Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,774 members • 6,747 posts

All posts for June 2017

Is this normal ?

Hey all, Quick one, Is it normal to have a few layers of skin peel off around biopsy site? It's literally raw.. I still have a bad infection... ? Xx

Hey all, Quick one, Is it normal to have a few layers of skin peel off aroun...

LauraMk30

•7 years ago

13 Replies

Tingling in feet

Hi all. I have GPA. I wondered if anyone has experienced tingling in their feet with this. I've suffered headaches over the last few months mainly in the...

Hi all. I have GPA. I wondered if anyone has experienced tingling in their feet ...

ludo

•7 years ago

20 Replies

Letters have arrived

Hey guys & girls 2 appointment have just arrived in the post from QEBH A CT Scan of The Sinuses On Tuesday 11th July @ 2pm & A Appointment with Miss...

Hey guys & girls 2 appointment have just arrived in the post from QEBH A CT ...

LauraMk30

•7 years ago

22 Replies

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New to community - have autoimmine hemolytic anemia

I have autoimmine hemolytic anemia on Prednisone & Rituxan with severe side effect of dizziness.

I have autoimmine hemolytic anemia on Prednisone & Rituxan with severe side effe...

luvretmt

•7 years ago

1 Reply

"It's only bits mum"

Hope it's ok to post this, My Organ Donation Card came through the post last week. I'm now officially An Organ Donor. & I am very very happy with my...

Hope it's ok to post this, My Organ Donation Card came through the post last w...

LauraMk30

•7 years ago

13 Replies

Dizziness from Prednisone & Rituxan infusions....

After being diagnosed in March '17 with acquired autoimmune hemolytic anemia I've had a series of 7 IV infusions of Rituxan (2 'wimpy' doses & 5 high powered...

After being diagnosed in March '17 with acquired autoimmune hemolytic anemia I'v...

luvretmt

•7 years ago

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Historically weird ANCA results

Hey there - I have historically had very weird ANCA results, so much so the doctors have just thrown them out. I haven't been able to access all of them, but I...

Hey there - I have historically had very weird ANCA results, so much so the doct...

LaurenW

•7 years ago

3 Replies

Triple Punch Biopsy - infected??

Hey all, I'm aware of the usual issues/ symptoms after a Punch biopsy. But my leg is very warm, it has a red ring around it & it does have some yellowing....

Hey all, I'm aware of the usual issues/ symptoms after a Punch biopsy. But m...

LauraMk30

•7 years ago

43 Replies

I've lost my voice!

Despite now being in remission (patient at Addenbrookes) and coming up soon for my first maintenance dose of Rituximab, I have lost my voice. Apparently it...

Despite now being in remission (patient at Addenbrookes) and coming up soon for ...

Wrigglymonkey

•7 years ago

8 Replies

Surge Strauss

45 year old retired military recently diagnosed after lifelong asthma and 4 nasal surgeries including full obliteration

45 year old retired military recently diagnosed after lifelong asthma and 4 nasa...

RayDonovan

•7 years ago

1 Reply

Churgg

I just discovered this site, and I am astonished at how much of this could be something I had written!! The symptoms and all that people go through seem to be...

I just discovered this site, and I am astonished at how much of this could be so...

ekg0023

•7 years ago

2 Replies

Hi all UK vasculitis sufferers/ Rituximab

If you are on Rituximab could you tell me how many doses/infusions you have and at what intervals, please? I had two doses/infusions spaced a fortnight apart...

If you are on Rituximab could you tell me how many doses/infusions you have and ...

2534

•7 years ago

16 Replies

Getting ready to go QEBH

Hello everyone. I woke up singing follow the yellow brick road.. I guess today is my first step to a brighter place :) oh I wish I had a pair of those...

Hello everyone. I woke up singing follow the yellow brick road.. I guess today...

LauraMk30

•7 years ago

13 Replies

Cutaneous Vasculitis

Hello all, I have just signed up on here and this is my first post. I truly hope someone else is out there having similar issues as me because god do I feel...

Hello all, I have just signed up on here and this is my first post. I truly hope...

lou1972

•7 years ago

11 Replies

Rituximab and low neutrophil count

Hi, has anyone on here had rituximab treatment and had a very low neutrophil count. My sister has CCS and have just been researching and there seems to be a...

Hi, has anyone on here had rituximab treatment and had a very low neutrophil cou...

Cloe

•7 years ago

4 Replies

Eat to live. Not live to eat.

As simple as that. It's funny I preached on drinking water and lots of it. Simply to rid your body of all the crud you have put in it. So my advice to everyone...

As simple as that. It's funny I preached on drinking water and lots of it. Simpl...

greg31

•7 years ago

11 Replies

Rituximab

Has anyone had an allergic reaction to Rituximab 5 weeks after infusion

Hidden

•7 years ago

4 Replies

D Dimer Result

Hey all.. This is a quick one. I've just had a call from the doctor as I wanted my results to some bloods I had done 2 weeks ago, my D- Dimer blood test...

Hey all.. This is a quick one. I've just had a call from the doctor as I wan...

LauraMk30

•7 years ago

14 Replies

can anyone help !

I have just been diagnosed one month ago and am still in hospital, I can't walk at at all just now, doctors are unsure why, lots of scans and test going on,...

I have just been diagnosed one month ago and am still in hospital, I can't walk ...

Disco-44

•7 years ago

1 Reply

Feet swelling..

Hi guys & girls, I know the weather in the U.K. Has been somewhat HOT!! I am enjoying the mini heatwave. My wonderful boyfriend took me on a day out to...

Hi guys & girls, I know the weather in the U.K. Has been somewhat HOT!! I am e...

LauraMk30

•7 years ago

11 Replies

Vasculitis & U - May 2017 - Norfolk & Norwich Hospital - Education Day - Reflective View in Photos

Speakers Dr David Scott - Norfolk & Norwich University Hospital Dr Janice Mooney - University of East Anglia John Mills - Chairman Vasculitis UK Lynn Laidlaw...

Speakers Dr David Scott - Norfolk & Norwich University Hospital Dr Janice Moon...

Suzym2u

Moderator•7 years ago

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Vasculitis UK AGM May 2017 - Reflective View in Photos

The AGM was held on the 14th May in Derby and was well attended by 70 people. Dr Jackie Andrews from Leeds Teaching Hospitals NHS Trust gave a presentation...

The AGM was held on the 14th May in Derby and was well attended by 70 people. D...

Suzym2u

Moderator•7 years ago

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Leg lesion biopsy result

Evening/morning all Letter from dermatologist 8th June Received today Dear Laura, This is to confirm your biopsy showed very little, although there was...

Evening/morning all Letter from dermatologist 8th June Received today Dear ...

LauraMk30

•7 years ago

19 Replies

Does anyone's symptoms get worse sometimes with the first few days of prednisone?

Hi.. Ive been on prednisone for a few days and my symptoms seem a little worse. Does that happen?

Hi.. Ive been on prednisone for a few days and my symptoms seem a little worse. ...

judyann

•7 years ago

2 Replies

New App for members of the HealthUnlocked Communities

Just follow this link to download your free app to access your HU Communities HealthUnlocked: Help groups and community support by Everything Unlocked Ltd...

Just follow this link to download your free app to access your HU Communities He...

Suzym2u

Moderator•7 years ago

Be the first to reply

Quickest Appointment..Ever

Hey all, Letter from Cardiology Came through the post yesterday & im all booked in for tomorrow. 12pm Echocardiogram & 24 halter monitor. 2 weeks & counting...

Hey all, Letter from Cardiology Came through the post yesterday & im all booked...

LauraMk30

•7 years ago

14 Replies

Skin vasculitis. I presently have GCA.

Can someone post photos of skin vasculitis. I have many bruises from steroids but I have a black area with red around it that looks like Skin vasculitis. I...

Can someone post photos of skin vasculitis. I have many bruises from steroids b...

Nap1

•7 years ago

2 Replies

secondary cns vasculitis

I just started prednisone and am wondering how long before my tingling in arms in legs will subside.. Has anyone else had this?

I just started prednisone and am wondering how long before my tingling in arms i...

judyann

•7 years ago

2 Replies

Mum has been diagnosed with Vasculitis but is not getting anywhere locally

Please can anyone advise of a constant that specialises in Vasculitis in North West England? We live in Barrow in Furness Cumbria and the lack of knowledge,...

Please can anyone advise of a constant that specialises in Vasculitis in North W...

Leannexyz

•7 years ago

2 Replies

I'm getting too old for this

After raising money for VUK, walking the 31 mile Worcestershire Way back in 2013 (an event organised by Martyn Wells (Wellsie)) I thought it was far enough for...

After raising money for VUK, walking the 31 mile Worcestershire Way back in 2013...

Chris-Bromsgrove

•7 years ago

5 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for June 2017

Is this normal ?

Tingling in feet

Letters have arrived

New to community - have autoimmine hemolytic anemia

"It's only bits mum"

Dizziness from Prednisone & Rituxan infusions....

Historically weird ANCA results

Triple Punch Biopsy - infected??

I've lost my voice!

Surge Strauss

Churgg

Hi all UK vasculitis sufferers/ Rituximab

Getting ready to go QEBH

Cutaneous Vasculitis

Rituximab and low neutrophil count

Eat to live. Not live to eat.

Rituximab

D Dimer Result

can anyone help !

Feet swelling..

Vasculitis & U - May 2017 - Norfolk & Norwich Hospital - Education Day - Reflective View in Photos

Vasculitis UK AGM May 2017 - Reflective View in Photos

Leg lesion biopsy result

Does anyone's symptoms get worse sometimes with the first few days of prednisone?

New App for members of the HealthUnlocked Communities

Quickest Appointment..Ever

Skin vasculitis. I presently have GCA.

secondary cns vasculitis

Mum has been diagnosed with Vasculitis but is not getting anywhere locally

I'm getting too old for this

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