Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,779 members • 6,751 posts

All posts for October 2018

Hull Support Group Meeting 18th November 2018

Hi everyone, We’ve not been over to East Yorkshire for a while, so we’ve scheduled another, rather last minute, meeting in Hull for the 18th of November....

Hi everyone, We’ve not been over to East Yorkshire for a while, so we’ve schedul...

Volunteer•5 years ago

Too much aziathioprine in system

Hi I recently saw my rheumatology team at Manchester infirmary and after a blood test they have told me I have too much aziathioprine in my system and have...

Hi I recently saw my rheumatology team at Manchester infirmary and after a bloo...

•5 years ago

The story so far lol

Hi all, I eventually got a phone call from my consultant, yesterday. He said my esr was raised but not too much. He is referring me to an endocrinologist, but...

Hi all, I eventually got a phone call from my consultant, yesterday. He said my...

•6 years ago

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A 'TIME-LY Reminder.

Dear All, Don't forget to put your Clocks Back, an hour, tonight. (UK only) AndrewT

Dear All, Don't forget to put your Clocks Back, an hour, tonight. (UK only) Andr...

•6 years ago

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Shingles Vaccine

Is it advisable or beneficial to have this vaccine if you have had shingles?

Is it advisable or beneficial to have this vaccine if you have had shingles?

•6 years ago

The GODs ANCA &ANA

I have a question. Why do doctors bow to either of these two? Without one or the other it's almost impossible to get a diagnosis even though you have all or...

I have a question. Why do doctors bow to either of these two? Without one or the...

•6 years ago

What does egpa feel like and how so I know if it's a Flair?

Because I have been told so many things by doctors who really do not know about egpa I have become super confused. Now my new rhumatologist says I actually do...

Because I have been told so many things by doctors who really do not know about ...

•6 years ago

Shingles Vacination.

I have just received a letter from my surgery informing me that I am now eligible to have a one-off shingles vaccination , has anyone had this ? Are there any...

I have just received a letter from my surgery informing me that I am now eligibl...

•6 years ago

Sever attack today from UV😔

Hi everyone, I hope you are all doing well. I have tried to read as many posts as possible and I’m very saddened to see so many of you suffering from this😔...

Hi everyone, I hope you are all doing well. I have tried to read as many posts a...

•6 years ago

For those with an interest the Vasculitis U.K. Autumn Newsletter is now available online

Via the Vasculitis U.K. website .. just follow this link. http://www.vasculitis.org.uk/news/autumn-newsletter-2018-10

Via the Vasculitis U.K. website .. just follow this link. http://www.vasculiti...

Volunteer•6 years ago

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Dealing with an invisible and fluctuating illness

I just blogged about this, which others here may be able to relate to. I've been living with a very neurological form of vasculitis since 1994, and wanted to...

I just blogged about this, which others here may be able to relate to. I've been...

Volunteer•6 years ago

Just as a matter of interest - monitering protocols in North East UK

My consultant informed me recently, after speaking to the vasculitis team at Freeman Road Hospital, Newcastle, that it is now recommended practice to offer an...

My consultant informed me recently, after speaking to the vasculitis team at Fre...

•6 years ago

Received a Call for PET/CT Scan

I received a call this afternoon from the hospital, in which I was told my consultant has scheduled a PET/CT scan for next Tuesday morning. I've had several...

I received a call this afternoon from the hospital, in which I was told my consu...

•6 years ago

More problems with prednisolone tapering

Hi folks, I was diagnosed with aortitis in dec 2015 and have been on prednisolone since then. I have tried tapering a couple of times last year, using alt days...

Hi folks, I was diagnosed with aortitis in dec 2015 and have been on prednisolon...

•6 years ago

Coping with a vasculitis relapse

I wanted to write a bit about coping with a vasculitis disease relapse. This is prompted by a post earlier today in the CNS/cerebral vasculitis Facebook group....

I wanted to write a bit about coping with a vasculitis disease relapse. This is ...

Volunteer•6 years ago

More Scams

Dear All, Sorry, to say this, but there are, yet more, Scams out there- nasty ones too. There is one stating that Someone is Dying and (s)he wants YOU, to...

Dear All, Sorry, to say this, but there are, yet more, Scams out there- nasty o...

•6 years ago

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EGPA and catract surgery

Has anyone who has EGPA had cataract surgery? What was your outcome?

Has anyone who has EGPA had cataract surgery? What was your outcome?

•6 years ago

Mepolizumab - And discontinuation of Prednisilone.

Hi, For those of you who are taking Mepolizumab what was the protocol for discontinuing Prednisilone before you started it? Is it done gradually? Can I do it...

Hi, For those of you who are taking Mepolizumab what was the protocol for discon...

•6 years ago

Recommendation required for Rheamatology consultant Gloucestershire or Bristol area. GPA knowledge essential.

Hi can anybody recommend a good Rheamatology consultant in either the Bristol or Gloucestershire area. I have GPA which has been controlled with regular...

Hi can anybody recommend a good Rheamatology consultant in either the Bristol or...

•6 years ago

Interesting, and useful, 'Tip' from my Dermatologist

I had, one of my Regular 'Check Ups', about two weeks ago. I first saw my Consultant, Dr Andi, he examined me and then asked if I had any questions. I pointed...

I had, one of my Regular 'Check Ups', about two weeks ago. I first saw my Consul...

•6 years ago

Takayasu Arteritis and Life Insurance

Hi This is probably a stupid question but has anyone been able to obtain life insurance after a diagnosis of Takayasu Arteritis or similar?

Hi This is probably a stupid question but has anyone been able to obtain life in...

•6 years ago

Next Merseyside Cheshire & N Wales VSG Meeting Thursday 15th November 1pm

Our next meeting is at the Linda McCartney Education Centre in The Royal Liverpool Hospital Prescot St L7 8XP. We will have a Speaker & update since the...

Our next meeting is at the Linda McCartney Education Centre in The Royal Liverpo...

•6 years ago

Un-Diagnosed Rashes

Hi. My Name is Dan im new here. It was recommended that i post pictures of my rash here. I have multiple Issues and symptoms all explained here:...

Hi. My Name is Dan im new here. It was recommended that i post pictures of my ra...

•6 years ago

MPA and tendonitis

Does anyone know, is it possible that sudden development of synovial tendonitis in a wrist could be a vasculitic inflammation?

Does anyone know, is it possible that sudden development of synovial tendonitis ...

•6 years ago