Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,938 members•6,969 posts

All posts for May 2019

Please help me....

Hello all, I am writing this from India. I m now 40 years male. I am In problem from 2016 and had been diagnosed as primary cns vasculitis in 2017. It took...

Hello all, I am writing this from India. I m now 40 years male. I am In probl...

Mustang3336

•6 years ago

9 Replies

Thinning skin

I am wondering if anyone else is experiencing thinning skin from being on prednisone? Also is it possible for your skin to get thicker once you're off or is...

I am wondering if anyone else is experiencing thinning skin from being on predni...

Tunabird

•6 years ago

6 Replies

Diet with vasculitis

Hi everyone can anyone suggest a diet I've had double bypass kidneycancer one removed and vasculitis thyroid shot keep trying to lose weight protein diet but...

Hi everyone can anyone suggest a diet I've had double bypass kidneycancer one re...

Glenville

•6 years ago

10 Replies

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Not myself/Out of sorts

I don't know if anyone else has felt this way but I'm hoping to get some responses on this. Since Monday morning, I woke up not feeling quite myself. The best...

I don't know if anyone else has felt this way but I'm hoping to get some respons...

Vo321

•6 years ago

9 Replies

Turmeric

I’ve seen a lot of posts about turmeric the last few months. I have been taking capsules for a month now and I have noticed a big difference and started to...

I’ve seen a lot of posts about turmeric the last few months. I have been taking ...

Rpl1990

•6 years ago

13 Replies

ANA AND C-ANCA Positive?

Hi everyone. For ref I'm 26 years old. For the last year I've had an eczema style rash that flares up and down - this initially seemed to come from a bug bite...

Hi everyone. For ref I'm 26 years old. For the last year I've had an eczema styl...

laurenruth

•6 years ago

4 Replies

Question re Shingles vaccination

There have been a couple of posts recently about Shingles. I am over 70 and would therefore normally be advised to have the vaccine, however I know that it is...

There have been a couple of posts recently about Shingles. I am over 70 and woul...

nanaC

•6 years ago

22 Replies

Shingles mark 2

I’ve got shingles again - last time was in 2010, following chickenpox before in 1998, all when immunosuppressed after my cerebral vasculitis diagnosis in......

I’ve got shingles again - last time was in 2010, following chickenpox before in ...

vivdunstan

Volunteer•6 years ago

4 Replies

Limited vasculitus I

Hi there all. Im throwing a party tomorrow and my neice has informed me she has shingles on the end stages of the illness. She is worried about passing the...

Hi there all. Im throwing a party tomorrow and my neice has informed me she has...

foweraker

•6 years ago

6 Replies

Vasculitis in lower legs

Hi all, I’ve had this rash since November last year, started feeling really ill lightheaded nausea found I had a small bleed on back of brain ( nothing to...

Hi all, I’ve had this rash since November last year, started feeling really ill ...

2stents

•6 years ago

2 Replies

What type of skin cancer is it?

We have just been told my daughter has skin cancer in 3 areas, on her shoulder, chest and back, it is non melanoma we think, how do they decide if it is basal...

We have just been told my daughter has skin cancer in 3 areas, on her shoulder, ...

Annsandra13

•6 years ago

9 Replies

Vasculitis UK represented at the Royal College for Nursing Congress 2019 in Liverpool

For the first time VUK have a stand at the Royal College for Nursing Congress 2019 in Liverpool. Over 5,500 nurses attend this Congress which is held over 4...

For the first time VUK have a stand at the Royal College for Nursing Congress 20...

Suzym2u

Moderator•6 years ago

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I just calling 'this one' TYPICAL

Dear All, This morning I readied myself, to go to my Art Group- as I do every Monday, excluding Bank Holidays (a fair few recently). However I decided, as I...

Dear All, This morning I readied myself, to go to my Art Group- as I do every M...

AndrewT

•6 years ago

8 Replies

Methotrexate and circulation issues

Hi guys Just wondering whether any of you have had any issues with circulation namely around fingers,feet & toes since commencing methotrexate and whether...

Hi guys Just wondering whether any of you have had any issues with circulation ...

Mish-da

•6 years ago

8 Replies

Your feedback is needed - Fatigue in Vasculitis

Please follow this link to the Vasculitis UK website for more details 😊 Fab-V Project http://www.vasculitis.org.uk/news/fab-v-2019-05

Please follow this link to the Vasculitis UK website for more details 😊 Fab-V ...

Suzym2u

Moderator•6 years ago

9 Replies

ANCA Vasculitis Patient/Carer Workshop in Manchester

On Wednesday John and I joined other volunteers for a ANCA Vasculitis patient and Carer workshop , held by Vifor Pharma to develop resources for Vasculitis...

On Wednesday John and I joined other volunteers for a ANCA Vasculitis patient an...

Suzym2u

Moderator•6 years ago

Be the first to reply

UKIVAS Vasculitis Education Day at Salford Hospital in Manchester

Yesterday John and I were invited to the UKIVAS Vasculitis Education Day at Salford hospital in Manchester. There were 140 doctors and specialist nurses there....

Yesterday John and I were invited to the UKIVAS Vasculitis Education Day at Salf...

Suzym2u

Moderator•6 years ago

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Vasculitus

I have just started Myfenax 1000mg with 50g Prednisolone & 600mg Pregabin I have vasculitis and Neuropathy and my skin has become very sensitive very itchy

I have just started Myfenax 1000mg with 50g Prednisolone & 600mg Pregabin I have...

Trilliano73

•6 years ago

4 Replies

MPO with impaired kidneys

Hi I was diagnosed with MPO Vasculitis in August 2015 with impaired kidneys Had a course of cyclophosphomide, steroids and now on azathioprine. I'm on...

Hi I was diagnosed with MPO Vasculitis in August 2015 with impaired kidneys Had ...

xz3sgn

•6 years ago

3 Replies

Prednisolone tapering

Hi I’m now in 2.5mgs Pred and 15 mgs Methotrexate. Bloods have come back normal although slight rise in CRP and ESR. Waking every morning with a head ache...

Hi I’m now in 2.5mgs Pred and 15 mgs Methotrexate. Bloods have come back normal ...

PaddyPop

•6 years ago

13 Replies

Share4Rare - Rare Diseases Advocacy Project

This link just popped up for me via an EUPATI (European Patients' Academy) newsletter. It's a project for patient advocacy in rare diseases. They have a...

This link just popped up for me via an EUPATI (European Patients' Academy) newsl...

RichardE

Volunteer•6 years ago

1 Reply

Is vasculitis life threatening?

My husband suffers with osteoporosis and osteoarthritis and this has got worse over the last 3 years such that he has had 2 spinal operations and now uses a...

My husband suffers with osteoporosis and osteoarthritis and this has got worse o...

Peep3

•6 years ago

19 Replies

Vasculitis Awareness Month Video - Living with an Autoimmune Disorder.

To mark Vasculitis Awareness Month, Kelly Jefferies (supported by Shanali Pereira) has produced an Awareness Video: "Living with an autoimmune disorder"...

To mark Vasculitis Awareness Month, Kelly Jefferies (supported by Shanali Pereir...

John_Mills

Volunteer•6 years ago

13 Replies

Merseyside Cheshire & North Wales VSG Meeting Friday 17th May

I’m afraid that the above meeting has to be cancelled as we have been unable to get a speaker but will be rearranged at a later date. Sue

I’m afraid that the above meeting has to be cancelled as we have been unable to ...

SusanCh

•6 years ago

Be the first to reply

VUK AGM and Support Meeting May 19th

Just the final few days to book a place... we need total numbers by Monday 13th May 😊 for catering purposes... The Vasculitis UK AGM will be held on Sunday...

Just the final few days to book a place... we need total numbers by Monday 13th ...

Suzym2u

Moderator•6 years ago

4 Replies

Still not getting anywhere

Hi all I have posted before, I went on sick from work last November I was lightheaded all the time and kept getting confused. Week before Xmas was driving and...

Hi all I have posted before, I went on sick from work last November I was lighth...

2stents

•6 years ago

2 Replies

I'm Delighted, I really Am

Dear All, I'm Delighted, Over the Moon, Cock-A-Hoop, Ok Just happy then. Why might you ask? I have, after probably two/ three Years of looking, finally...

Dear All, I'm Delighted, Over the Moon, Cock-A-Hoop, Ok Just happy then. Why mi...

AndrewT

•6 years ago

4 Replies

Feeling stronger

My wife was recently diagnosed with Vasculitis, she has been taking 80 mg of Prednisolone for 6 weeks and that was a great improvement, she has recently had an...

My wife was recently diagnosed with Vasculitis, she has been taking 80 mg of Pre...

lalnes

•6 years ago

9 Replies

Vasculitis Spring Newsletter is now available on line via the VUK website

Just follow this link http://www.vasculitis.org.uk/news/spring-newsletter-2019-05

Just follow this link http://www.vasculitis.org.uk/news/spring-newsletter-2019-0...

John_Mills

Volunteer•6 years ago

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Vasculitis U.K. AGM and Support Meeting May 19th 2019

The next Vasculitis UK AGM will be held on Sunday 19th May 2019 at 12.00 mid-day at the Post Mill Centre South Normanton DE55 2EJ, near Alfreton just off...

The next Vasculitis UK AGM will be held on Sunday 19th May 2019 at 12.00 mid-day...

John_Mills

Volunteer•6 years ago

Be the first to reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for May 2019

Please help me....

Thinning skin

Diet with vasculitis

Not myself/Out of sorts

Turmeric

ANA AND C-ANCA Positive?

Question re Shingles vaccination

Shingles mark 2

Limited vasculitus I

Vasculitis in lower legs

What type of skin cancer is it?

Vasculitis UK represented at the Royal College for Nursing Congress 2019 in Liverpool

I just calling 'this one' TYPICAL

Methotrexate and circulation issues

Your feedback is needed - Fatigue in Vasculitis

ANCA Vasculitis Patient/Carer Workshop in Manchester

UKIVAS Vasculitis Education Day at Salford Hospital in Manchester

Vasculitus

MPO with impaired kidneys

Prednisolone tapering

Share4Rare - Rare Diseases Advocacy Project

Is vasculitis life threatening?

Vasculitis Awareness Month Video - Living with an Autoimmune Disorder.

Merseyside Cheshire & North Wales VSG Meeting Friday 17th May

VUK AGM and Support Meeting May 19th

Still not getting anywhere

I'm Delighted, I really Am

Feeling stronger

Vasculitis Spring Newsletter is now available on line via the VUK website

Vasculitis U.K. AGM and Support Meeting May 19th 2019

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