Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for April 2022

Evusheld not ordered yet by the UK government

The Guardian has run a story today about this, quoting the Astra Zeneca boss, saying that “The UK is probably one of the rare developed countries in the world...

The Guardian has run a story today about this, quoting the Astra Zeneca boss, sa...

Volunteer•3 years ago

I'm OFF ON HOLIDAY, Yipeee😊😊😊😊

Dear All, Tomorrow Luchtime I'm going Away On Holiday..... the First time, since Lockdown too😁. It's 'only' to the Re-Vitalise Centre ('Re-Vitalise', formerly...

Dear All, Tomorrow Luchtime I'm going Away On Holiday..... the First time, since...

•3 years ago

Assistance would be very much appreciated!

My daughter has asked me to post the following: I am approaching the end of my International Relations degree, and decided to focus my dissertation on how the...

My daughter has asked me to post the following: I am approaching the end of my I...

•3 years ago

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Chest infection

My Dad has Vasculitis and Stage 5 kidney disease he has been on azathioprine for a number of years which has held his Vasculitis under control. He’s currently...

My Dad has Vasculitis and Stage 5 kidney disease he has been on azathioprine for...

•3 years ago

Pachimeningitis, Are you out there?

Is there anyone out there with pachimeningitis? Especially if it's associated with Wegner's I would love to hear your story. Is cerebral vasculitis the same as...

Is there anyone out there with pachimeningitis? Especially if it's associated wi...

•3 years ago

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Got my 5th Covid vaccine appointment

I have my 5th Covid vaccine booking for early May, just over 4 months after vaccine 4. I will probably flare badly neurologically for 3 months after, but hey,...

I have my 5th Covid vaccine booking for early May, just over 4 months after vacc...

Volunteer•3 years ago

Refused treatment.

Hi . I have GPA and I am identified as being clinically extremely vulnerable due to the fact that I take immune suppressants (Azathioprine and Prednisolone). I...

Hi . I have GPA and I am identified as being clinically extremely vulnerable due...

•3 years ago

Very Sorry everyone.... and HAPPY EASTER😊

Dear All, here I am at Ten, Twenty- on Easter Sunday- and I haven't wished you ALL A HAPPY EASTER.... sorry. I know it is 'an excuse' but my Mother has a Sore...

Dear All, here I am at Ten, Twenty- on Easter Sunday- and I haven't wished you A...

•3 years ago

Tapering prednisone with GPA after truxima infusions.

I was diagnosed with GPA about three months ago, underwent a kidney biopsy and started treatment. Underwent four infusions of truxima and now tapering...

I was diagnosed with GPA about three months ago, underwent a kidney biopsy and s...

•3 years ago

Groups eligible for free LFT tests in Scotland after 18 April 2022

Here is the list of groups who can still order free LFT tests in Scotland after Sunday when general free tests end. I’m covered phew as a severely...

Here is the list of groups who can still order free LFT tests in Scotland after ...

Volunteer•3 years ago

CUTANEOUS VASCULITIS

Hi! I have these red spots on my legs every time I have long flights. Lately, it became horrendous since they appeared again when I wore tight jeans. I went to...

Hi! I have these red spots on my legs every time I have long flights. Lately, it...

•3 years ago

Low white blood count after Covid infection

Hi looking for some information regarding recent blood works as OH informed his white blood cells were slightly low . He is due to have them repeated in 4...

Hi looking for some information regarding recent blood works as OH informed his ...

•3 years ago

For young Behcet's sufferers

A questionnaire for young Behcet's sufferers and their families. It is from a research team based at Alder Hey Children’s NHS Trust in association with the...

A questionnaire for young Behcet's sufferers and their families. It is from a re...

Moderator•3 years ago

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A bit 'Off Topic' but Very Important.

Dear All, I'm sure that you have had some Scams recently.... However if you receive one from Someone Pretending To be TESCO they have a 'dedicated' Fraud Web...

Dear All, I'm sure that you have had some Scams recently.... However if you rece...

•3 years ago

Two blog posts on “Living with Covid”

I read a really interesting blog post from literature professor Martin Paul Eve. He has zero antibodies from the Covid vaccine, because of treatment for...

I read a really interesting blog post from literature professor Martin Paul Eve....

Volunteer•3 years ago

New COVID-19 Guidance in England for People at Higher Risk

Link to updated guidance for people in England:...

Link to updated guidance for people in England:...

•3 years ago

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Surviving COVID-19, Ventilator, and Month in Hospital

Hi everyone! I was diagnosed with EGPA in 2016. Like many of you, I'm immunocompromised from years of prednisone, azathioprine and Rituxan. Two years ago...

Hi everyone! I was diagnosed with EGPA in 2016. Like many of you, I'm immunocomp...

•3 years ago

No PCR a for home testing

Hi, My husband has Wegeners treated with Ritiximub and steroids, all though the pandemic received all the letters about shielding but has not received the...

Hi, My husband has Wegeners treated with Ritiximub and steroids, all though the ...

•3 years ago

Experience of Covid with no antibodies!

I thought it might be helpful/ reassuring for some to write about our experience with Covid. Last week we had visitors, they were fully vaccinated and has...

I thought it might be helpful/ reassuring for some to write about our experience...

•3 years ago