Posts - Vasculitis UK | HealthUnlocked

my name is Jill and it’s been along while since I’ve posted anything. I was diagnosed in 1999. Aged 39. Despite being very unwell for months and being...

Hi everyone and Happy New Year

my name is Jill and it’s been along while since I’ve posted anything. I was d...

Essex-jill

•4 months ago

6 Replies

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Isolated

I originally had an Ent appointment . Then all of a sudden I have an autoimmune disease and multiple tests and treatments. I'm on steroids that gave immediate...

I originally had an Ent appointment . Then all of a sudden I have an autoimmune ...

Ellamaye

•8 months ago

38 Replies

Reactions to latest vaccines

Has anyone had any bad reactions to the latest modified Pfizer Covid Vaccine? The only one of the 4 vaccines I've had that i didn't suffer really bad...

Has anyone had any bad reactions to the latest modified Pfizer Covid Vaccine? ...

Oldharry

•2 years ago

12 Replies

All about steroids

On the V-UK Facebook site there has been lots of discussion about Prednisolone and steroid reduction. Just a reminder that there is an excellent PDF containing...

On the V-UK Facebook site there has been lots of discussion about Prednisolone a...

PatriciaAnn

•10 years ago

Jacqui Moran (one the of the V-UK Trustees) has opened a Facebook page which contains music to relax to, to meditate with or just to chill. You will find the...

Relaxation and meditation music

Jacqui Moran (one the of the V-UK Trustees) has opened a Facebook page which con...

PatriciaAnn

•10 years ago

1 Reply

York Support Group Meeting

Great support group meeting today in York. Nice to catch up with some familiar faces :) Excellent talk by Dr Yusof from Chapel Allerton in Leeds. They're...

Great support group meeting today in York. Nice to catch up with some familiar f...

RichardE

Volunteer•10 years ago

http://www.benefitsandwork.co.uk/news/2384-30-september-2013-newsletter

Latest Benefits and Work newsletter 30th September 2013

Moderator•11 years ago

Clare Grossman was 38, when she was diagnosed with WG in July 2010. Sadly she passed away on New Year's Eve 2010 leaving her husband Richard and two children...

Team Clare continues this weekend.

Clare Grossman was 38, when she was diagnosed with WG in July 2010. Sadly she pa...

Moderator•11 years ago

All Ireland Vasculitis Conference If you live in Ireland then there is no excuse, you have your own Vasculitis Support from Vasculitis Awareness Ireland....

All Ireland Vasculitis Conference October 12th/13th

All Ireland Vasculitis Conference If you live in Ireland then there is no excu...

Moderator•11 years ago

There will be two speakers at this meeting. Both speakers are experts in the vasculitis field so this promises to be an excellent afternoon: Dr David...

West Midlands Vasculitis Support Group Meeting 13th October .

There will be two speakers at this meeting. Both speakers are experts in the vas...

Moderator•11 years ago

The group produced the book after they were inspired by their friend Debbie Gregson’s love of home baking. Mrs Gregson died in January, aged 49, after...

Northamptonshire Telegraph yesterday 'A group of friends have pulled together to make a bakery recipe book in memory of their friend'

The group produced the book after they were inspired by their friend Debbie Greg...

Chinese man has new nose grown on his FOREHEAD to replace the original which was damaged in a car crash Read more:...

Moderator•11 years ago

1 Reply

Something of interest from Twitter this morning

Chinese man has new nose grown on his FOREHEAD to replace the original which was...

Moderator•11 years ago

Please join Dorothy, Lisa, Susan and John for the East Midlands Vasculitis Support group Meeting. Please let Dorothy or Lisa know if you will be attending....

East Midlands Vasculitis Support Group Meeting October 5th 2013 at 1.30pm.

Please join Dorothy, Lisa, Susan and John for the East Midlands Vasculitis Supp...

Follow this link to the article. VUK are very grateful to VITAL magazine for giving permission to reproduce the article....

Moderator•11 years ago

4 Replies

New Link on the Vasculitis UK website . Vasculitis and the Dental Team. Written by John Mills.

Follow this link to the article. VUK are very grateful to VITAL magazine for giv...

This will be an informal support group meeting lunch which is being organised by Jenny on behalf of Jackie who is standing down....

Moderator•11 years ago

4 Replies

Date for your Diary for the New Year, if you have Vasculitis and live in South Wales or are able to travel to Cardiff!

This will be an informal support group meeting lunch which is being organised b...

John_Mills

Volunteer•11 years ago

Vasculitis UK was the only patient organisation that made a submission to the SMC supporting the application and we are very pleased that patients in Scotland...

Scottish Medicines Consortium Approve Rituximab

Vasculitis UK was the only patient organisation that made a submission to the SM...

Moderator•11 years ago

As South West Yorkshire NHS plan to transform services they want to know what you think about their themes....

A small survey regarding transforming services in South West Yorkshire if anyone is interested in taking part.

As South West Yorkshire NHS plan to transform services they want to know what yo...

Moderator•11 years ago

Has anyone had spleen involvement with their Vasculitis?

http://www.bbc.co.uk/news/uk-wales-24032031#?utm_source=twitterfeed&utm_medium=twitter

Moderator•11 years ago

6 Replies

Organ donation: Presumed consent to start in December 2015 in Wales (BBC News)

http://www.bbc.co.uk/news/uk-wales-24032031#?utm_source=twitterfeed&utm_medium=t...

Moderator•11 years ago

Thirteen charities and organisations including Vasculitis UK have signed an open letter pressing for vital medical funding in Wales for drugs which improve...

More than a dozen charities and organisations, including Vasculitis UK are challenging the Welsh Assembly.

Thirteen charities and organisations including Vasculitis UK have signed an open...

Moderator•11 years ago

In less than four weeks it will be the Great Scottish Mini Run - 6th October 2013 Super Saturday will see Kendall running with other children aged 3 to 5....

Kendall Aged 3 raises funds for Vasculitis UK

In less than four weeks it will be the Great Scottish Mini Run - 6th October 201...

Moderator•11 years ago

A two day conference - the All Ireland Conference - will be held on 12th/13th October at the Royal Marine Hotel, Dun Laoghaire. This was a tremendous success...

All Ireland Vasculitis Conference October 2013

A two day conference - the All Ireland Conference - will be held on 12th/13th Oc...

Moderator•11 years ago

If you are in any of these areas this weekend please take a moment to cheer some of VUK's fundraisers on. Amy and Craig are in Bridgewater Dave is in Henley...

Four fundraising events for Vasculitis UK this weekend. Please give them a cheer if they are in your area.

If you are in any of these areas this weekend please take a moment to cheer some...

Moderator•11 years ago

There has been a growing demand for a support group for the younger generation of Vasculitis sufferers so that they can talk about their experiences with...

Young Vasculitis UK closed group on face book

There has been a growing demand for a support group for the younger generation o...

Interesting article from the BBC this morning on Twitter regarding Rare Diseases in the UK. http://www.bbc.co.uk/news/health-23930267

Moderator•11 years ago

14 Replies

Call for rare conditions drugs fund

Interesting article from the BBC this morning on Twitter regarding Rare Diseases...

John_Mills

Volunteer•11 years ago

Don't forget the Belfast meeting of Vasculitis Awareness Ireland will be held on Saturday 7th September at the Gortland Room, St Dorothea's Church, Gilnahirk...

Vasculitis Awareness Ireland - Belfast meeting September 2013

Don't forget the Belfast meeting of Vasculitis Awareness Ireland will be held on...

John_Mills

Volunteer•11 years ago

http://www.independent.co.uk/life-style/health-and-families/health-news/gps-charge-disabled-up-to-130-to-appeal-fitnesstowork-decisions-8785041.html

Has anyone come across any evidence of this please? GP's charging up to £130 for evidence for appeals for Benefits?

http://www.independent.co.uk/life-style/health-and-families/health-news/gps-char...

John was in Wales on Tuesday giving a presentation, to the "All Wales Medicines Strategy Group" It was a very good and thorough meeting and those present were...

Moderator•11 years ago

5 Replies

John Mills as Chairman of VUK and Trustee of Rare Diseases UK was in Wales on Tuesday.

John was in Wales on Tuesday giving a presentation, to the "All Wales Medicines ...

Moderator•11 years ago