Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for November 2017

Anybody here with Pan

I went to the hospital yesterday to see the Vasculitis specialist who feels I could have pan I have had a skin biopsy which showed Vasculitis but they said it...

I went to the hospital yesterday to see the Vasculitis specialist who feels I co...

Perkles

•7 years ago

8 Replies

I am new here. Recent flare up

I recently had a severe flare up of HUVS and have different symptoms this time than I did before. I was wondering if anyone had circulation issues. I believe...

I recently had a severe flare up of HUVS and have different symptoms this time t...

Snugglybrighteyes

•7 years ago

1 Reply

Vasculitis MPA

Hi, I am a 22 year old female, I was recently hospitalized for two weeks in September 2017 I was spitting up lots of blood from my lungs, I had a a tub put...

Hi, I am a 22 year old female, I was recently hospitalized for two weeks in Sept...

Randell0317

•7 years ago

13 Replies

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VUK are collecting personal stories

We ( Vasculitis UK ) are collecting short stories to include the following: • Multiple specialists – good or bad experiences •...

We ( Vasculitis UK ) are collecting short stories to include the following: • ...

John_Mills

Volunteer•7 years ago

2 Replies

Good News!!!???

My boyfriend is going for his third Rutaxin infusion, the good news is, instead of 1x4 they will give him only one infusion. The Doctor here in San Diego...

My boyfriend is going for his third Rutaxin infusion, the good news is, instead ...

thecatsathome2

•7 years ago

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Csf protein

Did anybody have raised csf protein levels as part of their Vasculitis investigations

Did anybody have raised csf protein levels as part of their Vasculitis investiga...

Perkles

•7 years ago

9 Replies

Glacially slow tapering continuing

Preparing to lower my steroids again, to 8mg, when my next weekly pill pot is done on Friday night. Am cautiously hopeful I can ultimately get to 7.5mg and...

Preparing to lower my steroids again, to 8mg, when my next weekly pill pot is do...

vivdunstan

Volunteer•7 years ago

20 Replies

Merseyside Cheshire & N Wales VSG Meeting Tuesday 12th December at 1pm

Our next Meeting is Tuesday 12th December at 1pm in the Linda McCartney Education Centre at the Royal Liverpool University Hospital, Prescot Street,Liverpool...

Our next Meeting is Tuesday 12th December at 1pm in the Linda McCartney Educatio...

SusanCh

•7 years ago

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Gout?

Has anyone here suffered, or does suffer, with gout? I only ask because apparently it's what I have. Yes I was Surprised too, by the way, I NOW know that it IS...

Has anyone here suffered, or does suffer, with gout? I only ask because apparent...

AndrewT

•7 years ago

7 Replies

Help for GPA .

Worried about my mothers Wegener grannulomotosis (GPA). Now she has pain in left leg also she has no sens in her right leg below the knee.now days she was...

Worried about my mothers Wegener grannulomotosis (GPA). Now she has pain in le...

sam05

•7 years ago

2 Replies

Nerve Biopsy..

Hi All.. Will a nerve biopsy show what type of vasculitis you have? I've had severe tingling for a long time.. Thanks

Hi All.. Will a nerve biopsy show what type of vasculitis you have? I've had se...

judyann

•7 years ago

7 Replies

Could toxic medication cause positive ANCA??

A newbie here—just joined. Could you please explain to me if it is possible for me to have tested positive for p-3 c-ANCA six months ago but not have the GPA...

A newbie here—just joined. Could you please explain to me if it is possible for ...

beverlyann

•7 years ago

11 Replies

Mostly dizzy, waiting for a diagnosis, and looking for answers

I don’t know where or how to begin to describe my journey, because after reading the many posts here, seems I may have been battling more than I realized. Over...

I don’t know where or how to begin to describe my journey, because after reading...

Canygirl61

•7 years ago

11 Replies

Please help.

Hi, I am just new to the site and I am desperate for some help. My dad is suffering from Granulomatosis with polyangiitis (GPA). He got diagnosed eventually 3...

Hi, I am just new to the site and I am desperate for some help. My dad is suffer...

CATBURNETT

•7 years ago

5 Replies

Hi, Wendy 49 yrs old...

Few months ago I was diagnosed with PMR, and only just realised this has anything to do with vasculitis. All I was told was it was a type of arthritis to do...

Few months ago I was diagnosed with PMR, and only just realised this has anythin...

wends1968

•7 years ago

14 Replies

Advice re azathioprine and alcohol please

Hi Looking for experiences and research/advice on alcohol and azathioprine please. Partner just completed 6 cycles of cyclophosphamide having been diagnosed...

Hi Looking for experiences and research/advice on alcohol and azathioprine plea...

Main1234

•7 years ago

12 Replies

Diagnosed with Urticarial Vasculitis

Hi I am new to the board. I have been diagnosed with UV last month. Started on a high dose of prednisone. I don’t know what to expect. I am concerned that I...

Hi I am new to the board. I have been diagnosed with UV last month. Started on a...

Kareyc

•7 years ago

3 Replies

Diagnosis for RF positive + anti-CCP positive + ANCA positive + Positive MPO

Hi, I wondered if anyone here had RF positive + anti-CCP positive + ANCA positive + Positive MPO . I am struggling to get a formal diagnosis. I have...

Hi, I wondered if anyone here had RF positive + anti-CCP positive + ANCA posit...

Lisam19

•7 years ago

3 Replies

Mycophenolate and remission

I have recently been prescribed Mycophenolate as part of my treatment. I read that with others drugs are used to induce remission. I have not been offered...

I have recently been prescribed Mycophenolate as part of my treatment. I read th...

friz42

•7 years ago

4 Replies

PAINFUL BREATHING

since i am taking sleeping pills I have been facing painful breathing and nose bleeding.. suggest me something.. i can't consult my parents

since i am taking sleeping pills I have been facing painful breathing and nose b...

khaulah

•7 years ago

2 Replies

Prognosis MPA Vasculitis

Hi. I am new here. I was diagnosed in June 2017. I was wondering what is the life expectancy for MPA ( microscopic polyangitis). I keep seeing references to 2...

Hi. I am new here. I was diagnosed in June 2017. I was wondering what is the lif...

Webbyj

•7 years ago

19 Replies

Having rituximab

I got a letter from Dr Clarke at Southmead saying that my visit to Addenbrookes came to the conclusion that, after a PET scan, I will now have this drug Can...

I got a letter from Dr Clarke at Southmead saying that my visit to Addenbrookes ...

Balderick

•7 years ago

23 Replies

Congratulations for Gareth

We just wanted to say Congratulations to one of Vasculitis UK’s trustees, Gareth Garner, on gaining a 1st degree in Biomedicine at Chester University. Gareth...

We just wanted to say Congratulations to one of Vasculitis UK’s trustees, Gareth...

John_Mills

Volunteer•7 years ago

6 Replies

Rheumatoid Vasculitis: serious disease, difficult treatment.

My first post here. I've been battling Rheum. Arthritis for 50 years, was diagnosed with Rheum. Vasculitis 30 years ago, went into remission, and returned in...

My first post here. I've been battling Rheum. Arthritis for 50 years, was diagn...

Hidden

•7 years ago

7 Replies

Just a quick reminder for the North East Vsculitis Support Meeting today-including talks about Large Vessel Vasculitis and ANCA vasculitis

Please follow this link for more details http://www.vasculitis.org.uk/events/nesg-2017-09

Please follow this link for more details http://www.vasculitis.org.uk/events/nes...

John_Mills

Volunteer•7 years ago

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Spinal Tap Findings..

Hi all.. I finally had my spinal tap.. My neuro had to rule out MS to be sure of vasculitis. I am anca neg, so it's been a tough time. I came up with...

Hi all.. I finally had my spinal tap.. My neuro had to rule out MS to be sure o...

judyann

•7 years ago

1 Reply

Welcome New Members

I have noticed a number of 'Posts', from New People, recently. I have contacted, one or two, but think that we should give all these, probably...

I have noticed a number of 'Posts', from New People, recently. I have contacted,...

AndrewT

•7 years ago

7 Replies

Azatioprina

Does anyone use azatioprina??? I’ve vasculits and im using that with predsolona when will i stop taking predsolona? Sorry about the ebglish im from brasil

Does anyone use azatioprina??? I’ve vasculits and im using that with predsolona ...

fefevian

•7 years ago

10 Replies

Blood tests

Hi I am new here, can anyone throw any light on how often blood tests should be taken when on Prednisolone? , many thanks

Hi I am new here, can anyone throw any light on how often blood tests should be ...

Billsbits

•7 years ago

5 Replies

Blood test

Hi can anybody tell me how often blood tests should be taken when on Prednisolone? Thanks.

Hi can anybody tell me how often blood tests should be taken when on Prednisolon...

Billsbits

•7 years ago

1 Reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for November 2017

Anybody here with Pan

I am new here. Recent flare up

Vasculitis MPA

VUK are collecting personal stories

Good News!!!???

Csf protein

Glacially slow tapering continuing

Merseyside Cheshire & N Wales VSG Meeting Tuesday 12th December at 1pm

Gout?

Help for GPA .

Nerve Biopsy..

Could toxic medication cause positive ANCA??

Mostly dizzy, waiting for a diagnosis, and looking for answers

Please help.

Hi, Wendy 49 yrs old...

Advice re azathioprine and alcohol please

Diagnosed with Urticarial Vasculitis

Diagnosis for RF positive + anti-CCP positive + ANCA positive + Positive MPO

Mycophenolate and remission

PAINFUL BREATHING

Prognosis MPA Vasculitis

Having rituximab

Congratulations for Gareth

Rheumatoid Vasculitis: serious disease, difficult treatment.

Just a quick reminder for the North East Vsculitis Support Meeting today-including talks about Large Vessel Vasculitis and ANCA vasculitis

Spinal Tap Findings..

Welcome New Members

Azatioprina

Blood tests

Blood test

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