I had a really great visit from a local occupational therapist yesterday. I have a progressive form of cerebral vasculitis, since 1994 when I was 22. Causing...

I had a really great visit from a local occupational therapist yesterday. I have...

Volunteer•2 years ago

Digestive symptoms with high atypical anca

I have MPA and been in remission for 6 years with no Rituxan since 11/2019. Rheumatologists and I are comfortable with monitoring labs every 3 months and...

I have MPA and been in remission for 6 years with no Rituxan since 11/2019. Rhe...

•2 years ago

My journey

Hello there, my name is Simon, I had stroke last February, spent a lot of time in hospital for the next few months, having multiple CT scans, a brain biopsy,,...

Hello there, my name is Simon, I had stroke last February, spent a lot of time i...

•2 years ago

New user suffering increasing levels of stiffness etc

Good evening. This is my first ever post. My wife suggested that I join up as she has found this type of forum to be incredibly her condition. Hope you are...

Good evening. This is my first ever post. My wife suggested that I join up as s...

•2 years ago

Boosters and Third Doses - is there a difference?

I have GPA and recently had what was called a 'booster' dose following the two Covid vaccinations I received earlier in the year. Since receiving the booster,...

I have GPA and recently had what was called a 'booster' dose following the two C...

•2 years ago

Scottish Highlands Specialists?

Hello, anyone know of a vasculitis specialist in Scottish highlands please, tia 😊

Hello, anyone know of a vasculitis specialist in Scottish highlands please, tia ...

•2 years ago

So much weight gain, moonface and facial hair

In about 5 weeks I have put 2 stone on (28lbs), I have moo face and I am now getting a lot of facial hair. I was on 60mg of prednisone, and have just lowered...

In about 5 weeks I have put 2 stone on (28lbs), I have moo face and I am now get...

•2 years ago

Chronic Hives

I believe I have Chronic Hives, about 10 years ago a orangey red patch started forming on neck, didn’t think much of it. A couple years later, it started...

I believe I have Chronic Hives, about 10 years ago a orangey red patch started f...

•2 years ago

Covid study regarding vascular damage / inflammation

Interesting article out of Israel linking covid with patients' vascular systems. Long covid health maladies certainly match my ongoing issues with Vasculitis....

Interesting article out of Israel linking covid with patients' vascular systems....

•2 years ago

Nerve conductive tests

I am due to have this later in the month. I have not been diagnosed with vasculitis but I have pins and needles in my feet - my legs and knees also ache. Had...

I am due to have this later in the month. I have not been diagnosed with vasculi...

•2 years ago

Christmas Cards available via the Vasculitis UK online shop.

https://www.vasculitis.org.uk/uncategorised/christmas-cards-2021

https://www.vasculitis.org.uk/uncategorised/christmas-cards-2021

Volunteer•2 years ago

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Survey of people with rheumatic conditions about third primary vaccination doses

A group of other charities and patient groups, are supporting a rapid survey aimed at all adults with a rheumatic condition in the UK, to understand the...

A group of other charities and patient groups, are supporting a rapid survey ai...

Volunteer•2 years ago

Out of remission?

Hi everyone. Just after some opinions please. Just got my latest blood results. After 3 years of ‘ok’ results and no treatment I am really shocked to see my...

Hi everyone. Just after some opinions please. Just got my latest blood results. ...

•2 years ago

Covid booster

Hi I had my covid booster on Friday I felt fine all day but by the nighttime my arm was sore which I was expecting but then woke up Saturday being sick and was...

Hi I had my covid booster on Friday I felt fine all day but by the nighttime my ...

•2 years ago