Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for March 2016

North West Support Group Meeting

Would you like to meet others with the same or similar conditions and have a chance to talk over issues you have with living with Vasculitis? Would you like to...

Would you like to meet others with the same or similar conditions and have a cha...

Jann

•9 years ago

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Yorkshire Support Meetings

The West Yorkshire Support Group meeting is Sunday 24th April 2016 between 1.30 and 4.30 approx At the Gomersal Park Hotel, Moor Lane. Gomersal, West...

The West Yorkshire Support Group meeting is Sunday 24th April 2016 between 1.30...

LynneJ

Vasculitis UK•9 years ago

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Two Vasculitis Ireland Awareness Informal Support Meetings in April

Vasculitis Ireland Awareness are having two informal meetings in the coming week, if you live in Ireland and are free. Tuesday 5th April, 12.15-1.30 Petit...

Vasculitis Ireland Awareness are having two informal meetings in the coming week...

Suzym2u

Moderator•9 years ago

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This is me.

Hi I'm spudster,I suffer from g.a.d, depression, self harm and low sugar lower back probs due to lordosis. My other half of twenty years has wegners...

Hi I'm spudster,I suffer from g.a.d, depression, self harm and low sugar lower b...

Spudster

•9 years ago

6 Replies

Does anyone experience-sensations in feet? 'tightness' and inability to move foot?

Hi everyone,I was wondering if anyone experiences these symptoms in their feet and what they may be because of? One of my on going symptoms since an unprovoked...

Hi everyone,I was wondering if anyone experiences these symptoms in their feet a...

Tillyray

•9 years ago

9 Replies

Vasculitis Awareness Month starts on May 1st - "Kelly's Book for Vasculitis Awareness Month"

It is just one month to Vasculitis Awareness month - From the 10th April, a very special book, created by Kelly Jefferies, encouraged by Dr Aljayyousi and...

It is just one month to Vasculitis Awareness month - From the 10th April, a very...

Suzym2u

Moderator•9 years ago

6 Replies

'Rituximab cough '

Can I ask has anyone experienced a persistent cough, shortness of breath and fatigue after long term use of Rituximab ? I have just read about 'Rituximab...

Can I ask has anyone experienced a persistent cough, shortness of breath and fat...

Essex-jill

•9 years ago

14 Replies

Happy Easter

Happy Easter everyone! May the Love of The Lord, be with you all. Very best wishes AndrewT

Happy Easter everyone! May the Love of The Lord, be with you all. Very best wis...

AndrewT

•9 years ago

8 Replies

British Society of Rheumatology Spring Annual Conference 2016

The BSR conference this year will be held in Glasgow. Once again Vasculitis UK will be representing all those diagnosed with Vasculitis at the conference....

The BSR conference this year will be held in Glasgow. Once again Vasculitis UK w...

Suzym2u

Moderator•9 years ago

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Hi I'm Rene and I was diagnosed in 16.10.93 with vasculitis.can you tell me if there are any support groups in Durban South Africa

Hi I'm Rene I was diagnosed with vaculitis 16.1013 please can you tell me if there are any support groups in Durban South Africa

Hi I'm Rene I was diagnosed with vaculitis 16.1013 please can you tell me if the...

Renesheik

•9 years ago

4 Replies

There are 7 Vasculitis Support Meetings in April .

There 7 Vasculitis support group meetings/social get-togethers in April. Leicester, West Country, Two Yorkshire meetings, North West ( Preston ) London and...

There 7 Vasculitis support group meetings/social get-togethers in April. Leicest...

Suzym2u

Moderator•9 years ago

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Hello,I'm new.

Hello everyone.I'm new to this but want to just start by saying "hi". I am currently awaiting an appointment at a Lupus and vasculitis centre after reaching...

Hello everyone.I'm new to this but want to just start by saying "hi". I am curr...

Tillyray

•9 years ago

25 Replies

Oxford Vasculitis Support Meeting - today

Just wanted to say what an amazing meeting we attended today at the Oxford Vasculitis Support seminar. Thank you Sue and Barbara. One of the best! Topic and...

Just wanted to say what an amazing meeting we attended today at the Oxford Vascu...

Suzym2u

Moderator•9 years ago

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The London Vasculitis Support Group

NOTIFICATION The next meeting for the group members will be held on Sunday 17th April 2016 at the Swiss Cottage Community Centre, 19 Winchester Road, London,...

NOTIFICATION The next meeting for the group members will be held on Sunday 17th ...

Albasain

•9 years ago

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West Country Vasculitis Group Lunch

Just a quick reminder to let me know by next Sunday if you plan to come along to our next lunch which is at 12.00 noon on Sunday 3 April at the Pinhoe Hoard, 2...

Just a quick reminder to let me know by next Sunday if you plan to come along to...

DevonLottie

•9 years ago

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Hodginsons disease

I have a friend with lymph cancer and as I understand it,it is not curable.he has had 6 months of limo and a lot of prendisilone steroids up to 100 ml a...

I have a friend with lymph cancer and as I understand it,it is not curable.he ha...

ellie-smith-1948

•9 years ago

2 Replies

Yorkshire Support Group Meetings

We are taking bookings for our up and coming Yorkshire Meetings. Sunday April 10th for the York one and Sunday April 24th for the Leeds/Bradford one. Check...

We are taking bookings for our up and coming Yorkshire Meetings. Sunday Apri...

LynneJ

Vasculitis UK•9 years ago

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Thought the Royal Brompton was a Brilliant Hospital but Now Badly Let Down!

Having been mismanaged for years by my local hospital in Kent which results in undiagnosed severe heart failure and severe cardiomyopathy I was sent to the...

Having been mismanaged for years by my local hospital in Kent which results in u...

Rowmarsh

•9 years ago

2 Replies

Prednisolone

I've been taking prednisolone in varying doses between 80mg and 1mg for 28 years. At first I got Cushing's Syndrome and went from 8stone to 14 stone....

I've been taking prednisolone in varying doses between 80mg and 1mg for 28 year...

Rita83

•9 years ago

4 Replies

International experts meet in Southend for three-day event to tackle debilitating conditions

Giant Cell Arteritis (GCA), a condition in which the arteries become inflamed, causes problems ranging from headaches, joint pain and fever to cardiovascular...

Giant Cell Arteritis (GCA), a condition in which the arteries become inflamed, c...

Suzym2u

Moderator•9 years ago

3 Replies

Mrs

I had Avascular Necrosis of the hip, and needed a total hip replacement. Now eight months after the op, I now have it in my shoulder and will need surgery....

I had Avascular Necrosis of the hip, and needed a total hip replacement. Now ei...

Carriacou1937

•9 years ago

11 Replies

Rheumatolugist

I travelled to St Thomas's Hospital in London regularly by train for over 20 years - a distance of about 220 miles, so you don't have to be local. Rita

I travelled to St Thomas's Hospital in London regularly by train for over 20 ye...

Rita83

•9 years ago

5 Replies

Vasculitis UK still have one or two places left for the Birmingham 10K, in May.

VUK have a few places for the Birmingham 10K - 1st May 2016 Birmingham 10K VUK will provide a running vest or t shirt and sponsorship forms. Please email...

VUK have a few places for the Birmingham 10K - 1st May 2016 Birmingham 10K VU...

Suzym2u

Moderator•9 years ago

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sepsis

Hi, I thought this year might have been better but I got off to a bat start. I was rushed into hospital with Sepsis. The cause is appendicitis. I was vomiting...

Hi, I thought this year might have been better but I got off to a bat start. I w...

Lucywhiton

•9 years ago

11 Replies

This is a reminder for the next Leicester Support group meeting on 2nd April 2016 - message from Tricia and Lynn.

This is to remind you all that if you are intending to attend the next Leicester Support group meeting on 2nd April 2016 they need to confirm numbers with the...

This is to remind you all that if you are intending to attend the next Leicester...

Suzym2u

Moderator•9 years ago

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Vasculitis Specialist

Hi all, I wonder if anyone can tell me who would be our nearest Vasculitis Specialist for Microscopic Polyangiitis in the Dundee area please? At present my Mum...

Hi all, I wonder if anyone can tell me who would be our nearest Vasculitis Speci...

SandraMic

•9 years ago

9 Replies

New Events Notification Feature for the VUK HU Community

If you look down the right hand side of the screen , you will see the new "events notification" feature, just below "pinned posts". It is written in black and...

If you look down the right hand side of the screen , you will see the new "event...

Suzym2u

Moderator•9 years ago

2 Replies

Blood Clots

First I would just like to say Hi to all my new followers. Has anyone who suffers from WG and has a thrombosis been taken off their blood thinning medication?...

First I would just like to say Hi to all my new followers. Has anyone who suffer...

Mgtrob

•9 years ago

9 Replies

Google Analytics for the VUK website - 27th Jan - 28th Feb 2016

www.vasculitis.org.uk From 27th January - 28th February 2016 24,500 users 75,500 pages viewed Average time 21/2 mins Returning visits 26% New visits 74%...

www.vasculitis.org.uk From 27th January - 28th February 2016 24,500 users 75,...

Suzym2u

Moderator•9 years ago

4 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for March 2016

North West Support Group Meeting

Yorkshire Support Meetings

Two Vasculitis Ireland Awareness Informal Support Meetings in April

This is me.

Does anyone experience-sensations in feet? 'tightness' and inability to move foot?

Vasculitis Awareness Month starts on May 1st - "Kelly's Book for Vasculitis Awareness Month"

'Rituximab cough '

Happy Easter

British Society of Rheumatology Spring Annual Conference 2016

Hi I'm Rene and I was diagnosed in 16.10.93 with vasculitis.can you tell me if there are any support groups in Durban South Africa

There are 7 Vasculitis Support Meetings in April .

Hello,I'm new.

Oxford Vasculitis Support Meeting - today

The London Vasculitis Support Group

West Country Vasculitis Group Lunch

Hodginsons disease

Yorkshire Support Group Meetings

Thought the Royal Brompton was a Brilliant Hospital but Now Badly Let Down!

Prednisolone

International experts meet in Southend for three-day event to tackle debilitating conditions

Mrs

Rheumatolugist

Vasculitis UK still have one or two places left for the Birmingham 10K, in May.

sepsis

This is a reminder for the next Leicester Support group meeting on 2nd April 2016 - message from Tricia and Lynn.

Vasculitis Specialist

New Events Notification Feature for the VUK HU Community

Blood Clots

Google Analytics for the VUK website - 27th Jan - 28th Feb 2016

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