Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,774 members • 6,747 posts

All posts for September 2018

Weather is STILL, too hot for me!

Dear All, This extended Summer, is Good/Nice in many ways- it's a shame that I can't poo though! (I'm also Limping, my left heal hurts- Oh Well, 'mustn't...

Dear All, This extended Summer, is Good/Nice in many ways- it's a shame that I c...

AndrewT

•6 years ago

12 Replies

West Yorkshire Support Group Meeting - 21st October 2018

Hi Everyone, The next West Yorkshire vasculitis support group meeting will be at the Gomersal Park Hotel on Sunday the 21st of October between 1:30pm and...

Hi Everyone, The next West Yorkshire vasculitis support group meeting will be at...

RichardE

Volunteer•6 years ago

1 Reply

Silica Esposure and Vaculitis: Dental Field

I have been diagnosed with Normal Compliment Uticarial Vasculitis. Biopsy of hands strange red lines palms of hands . Eye innflamation :bouts of scleritis and...

I have been diagnosed with Normal Compliment Uticarial Vasculitis. Biopsy of han...

tmpeltier

•6 years ago

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Frustrated over different opinions re EGPA diagnosis

Hi I was diagnosed with EGPA in the Brompton year ago after a week there in IV steroids. I went for a second opinion as my treating hospital wouldn’t listen to...

Hi I was diagnosed with EGPA in the Brompton year ago after a week there in IV s...

ElaineRH

•6 years ago

4 Replies

Looking for hope

Hi everyone, My mum was diagnosed with EGPA almost 2months ago. Thankfully the only thing affected were her nervesin her left foot cauaing foot drop and her...

Hi everyone, My mum was diagnosed with EGPA almost 2months ago. Thankfully the o...

Miriii

•6 years ago

11 Replies

Cns vasculitis /ritmixuhib

Hi. I was diagnosed with cns vasculitis in 2015 after I had at least 2 strokes, I was then took to Walton after Dr Holt took on my case. I was put on steroids...

Hi. I was diagnosed with cns vasculitis in 2015 after I had at least 2 strokes, ...

arny12

•6 years ago

4 Replies

Runny swollen nose

Hi Has anyone out there with vasculitis suffer from a runny swollen nose whilst under a flare, just woke with my nostrils red as a beetroot feels swollen...

Hi Has anyone out there with vasculitis suffer from a runny swollen nose whilst...

tazmoe

•6 years ago

3 Replies

Get a second opinion? Or not. In US. Cleveland Vascular Center or Mayo.

Has anyone been to the Cleveland Ohio Vascular Center? Its not too far from me. Also the Mayo Clinic in Rochester Minnesota might be helpful. I already have a...

Has anyone been to the Cleveland Ohio Vascular Center? Its not too far from me. ...

Jessileigh

•6 years ago

8 Replies

Stay positive and you can get though it

In 1999 I came down with Cerebral Vasculitis. Can’t remember the level of the medications that I originally was on but it was a high dose of Prednisolone and...

In 1999 I came down with Cerebral Vasculitis. Can’t remember the level of the me...

phil3

•6 years ago

1 Reply

Coping Strategies for Waiting to be Seen

Hi all, I was diagnosed with granulomatosis with polyangiitis (GPA) last month after 6 months of testing / vasculitis being suspected and am waiting to be seen...

Hi all, I was diagnosed with granulomatosis with polyangiitis (GPA) last month a...

citygirl1234

•6 years ago

32 Replies

Has anyone recovered from adrenal deficiency?

I have come off prednisolone gradually on a couple of occasions. The last time I had a synachen test and was put on a small dose of hydra cortisone 10mg as the...

I have come off prednisolone gradually on a couple of occasions. The last time I...

Katie18

•6 years ago

15 Replies

PREDNISONE TAPER AND DEPRESSION AND ANXIETY

Two years ago this month, after 2 viral episodes, I developed new and different upper body pain which became intolerable. Saw a rheumatologist who initially...

Two years ago this month, after 2 viral episodes, I developed new and different ...

Christophene47

•6 years ago

15 Replies

Transition from Cyclophosphamide to Mycophenolate

Hello, I am due to complete my 10th and final cycle of cyclophosphamide in a few weeks. My rheumatologist proposes to then start me on mycophenolate. I am...

Hello, I am due to complete my 10th and final cycle of cyclophosphamide in a few...

Hidden

•6 years ago

6 Replies

EGPA Fatigue

Hello everyone, I’m hoping someone can advise me! My prevailing symptoms are great tiredness and joint pain- Does anyone know of any other pref non drug...

Hello everyone, I’m hoping someone can advise me! My prevailing symptoms are gre...

vivavida

•6 years ago

4 Replies

brain fog

has anyone with vasculitis had severe brain fog?

metalheron

•6 years ago

13 Replies

Vasculitis Fundraising

Anyone in the Huddersfield area ? Can we join forces to raise awareness and money?

Anyone in the Huddersfield area ? Can we join forces to raise awareness and mone...

SsMum

•6 years ago

4 Replies

New Norfolk Vasculitis Support Group Meeting in October

For more details or to book a place please follow this link and contact Mark http://www.vasculitis.org.uk/events/norfolk-vasculitis-meeting

For more details or to book a place please follow this link and contact Mark htt...

Suzym2u

Moderator•6 years ago

2 Replies

Vaccinations and Vasculitis.... Has anyone had a MMR that caused a flare up?

I started a new job in February that required me to get a MMR vaccination series of two shots a month apart. Before the second shot I got a rash on my legs and...

I started a new job in February that required me to get a MMR vaccination series...

suiterdd

•6 years ago

9 Replies

Vitamin D, Vitamin B and folic acid...…. Is this common to have deficiencies in these?

I have only been diagnosed with vitamin deficiencies from my blood tests. Every other test has been negative so far, ALL of them. But I noticed that a lot of...

I have only been diagnosed with vitamin deficiencies from my blood tests. Every ...

suiterdd

•6 years ago

2 Replies

Advice on travel to US

my husband (who was diagnosed with GPA last year and is now in drug induced remission ) and I have booked to travel to Austin towards the end of the year to...

my husband (who was diagnosed with GPA last year and is now in drug induced remi...

Main1234

•6 years ago

9 Replies

Advice on travel to US

my husband (who was diagnosed with GPA last year and is now in drug induced remission ) and I have booked to travel to Austin towards the end of the year to...

my husband (who was diagnosed with GPA last year and is now in drug induced remi...

Main1234

•6 years ago

6 Replies

North East Support Group - next meeting

Hi Everyone, We are delighted to inform you that we now have the agenda for the Vasculitis Support Group Meeting which is taking place at the Freeman...

Hi Everyone, We are delighted to inform you that we now have the agenda for th...

Alpsy

•6 years ago

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Anyone declined rituximab with MPA and pulmonary hemorrhage

Hi all, I got diagnosed with MPA via lung biopsy after having two pulmonary hemorrhages within a few months of each other (lsst time in March this year). I...

Hi all, I got diagnosed with MPA via lung biopsy after having two pulmonary hem...

Becca81

•6 years ago

1 Reply

Well Being Workshop in Nottingham

Are you living with SLE, Vasculitis or Scleroderma? The NHS Treatment Centre Team would like to invite you to a well-being workshop at Circle Nottingham NHS...

Are you living with SLE, Vasculitis or Scleroderma? The NHS Treatment Centre Tea...

John_Mills

Volunteer•6 years ago

2 Replies

Hello....

Recently diagnosed after a rapid decline in kidney function ...keen to learn more as my treatment continues....it's difficult, as so rare a condition people...

Recently diagnosed after a rapid decline in kidney function ...keen to learn mor...

Pennycat18

•6 years ago

13 Replies

North West Support Group Meeting

The wet and cloudy August Bank holiday is behind us for 2018 but there is still one event to look forward to attending. Catch up with familiar faces and a...

The wet and cloudy August Bank holiday is behind us for 2018 but there is still ...

Jann

•6 years ago

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Lincolnshire Support Group

If you would like to meet other people who have Vasculitis, or a similar autoimmune disease, do come to our meeting at the Kings Head in Navenby (LN5 0EE) on...

If you would like to meet other people who have Vasculitis, or a similar autoimm...

BronteM

•6 years ago

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Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for September 2018

Weather is STILL, too hot for me!

West Yorkshire Support Group Meeting - 21st October 2018

Silica Esposure and Vaculitis: Dental Field

Frustrated over different opinions re EGPA diagnosis

Looking for hope

Cns vasculitis /ritmixuhib

Runny swollen nose

Get a second opinion? Or not. In US. Cleveland Vascular Center or Mayo.

Stay positive and you can get though it

Coping Strategies for Waiting to be Seen

Has anyone recovered from adrenal deficiency?

PREDNISONE TAPER AND DEPRESSION AND ANXIETY

Transition from Cyclophosphamide to Mycophenolate

EGPA Fatigue

brain fog

Vasculitis Fundraising

New Norfolk Vasculitis Support Group Meeting in October

Vaccinations and Vasculitis.... Has anyone had a MMR that caused a flare up?

Vitamin D, Vitamin B and folic acid...…. Is this common to have deficiencies in these?

Advice on travel to US

Advice on travel to US

North East Support Group - next meeting

Anyone declined rituximab with MPA and pulmonary hemorrhage

Well Being Workshop in Nottingham

Hello....

North West Support Group Meeting

Lincolnshire Support Group

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