Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for May 2019

Please help me....

Hello all, I am writing this from India. I m now 40 years male. I am In problem from 2016 and had been diagnosed as primary cns vasculitis in 2017. It took...

Hello all, I am writing this from India. I m now 40 years male. I am In probl...

Mustang3336

•6 years ago

9 Replies

Thinning skin

I am wondering if anyone else is experiencing thinning skin from being on prednisone? Also is it possible for your skin to get thicker once you're off or is...

I am wondering if anyone else is experiencing thinning skin from being on predni...

Tunabird

•6 years ago

6 Replies

Diet with vasculitis

Hi everyone can anyone suggest a diet I've had double bypass kidneycancer one removed and vasculitis thyroid shot keep trying to lose weight protein diet but...

Hi everyone can anyone suggest a diet I've had double bypass kidneycancer one re...

Glenville

•6 years ago

10 Replies

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Not myself/Out of sorts

I don't know if anyone else has felt this way but I'm hoping to get some responses on this. Since Monday morning, I woke up not feeling quite myself. The best...

I don't know if anyone else has felt this way but I'm hoping to get some respons...

Vo321

•6 years ago

9 Replies

Turmeric

I’ve seen a lot of posts about turmeric the last few months. I have been taking capsules for a month now and I have noticed a big difference and started to...

I’ve seen a lot of posts about turmeric the last few months. I have been taking ...

Rpl1990

•6 years ago

13 Replies

ANA AND C-ANCA Positive?

Hi everyone. For ref I'm 26 years old. For the last year I've had an eczema style rash that flares up and down - this initially seemed to come from a bug bite...

Hi everyone. For ref I'm 26 years old. For the last year I've had an eczema styl...

laurenruth

•6 years ago

4 Replies

Question re Shingles vaccination

There have been a couple of posts recently about Shingles. I am over 70 and would therefore normally be advised to have the vaccine, however I know that it is...

There have been a couple of posts recently about Shingles. I am over 70 and woul...

nanaC

•6 years ago

22 Replies

Shingles mark 2

I’ve got shingles again - last time was in 2010, following chickenpox before in 1998, all when immunosuppressed after my cerebral vasculitis diagnosis in......

I’ve got shingles again - last time was in 2010, following chickenpox before in ...

vivdunstan

Volunteer•6 years ago

4 Replies

Limited vasculitus I

Hi there all. Im throwing a party tomorrow and my neice has informed me she has shingles on the end stages of the illness. She is worried about passing the...

Hi there all. Im throwing a party tomorrow and my neice has informed me she has...

foweraker

•6 years ago

6 Replies

Vasculitis in lower legs

Hi all, I’ve had this rash since November last year, started feeling really ill lightheaded nausea found I had a small bleed on back of brain ( nothing to...

Hi all, I’ve had this rash since November last year, started feeling really ill ...

2stents

•6 years ago

2 Replies

What type of skin cancer is it?

We have just been told my daughter has skin cancer in 3 areas, on her shoulder, chest and back, it is non melanoma we think, how do they decide if it is basal...

We have just been told my daughter has skin cancer in 3 areas, on her shoulder, ...

Annsandra13

•6 years ago

9 Replies

Vasculitis UK represented at the Royal College for Nursing Congress 2019 in Liverpool

For the first time VUK have a stand at the Royal College for Nursing Congress 2019 in Liverpool. Over 5,500 nurses attend this Congress which is held over 4...

For the first time VUK have a stand at the Royal College for Nursing Congress 20...

Suzym2u

Moderator•6 years ago

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I just calling 'this one' TYPICAL

Dear All, This morning I readied myself, to go to my Art Group- as I do every Monday, excluding Bank Holidays (a fair few recently). However I decided, as I...

Dear All, This morning I readied myself, to go to my Art Group- as I do every M...

AndrewT

•6 years ago

8 Replies

Methotrexate and circulation issues

Hi guys Just wondering whether any of you have had any issues with circulation namely around fingers,feet & toes since commencing methotrexate and whether...

Hi guys Just wondering whether any of you have had any issues with circulation ...

Mish-da

•6 years ago

8 Replies

Your feedback is needed - Fatigue in Vasculitis

Please follow this link to the Vasculitis UK website for more details 😊 Fab-V Project http://www.vasculitis.org.uk/news/fab-v-2019-05

Please follow this link to the Vasculitis UK website for more details 😊 Fab-V ...

Suzym2u

Moderator•6 years ago

9 Replies

ANCA Vasculitis Patient/Carer Workshop in Manchester

On Wednesday John and I joined other volunteers for a ANCA Vasculitis patient and Carer workshop , held by Vifor Pharma to develop resources for Vasculitis...

On Wednesday John and I joined other volunteers for a ANCA Vasculitis patient an...

Suzym2u

Moderator•6 years ago

Be the first to reply

UKIVAS Vasculitis Education Day at Salford Hospital in Manchester

Yesterday John and I were invited to the UKIVAS Vasculitis Education Day at Salford hospital in Manchester. There were 140 doctors and specialist nurses there....

Yesterday John and I were invited to the UKIVAS Vasculitis Education Day at Salf...

Suzym2u

Moderator•6 years ago

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Vasculitus

I have just started Myfenax 1000mg with 50g Prednisolone & 600mg Pregabin I have vasculitis and Neuropathy and my skin has become very sensitive very itchy

I have just started Myfenax 1000mg with 50g Prednisolone & 600mg Pregabin I have...

Trilliano73

•6 years ago

4 Replies

MPO with impaired kidneys

Hi I was diagnosed with MPO Vasculitis in August 2015 with impaired kidneys Had a course of cyclophosphomide, steroids and now on azathioprine. I'm on...

Hi I was diagnosed with MPO Vasculitis in August 2015 with impaired kidneys Had ...

xz3sgn

•6 years ago

3 Replies

Prednisolone tapering

Hi I’m now in 2.5mgs Pred and 15 mgs Methotrexate. Bloods have come back normal although slight rise in CRP and ESR. Waking every morning with a head ache...

Hi I’m now in 2.5mgs Pred and 15 mgs Methotrexate. Bloods have come back normal ...

PaddyPop

•6 years ago

13 Replies

Share4Rare - Rare Diseases Advocacy Project

This link just popped up for me via an EUPATI (European Patients' Academy) newsletter. It's a project for patient advocacy in rare diseases. They have a...

This link just popped up for me via an EUPATI (European Patients' Academy) newsl...

RichardE

Volunteer•6 years ago

1 Reply

Is vasculitis life threatening?

My husband suffers with osteoporosis and osteoarthritis and this has got worse over the last 3 years such that he has had 2 spinal operations and now uses a...

My husband suffers with osteoporosis and osteoarthritis and this has got worse o...

Peep3

•6 years ago

19 Replies

Vasculitis Awareness Month Video - Living with an Autoimmune Disorder.

To mark Vasculitis Awareness Month, Kelly Jefferies (supported by Shanali Pereira) has produced an Awareness Video: "Living with an autoimmune disorder"...

To mark Vasculitis Awareness Month, Kelly Jefferies (supported by Shanali Pereir...

John_Mills

Volunteer•6 years ago

13 Replies

Merseyside Cheshire & North Wales VSG Meeting Friday 17th May

I’m afraid that the above meeting has to be cancelled as we have been unable to get a speaker but will be rearranged at a later date. Sue

I’m afraid that the above meeting has to be cancelled as we have been unable to ...

SusanCh

•6 years ago

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VUK AGM and Support Meeting May 19th

Just the final few days to book a place... we need total numbers by Monday 13th May 😊 for catering purposes... The Vasculitis UK AGM will be held on Sunday...

Just the final few days to book a place... we need total numbers by Monday 13th ...

Suzym2u

Moderator•6 years ago

4 Replies

Still not getting anywhere

Hi all I have posted before, I went on sick from work last November I was lightheaded all the time and kept getting confused. Week before Xmas was driving and...

Hi all I have posted before, I went on sick from work last November I was lighth...

2stents

•6 years ago

2 Replies

I'm Delighted, I really Am

Dear All, I'm Delighted, Over the Moon, Cock-A-Hoop, Ok Just happy then. Why might you ask? I have, after probably two/ three Years of looking, finally...

Dear All, I'm Delighted, Over the Moon, Cock-A-Hoop, Ok Just happy then. Why mi...

AndrewT

•6 years ago

4 Replies

Feeling stronger

My wife was recently diagnosed with Vasculitis, she has been taking 80 mg of Prednisolone for 6 weeks and that was a great improvement, she has recently had an...

My wife was recently diagnosed with Vasculitis, she has been taking 80 mg of Pre...

lalnes

•6 years ago

9 Replies

Vasculitis Spring Newsletter is now available on line via the VUK website

Just follow this link http://www.vasculitis.org.uk/news/spring-newsletter-2019-05

Just follow this link http://www.vasculitis.org.uk/news/spring-newsletter-2019-0...

John_Mills

Volunteer•6 years ago

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Vasculitis U.K. AGM and Support Meeting May 19th 2019

The next Vasculitis UK AGM will be held on Sunday 19th May 2019 at 12.00 mid-day at the Post Mill Centre South Normanton DE55 2EJ, near Alfreton just off...

The next Vasculitis UK AGM will be held on Sunday 19th May 2019 at 12.00 mid-day...

John_Mills

Volunteer•6 years ago

Be the first to reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for May 2019

Please help me....

Thinning skin

Diet with vasculitis

Not myself/Out of sorts

Turmeric

ANA AND C-ANCA Positive?

Question re Shingles vaccination

Shingles mark 2

Limited vasculitus I

Vasculitis in lower legs

What type of skin cancer is it?

Vasculitis UK represented at the Royal College for Nursing Congress 2019 in Liverpool

I just calling 'this one' TYPICAL

Methotrexate and circulation issues

Your feedback is needed - Fatigue in Vasculitis

ANCA Vasculitis Patient/Carer Workshop in Manchester

UKIVAS Vasculitis Education Day at Salford Hospital in Manchester

Vasculitus

MPO with impaired kidneys

Prednisolone tapering

Share4Rare - Rare Diseases Advocacy Project

Is vasculitis life threatening?

Vasculitis Awareness Month Video - Living with an Autoimmune Disorder.

Merseyside Cheshire & North Wales VSG Meeting Friday 17th May

VUK AGM and Support Meeting May 19th

Still not getting anywhere

I'm Delighted, I really Am

Feeling stronger

Vasculitis Spring Newsletter is now available on line via the VUK website

Vasculitis U.K. AGM and Support Meeting May 19th 2019

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