Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for January 2013

Patients urged to give feedback on Sheffield hospitals

http://www.thestar.co.uk/community/patients-urged-to-give-feedback-on-sheffield-hospitals-1-5365201?utm_medium=twitter&utm_source=twitterfeed

http://www.thestar.co.uk/community/patients-urged-to-give-feedback-on-sheffield-...

John_Mills

Volunteer•12 years ago

1 Reply

Important Change Made to PIP Regulations blog passed on from another site.

Important Change Made to PIP Regulations - Thanks Select Committee for Making DWP see sense! Last week at a sitting of the Work & Pensions Select Committee...

Important Change Made to PIP Regulations - Thanks Select Committee for Making DW...

hamble99b

Volunteer•12 years ago

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Does anyone else have a problem with fluorescent lighting?

Hello All I have for a long time noticed that the type of fluorescent lighting in shops and hospitals instantly makes me dizzy, I notice it as soon as I...

Hello All I have for a long time noticed that the type of fluorescent lightin...

Galaxy2

•12 years ago

8 Replies

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Dorothy Logue is a talented poet who also happens to have rheumatoid arthritis –Dorothy has written this poem ...

‘Everything she says could just as easily be applied to a patient with Vasculitis.... Arth-rit-is-is- not-right’ I am not my usual self, for days I’ve...

‘Everything she says could just as easily be applied to a patient with Vasculiti...

John_Mills

Volunteer•12 years ago

1 Reply

John Mills explaining Vasculitis on the BBC website

Please share this interview with family friends doctors or consultants. It does explain what Vasculitis is very well. It is the second item down, look for the...

Please share this interview with family friends doctors or consultants. It does ...

John_Mills

Volunteer•12 years ago

3 Replies

Daily Record Jan 2013 "Fury as benefits bullies DWP force 50,000 disabled Scots to go back to work"

LABOUR MP Tom Greatrex and disability campaigners hit out after an astonishing 70 per cent of people put through Atos’s tests were passed as being fit or...

LABOUR MP Tom Greatrex and disability campaigners hit out after an astonishing 7...

John_Mills

Volunteer•12 years ago

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Radio 4 29th January 2013 PIP (Personal Independence Payments)

PIP (Personal Independence Payments) Duration: 20 minutes First broadcast:Tuesday 29 January 2013 MInister for Disabled People Esther McVey answers...

PIP (Personal Independence Payments) Duration: 20 minutes First broadcast:Tu...

John_Mills

Volunteer•12 years ago

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Housing and Council Tax Benefits

If you are on a low income you may be able to get help with paying for your rent and your council tax. The Vasculitis UK website has been updated with some...

If you are on a low income you may be able to get help with paying for your rent...

PatriciaAnn

•12 years ago

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Vasculitis Support Group Meetings for 2013...

Please check out all the Vasculitis Support Group meetings in your area for 2013 to date. there will be other Vasculitis Support Group Meetings added to the...

Please check out all the Vasculitis Support Group meetings in your area for 2013...

John_Mills

Volunteer•12 years ago

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Have just been commenced on mycophenolate for large cell arteritis has anyone found any side effects with drug also reducing prednisolone??

Hidden

•12 years ago

10 Replies

Ladies who Leap-Bungy Jumping 16th June 2013

Aimee and her friend Eleanor are doing a Bungy jump on the 16th May. It is not an activity for the faint hearted. Bungy jumping started in New Zealand and...

Aimee and her friend Eleanor are doing a Bungy jump on the 16th May. It is not a...

Jann

•12 years ago

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Remission

Had the fabulous news that after 3 months of normal blood test results I'm now in remission. Cyclophosphamide treatment is being replaced with azathioprine. I...

Had the fabulous news that after 3 months of normal blood test results I'm now i...

Wellsie

•12 years ago

8 Replies

Re the virus programme on BBC 2 last night. It was supposed to include the whole of the UK but it didnt mention Scotland once?

Ferry

•12 years ago

3 Replies

BBC 2 Winter Virus Programme tonight features Mr Guri Sandhu ENT in London

Mr Sandhu was the ENT testing people's noses and airways for colds with a flexiscope (which I remember well). Mr Sandhu is a WG expert and is responsible for...

Mr Sandhu was the ENT testing people's noses and airways for colds with a flexis...

SusanCh

•12 years ago

3 Replies

monday BBC1 don't miss it

THE GREAT DISABILITY SWINDLE

hamble99b

Volunteer•12 years ago

1 Reply

Rituxamab and Churg Strauss Syndrome

Does anyone take Rituxamab for Churg Strauss Syndrome? If so, does it matter if you are ANCA negative/positive? I've heard good things about it, so would...

Does anyone take Rituxamab for Churg Strauss Syndrome? If so, does it matter ...

HiveMind

•12 years ago

3 Replies

Does anyone have any advice for me?

I have CSS (diagnosed in 2008). I also have, heart failure, asthma and Bronchiectasis (progressive lung damage); all due to the CSS. You can imagine the...

I have CSS (diagnosed in 2008). I also have, heart failure, asthma and Bronchie...

HiveMind

•12 years ago

6 Replies

Vasculitis and Sjogrens

Anyone out there suffer from Sjogrens's and vasculitis. I am on Methotrexate and Prednisone. I am in remission at the moment. Has anyone managed to come off...

Anyone out there suffer from Sjogrens's and vasculitis. I am on Methotrexate an...

Sjogy

•12 years ago

9 Replies

Greetings fellow adventurers, I`m a little worried about a medication I`ve just started taking, Olmetec 10 mg,

as well as being a blood pressure medication, I`m being given it for one of it`s side affects. Initially it lowers kidney function, faster than natural ageing,...

as well as being a blood pressure medication, I`m being given it for one of it`s...

Tony-LakeDistrict

•12 years ago

7 Replies

Has anyone had difficulties coming off Prednisolone because your body has lost its ability to make its own steroids?

Having a diagnosis of WG I was on Prednisolone, 40 mgs a day, from early 2011 with gradual tapering to 5 mgs a day by Feb 2012. I have remained at that level...

Having a diagnosis of WG I was on Prednisolone, 40 mgs a day, from early 2011 wi...

Budapest

•12 years ago

16 Replies

January e-newsletter 2013

Thought I would share my Vasculitis uk e-newsletter http://dmtrk.com/QLW-17JAP-803MZBJ67A/cr.aspx

Thought I would share my Vasculitis uk e-newsletter http://dmtrk.com/QLW-17JAP-...

John_Mills

Volunteer•12 years ago

1 Reply

Provisional diagnosis of Vasculitis

On the 2nd Jan 2013, I experienced reduction of vision in my left eye, after having a CT, MRI & LP there was a positive PANCA result with High MPO antibody...

On the 2nd Jan 2013, I experienced reduction of vision in my left eye, after hav...

Sima1952

•12 years ago

8 Replies

I have WG with kidney damge, I've just come out of hosp having shingles in my ear, this also caused Bells Palsy.

The shingles has cleared but they say the after effects ( pain & dizzyness) could last for months. Also the Bells Palsy they think should get better but cannot...

The shingles has cleared but they say the after effects ( pain & dizzyness) coul...

fillyhome

•12 years ago

4 Replies

Lincolnshire Vasculitis Support Group Meeting 30th March 2012

Lincolnshire Vasculitis Support Group meeting, Saturday 30th March 2013. The next meeting will take place at the Thorold Arms, High Street, Harmston,...

Lincolnshire Vasculitis Support Group meeting, Saturday 30th March 2013. ...

John_Mills

Volunteer•12 years ago

Be the first to reply

does anyone know what the cost of an annual injection for osteoporosis is?

Gabriella

•12 years ago

1 Reply

My friend has had a kidney infection and has been diagnosed with Vasculitis. She has developed red spots on her body.

Hi just on here looking for some more info on vasculitis. My friend has had a kidney infection and has now developed large red spots all over her body. She...

Hi just on here looking for some more info on vasculitis. My friend has had a k...

Cher50

•12 years ago

10 Replies

A three dog story

Eighteen months ago our Labrador was diagnosed with an autoimmune disease. She was treated with IV steroids then switched to twice weekly injections. She is...

Eighteen months ago our Labrador was diagnosed with an autoimmune disease. She w...

BronteM

•12 years ago

11 Replies

South East London/ North West Kent Vasculitis Support Group Meeting February 23rd 2013.

The next meeting was to be held on Saturday 23rd February 2013 9.30am at the Hurst Community Centre, Hurst Place, Hurst Road, Bexley, Kent, DA5 3LH. ....

The next meeting was to be held on Saturday 23rd February 2013 9.30am at the Hur...

John_Mills

Volunteer•12 years ago

7 Replies

I have MPA and kidney failure. Does anyone know of a good travel insurance company as I'm going to S. Ireland in August?

karen-jane

•12 years ago

10 Replies

Does anyone in the Portsmouth area have wg

I would like to chat to someone in the Portsmouth area that has WG love to hear from you ??

I would like to chat to someone in the Portsmouth area that has WG love to hear ...

Louisexx

•12 years ago

6 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for January 2013

Patients urged to give feedback on Sheffield hospitals

Important Change Made to PIP Regulations blog passed on from another site.

Does anyone else have a problem with fluorescent lighting?

Dorothy Logue is a talented poet who also happens to have rheumatoid arthritis –Dorothy has written this poem ...

John Mills explaining Vasculitis on the BBC website

Daily Record Jan 2013 "Fury as benefits bullies DWP force 50,000 disabled Scots to go back to work"

Radio 4 29th January 2013 PIP (Personal Independence Payments)

Housing and Council Tax Benefits

Vasculitis Support Group Meetings for 2013...

Have just been commenced on mycophenolate for large cell arteritis has anyone found any side effects with drug also reducing prednisolone??

Ladies who Leap-Bungy Jumping 16th June 2013

Remission

Re the virus programme on BBC 2 last night. It was supposed to include the whole of the UK but it didnt mention Scotland once?

BBC 2 Winter Virus Programme tonight features Mr Guri Sandhu ENT in London

monday BBC1 don't miss it

Rituxamab and Churg Strauss Syndrome

Does anyone have any advice for me?

Vasculitis and Sjogrens

Greetings fellow adventurers, I`m a little worried about a medication I`ve just started taking, Olmetec 10 mg,

Has anyone had difficulties coming off Prednisolone because your body has lost its ability to make its own steroids?

January e-newsletter 2013

Provisional diagnosis of Vasculitis

I have WG with kidney damge, I've just come out of hosp having shingles in my ear, this also caused Bells Palsy.

Lincolnshire Vasculitis Support Group Meeting 30th March 2012

does anyone know what the cost of an annual injection for osteoporosis is?

My friend has had a kidney infection and has been diagnosed with Vasculitis. She has developed red spots on her body.

A three dog story

South East London/ North West Kent Vasculitis Support Group Meeting February 23rd 2013.

I have MPA and kidney failure. Does anyone know of a good travel insurance company as I'm going to S. Ireland in August?

Does anyone in the Portsmouth area have wg

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