Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,779 members • 6,751 posts

All posts for September 2013

Flu vaccination and Rituximab

I know we have had a lot of very useful information recently about flu vaccination but I have just had my second rituximab, does anyone know how long I should...

I know we have had a lot of very useful information recently about flu vaccinati...

milliewin

•11 years ago

7 Replies

Northamptonshire Telegraph yesterday 'A group of friends have pulled together to make a bakery recipe book in memory of their friend'

The group produced the book after they were inspired by their friend Debbie Gregson’s love of home baking. Mrs Gregson died in January, aged 49, after...

The group produced the book after they were inspired by their friend Debbie Greg...

Suzym2u

Moderator•11 years ago

1 Reply

i have wegeners granulomatosis vasculitis, renal failure and go to dialysis 3 times a week. does anybody claim incapacity benefit

mumu

•11 years ago

7 Replies

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I am very confused I was diagnosed with vasculitis about 3 years ago after many tests and a nerve and muscle biopsy.

Since then I have been treated for vasculitis. Recently however I was confused as I had a really bad episode where my lower leg and foot went completely numb I...

Since then I have been treated for vasculitis. Recently however I was confused a...

Amanda51

•11 years ago

4 Replies

The aches in shoulders legs etc have started again after 6 cyclo infusions should i take painkillers or wait to see doc about more steroids?

shella

•11 years ago

2 Replies

The London Vasculitis Support Group October meeting Sunday 20th October

If you live in the Greater London area north of the River Thames and surrounding counties including SW London you are invited to join Dave, Charlotte, Ailish...

If you live in the Greater London area north of the River Thames and surrounding...

Albasain

•11 years ago

2 Replies

Flu Vaccinations

Hi folks, We've seen a few posts recently about the annual flu jabs and given that some GPs seem to give out very limited information or confusing messages...

Hi folks, We've seen a few posts recently about the annual flu jabs and given t...

RichardE

Volunteer•11 years ago

24 Replies

Is there anyone in the Harpenden area , herts with a vasculitic peripheral neuropathy ? Or any local support groups or chat for help ?

I have had this for 6 years now and am really struggling atm - I have 5 children and work from home part time but all I want to do is sleep - I'm on pregablin,...

I have had this for 6 years now and am really struggling atm - I have 5 children...

Starburst

•11 years ago

11 Replies

Vitamin C

Hi, Can I take Vitamin C tablets? I'm currently on Prednisone and Cyclophosphamide.

Hi, Can I take Vitamin C tablets? I'm currently on Prednisone and Cyclophospham...

Hidden

•11 years ago

5 Replies

Do other vascultis sufferers get AF or palpitations and if so, do you feel it is connected?

amms43

•11 years ago

3 Replies

Barry Norman is on This Morning. Think his going to talk about his wife's illness, which I think is Vasculitis

Essex-jill

•11 years ago

2 Replies

Peripheral vasculitis? does anyone know about it or have it themselves?

02061949

•11 years ago

2 Replies

Is there a support group in Suffolk, if not is anyone interested?

valwood

•11 years ago

19 Replies

Something of interest from Twitter this morning

Chinese man has new nose grown on his FOREHEAD to replace the original which was damaged in a car crash Read more:...

Chinese man has new nose grown on his FOREHEAD to replace the original which was...

Suzym2u

Moderator•11 years ago

Be the first to reply

Another day another dollar

Another day, another dollar. Eh? Today's bonus was an end to end EMG and NVC test in neurophysiology. Good news: no new neuropathy I don't know about already;...

Another day, another dollar. Eh? Today's bonus was an end to end EMG and NVC tes...

Wellsie

•11 years ago

1 Reply

East Midlands Vasculitis Support Group Meeting October 5th 2013 at 1.30pm.

Please join Dorothy, Lisa, Susan and John for the East Midlands Vasculitis Support group Meeting. Please let Dorothy or Lisa know if you will be attending....

Please join Dorothy, Lisa, Susan and John for the East Midlands Vasculitis Supp...

Suzym2u

Moderator•11 years ago

4 Replies

Can anybody simplify the anca test. ?

My daughter had bloods done today - some of which are for Anca test. - the results will not be available until tomorrow - she had already been confirmed as...

My daughter had bloods done today - some of which are for Anca test. - the resul...

Bailey24

•11 years ago

9 Replies

Merseyside Cheshire & North Wales VSG- change of date to Monday 4th November

October Meeting postponed to Monday 4th November at 10am at the Linda McCartney Centre at the Royal. We will have a speaker on "Travelling with Vasculitis "...

October Meeting postponed to Monday 4th November at 10am at the Linda McCartney ...

SusanCh

•11 years ago

1 Reply

Info please: wondering about my "tissue bleeds"

I guess there are other names for these haemorrhages deep under the skin. Mine aren't like what's called "blood blisters" cause mine are deeper in my soft...

I guess there are other names for these haemorrhages deep under the skin. Mine...

Barnclown

•11 years ago

1 Reply

West Yorkshire Support Group

West Yorkshire Support Group meeting Sunday 20th October2013 Gomersal Park Hotel, Cleckheaton 1.30pm to 4.30pm Our speaker this time will be Dr Sultan...

West Yorkshire Support Group meeting Sunday 20th October2013 Gomersal Park Hote...

LynneJ

Vasculitis UK•11 years ago

Be the first to reply

Sickness following cyclophosphamide

My daughter has just finished her 2nd dose of cyclophos & now 3 days later has been sick & feeling nauseous - is this common ? Anybody else experience this ?

My daughter has just finished her 2nd dose of cyclophos & now 3 days later has b...

Bailey24

•11 years ago

9 Replies

Dermatologists and vasculitis

The Dermatologists at the hospital I attend have told me that - although a skin biopsy shows I have vasculitis - I don't have vasculitis. I am confused. They...

The Dermatologists at the hospital I attend have told me that - although a skin ...

ouscribe

•11 years ago

2 Replies

2014 vasculitis diary????

Hi all, I am looking to buy presents for friends and family and this year i decided that ii wanted to buy something on behalf of a cause aswell as a...

Hi all, I am looking to buy presents for friends and family and this year i deci...

rrahman

•11 years ago

8 Replies

New Link on the Vasculitis UK website . Vasculitis and the Dental Team. Written by John Mills.

Follow this link to the article. VUK are very grateful to VITAL magazine for giving permission to reproduce the article....

Follow this link to the article. VUK are very grateful to VITAL magazine for giv...

Suzym2u

Moderator•11 years ago

4 Replies

Wegeners in children

I am currently staying in hospital with my 13 year old daughter following her being diagnosed with wegeners disease. I came across this site as I searched the...

I am currently staying in hospital with my 13 year old daughter following her be...

Bailey24

•11 years ago

8 Replies

Had my 6 infusions of cyclo and 10 days later having really bad side affects as well as being tired have heart palpitations ended up A&E

Anyone else suffering same sort of problems?

shella

•11 years ago

2 Replies

VITAL Magazine ( for all the Dental Team)

It was a great privilege to be invited by the editor of VITAL Magazine ( for all the dental team) to write an article about oral manifestations of Vasculitis &...

It was a great privilege to be invited by the editor of VITAL Magazine ( for all...

John_Mills

Volunteer•11 years ago

7 Replies

Vasculitis Support Group Meetings and lunches for September and October

Please follow the links for more information West Country Vasculitis Support Group lunch http://www.vasculitis.org.uk/events/west-country-lunch-sept-2013 East...

Please follow the links for more information West Country Vasculitis Support Gr...

John_Mills

Volunteer•11 years ago

Be the first to reply

Hello, Fellow pioneers in rare disease. I have had GPA for 6 years, I have now been diagnosed with Fibromyalgia. Any one else had similar.

Theresak

•11 years ago

6 Replies

Inconclusive biopsy

Had a nasal biopsy and after this horrible experience it came back inconclusive. They want to do it again. Anyone experience is?

Had a nasal biopsy and after this horrible experience it came back inconclusive....

dskizs

•11 years ago

7 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for September 2013

Flu vaccination and Rituximab

Northamptonshire Telegraph yesterday 'A group of friends have pulled together to make a bakery recipe book in memory of their friend'

i have wegeners granulomatosis vasculitis, renal failure and go to dialysis 3 times a week. does anybody claim incapacity benefit

I am very confused I was diagnosed with vasculitis about 3 years ago after many tests and a nerve and muscle biopsy.

The aches in shoulders legs etc have started again after 6 cyclo infusions should i take painkillers or wait to see doc about more steroids?

The London Vasculitis Support Group October meeting Sunday 20th October

Flu Vaccinations

Is there anyone in the Harpenden area , herts with a vasculitic peripheral neuropathy ? Or any local support groups or chat for help ?

Vitamin C

Do other vascultis sufferers get AF or palpitations and if so, do you feel it is connected?

Barry Norman is on This Morning. Think his going to talk about his wife's illness, which I think is Vasculitis

Peripheral vasculitis? does anyone know about it or have it themselves?

Is there a support group in Suffolk, if not is anyone interested?

Something of interest from Twitter this morning

Another day another dollar

East Midlands Vasculitis Support Group Meeting October 5th 2013 at 1.30pm.

Can anybody simplify the anca test. ?

Merseyside Cheshire & North Wales VSG- change of date to Monday 4th November

Info please: wondering about my "tissue bleeds"

West Yorkshire Support Group

Sickness following cyclophosphamide

Dermatologists and vasculitis

2014 vasculitis diary????

New Link on the Vasculitis UK website . Vasculitis and the Dental Team. Written by John Mills.

Wegeners in children

Had my 6 infusions of cyclo and 10 days later having really bad side affects as well as being tired have heart palpitations ended up A&E

VITAL Magazine ( for all the Dental Team)

Vasculitis Support Group Meetings and lunches for September and October

Hello, Fellow pioneers in rare disease. I have had GPA for 6 years, I have now been diagnosed with Fibromyalgia. Any one else had similar.

Inconclusive biopsy

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