Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,779 members • 6,752 posts

All posts for November 2023

Has prevnar13( pneumonia vaccine ) caused a trigger for people with existing inflammatory conditions?

I’m an autoimmune vasucliits patient . My inflammation in the eye was relatively managed well with immunosuppressants. But since having the Prevnar 13 , my...

I’m an autoimmune vasucliits patient . My inflammation in the eye was relatively...

•5 months ago

Papules on Face and Forehead

I was DX with C-Anca GPA in 2017. My treatment was Azathioprine, Prednisone and Rituxan. I went through about 4 months of pain and suffering before I was DX as...

I was DX with C-Anca GPA in 2017. My treatment was Azathioprine, Prednisone and ...

•5 months ago

changing hospitals

hi, I have GPA have been diagnosed since 2020. I am considering changing hospitals that deal with my care, as I just don't feel like I'm getting the treatment...

hi, I have GPA have been diagnosed since 2020. I am considering changing hospita...

•5 months ago

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Re-introduction

Hello everyone. I've not been active on here for some time, so this is by way of a new introduction! I was diagnosed with GPA in 2012, which made a hole in my...

Hello everyone. I've not been active on here for some time, so this is by way of...

•5 months ago

Pneumonia Vaccine - Who Can Have it?

Hi everybody, it’s been a bit of a tough 10 days. Things have been going well but a week last Thursday I started getting flashes in my left eye and loads of...

Hi everybody, it’s been a bit of a tough 10 days. Things have been going well bu...

•5 months ago

Vasculitis UK Autumn Newsletter now available online via the VUK website

The Vasculitis UK Autumn Newsletter is now on line via the Vasculitis U.K website MelodyStudy update, UKIVAS Rare Disease update, BSR Annual Conference,...

The Vasculitis UK Autumn Newsletter is now on line via the Vasculitis U.K websit...

Administrator•6 months ago

Avacopan (Tavneos®) is accepted for use within NHSScotland.

The Scottish Medicines Consortium (SMC) has completed its assessment of Avacopan and, following review by the SMC executive, advises NHS Boards and Area Drug...

The Scottish Medicines Consortium (SMC) has completed its assessment of Avacopan...

Administrator•6 months ago

scalp spots

hello everyone I know that sores inside the nose can be a vasculitis symptom. I have this occasionally, but generally my vasculitis is under control, thanks...

hello everyone I know that sores inside the nose can be a vasculitis symptom. ...

•6 months ago

Possible vasculitis

Please read my bio, thanks

Please read my bio, thanks

•6 months ago

Survey about fatigue in vasculitis patients

Dear fellow vascies, can I ask you to complete this very short survey? The aim of this project is to explore and discover how individuals with vasculitis,...

Dear fellow vascies, can I ask you to complete this very short survey? The aim ...

Administrator•6 months ago

Anti viral?

Does anyone know if they're still giving anti viral medication for a positive covid patient? I'm on rituximab and azathioprine aswell as prednisolone. I've...

Does anyone know if they're still giving anti viral medication for a positive c...

•6 months ago

Rheumatologist

is anyone else having problems seeing a Rheumatologist? I last saw one well over a year ago who told me I was wasting her time as she had more important...

is anyone else having problems seeing a Rheumatologist? I last saw one well over...

•6 months ago

EGPA and Cancer

Hi Every one I was diagnosed with EGPA about 5 years ago. I have been on Methotrexate since then and on and off low doses of Prednisolone. I have hardly had...

Hi Every one I was diagnosed with EGPA about 5 years ago. I have been on Metho...

•6 months ago

NHS App

Currently tapering down on meds. On RTX infusion , Methotrexate and Prednisolone. There is the need to monitor bloods and every three months get a ANCA...

Currently tapering down on meds. On RTX infusion , Methotrexate and Prednisolon...

•6 months ago

Hi everyone

My name is Dave and I was diagnosed with MPA Vasculitis around the end of September. I had been having fevers and night sweats that would come and go most...

My name is Dave and I was diagnosed with MPA Vasculitis around the end of Septem...

•6 months ago