Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,779 members • 6,751 posts

All posts for October 2020

Herbal teas

Hi there I was wondering if anyone has been given advice about herbal teas such as liquorice root and valerian and nettle tea 🍵 Thank you in advance. Best...

Hi there I was wondering if anyone has been given advice about herbal teas such ...

•3 years ago

Cecily will be performing live on YouTube this Wednesday

Cecily Redman will be performing live on Youtube for her birthday, this Wednesday, 28th October, from 7.30pm. Fundraising for #VasculitisUK Cecily has a type...

Cecily Redman will be performing live on Youtube for her birthday, this Wednesda...

Volunteer•4 years ago

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Your help is needed please

Is any member in the group recovering from a diagnosis of COVID19 but also lives in Scotland. Please could you write to John Mills John.mills@vasculitis.org.uk...

Is any member in the group recovering from a diagnosis of COVID19 but also lives...

Volunteer•4 years ago

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Extreme fatigue- reducing steroids .

Hi hope everyone is keeping safe. Looking for some advice (again) . OH had RTX 7 weeks ago and has been reducing his prednisone and increasing his MMF . He...

Hi hope everyone is keeping safe. Looking for some advice (again) . OH had RTX ...

•4 years ago

ANCA +ve not specific to Vasculitis?

Hi, I recently was seen by a rheumatologist for increasing symptoms which include right sided chest pain and increasing cough, formation of a Christmas Tree...

Hi, I recently was seen by a rheumatologist for increasing symptoms which includ...

•4 years ago

Ergonomic computer mice

I’ve got a very multiple sclerosis form of cerebral/CNS vasculitis in terms of day to day symptoms. Fell ill 1994 aged 22, diagnosed in late 1997. Fortunately...

I’ve got a very multiple sclerosis form of cerebral/CNS vasculitis in terms of d...

Volunteer•4 years ago

Pulmonary Rehabilitation

I have GPA [5 yrs] and my specialist referred me to the Pulmonary team to see if they could help with my breathlessness, and I promised to report back here to...

I have GPA [5 yrs] and my specialist referred me to the Pulmonary team to see if...

•4 years ago

Common Cold with Low Immune System

I have had Cyclophosphamide and currently on Azathioprine and for the first time in 11 months caught a cold. What happens? is it different? More severe? Just...

I have had Cyclophosphamide and currently on Azathioprine and for the first time...

•4 years ago

Flu vaccine and shielding household members

Just a heads up to alert folk that at least in England and Scotland household other members of shielding households are supposed to be able to get the flu...

Just a heads up to alert folk that at least in England and Scotland household ot...

Volunteer•4 years ago

Retuximab.

Hi ,I think the disposable masks may be easier to tolerate.Remember to drink plenty of water before you go and also during your infusion.Take 2 paracetamol...

Hi ,I think the disposable masks may be easier to tolerate.Remember to drink ple...

•4 years ago

Rituximab and PPE

Hello... I’m due to start my first infusion of Rituximab on 20th at Addenbrookes. This great forum has answered many of my questions around this treatment with...

Hello... I’m due to start my first infusion of Rituximab on 20th at Addenbrookes...

•4 years ago

Improvement following Rituxamab

Hi 5 weeks ago my OH had the first of 2 RTX infusions following a relapse of GPA . He is now reducing his steroids now on 15 mgs and increasing MMF now on 1000...

Hi 5 weeks ago my OH had the first of 2 RTX infusions following a relapse of GPA...

•4 years ago