Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,937 members•6,968 posts

All posts for December 2015

Hyposensitivityvasculitis

My first post Happy new year to everyone. I've now had my hyposensitivityvasculitis since October and the only treatment that has helped me is from my lovely...

My first post Happy new year to everyone. I've now had my hyposensitivityvasculi...

patsywhitlock

•9 years ago

3 Replies

whats wrong?

I have had lots of blood tests that are out of normal range or positive. I have been pushed from piller to post and seen haematologist, kidney specialist, and...

I have had lots of blood tests that are out of normal range or positive. I have ...

vix66

•9 years ago

4 Replies

Vitamin D and vasculitis

During the last few days a number of newspapers have reported a study which suggests that Vitamin D may be helpful in the treatment of MS. For example the...

During the last few days a number of newspapers have reported a study which sugg...

MAC12

•9 years ago

12 Replies

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Predmisalone

Hi I have been on pred for around 2 years now and for most of that I have been on 18mg a day . I started on 30mg and reduced to 17 but then my mg started to...

Hi I have been on pred for around 2 years now and for most of that I have been o...

Jane1869

•9 years ago

11 Replies

Mri results breakdown....help?

Hi everyone, I haven't posted on here for a while. I lost my job due to my health and am pretty low. It's a hard pill to swallow at 29! My symptoms still...

Hi everyone, I haven't posted on here for a while. I lost my job due to my heal...

cocobella

•9 years ago

1 Reply

Increased intolerance to Methotrexate

Hi everyone, I'm just after some advice / experiences from people about intolerance to Methotrexate and what they were switched to (if it happened)....

Hi everyone, I'm just after some advice / experiences from people about intoler...

PCAD

•9 years ago

5 Replies

Vasculitis

Hi there, I have had a sore throat for about 7 months, kidney pain, swollen calves and pain in my left side under my ribs and pain going down my left lag...

Hi there, I have had a sore throat for about 7 months, kidney pain, swollen ca...

Suzywhizzo

•9 years ago

4 Replies

Great day

Had a fab day today with my boys 8 and 13 we went to see the new Star Wars film, I saw the first one when I was 8, we were all so excited booked IMAX 3D well...

Had a fab day today with my boys 8 and 13 we went to see the new Star Wars film,...

Garyork

•9 years ago

7 Replies

Blood tests match how I feel......

I have felt ill for a while, pain in muscles & joints been gradually getting worse & breathing more laboured. Had blood tests which were normal. Developed...

I have felt ill for a while, pain in muscles & joints been gradually getting wor...

AllyGY2013

•9 years ago

2 Replies

Be Carful everyone

Dear all, Please do be very, very, and I WILL say VERY carful, of all the 'scams' around at the moment. If you are not sure DON'T 'open' it! Far better to...

Dear all, Please do be very, very, and I WILL say VERY carful, of all the 'scam...

AndrewT

•9 years ago

1 Reply

My son is 16 and diagnosed with cns vasculitis

Took my son into Er on dec. 15 and they originally stated he had a stroke then couple hours later stated vasculitis. He had been in to see doctor a couple...

Took my son into Er on dec. 15 and they originally stated he had a stroke then c...

Bear67

•9 years ago

1 Reply

CHRISTMAS

I would just like to wish you all a very Happy Christmas and i hope everything you wish for in 2016 comes true.Cheers Val.xx

I would just like to wish you all a very Happy Christmas and i hope everything y...

Hidden

•9 years ago

2 Replies

Sciatica??

Husband has GPA (Wegener's) which is just about going into remission with 3rd session of Rituximab on 30 Dec. Prednisilone is now down to 7mg per day. All good...

Husband has GPA (Wegener's) which is just about going into remission with 3rd se...

Nadine99

•9 years ago

8 Replies

Ongoing chest problems

I was diagnosed 17 years ago with WG. I have 6 monthly infusions of Rituiximab at Addenbrookes. I developed a chest infection 2 weeks prior to the infusion...

I was diagnosed 17 years ago with WG. I have 6 monthly infusions of Rituiximab a...

Essex-jill

•9 years ago

8 Replies

Some important information regarding Mycophenolate Mofetil and Pregnancy.

This information was released today by the Department of Health - please follow this link....

This information was released today by the Department of Health - please follow ...

Suzym2u

Moderator•9 years ago

5 Replies

South Wales Vasculitis Support Group Meeting January 23rd 2016

Emma Hughes from Genetic Alliance UK will going along to talk about the Rare Disease Network and how it will affect those diagnosed with a rare disease in...

Emma Hughes from Genetic Alliance UK will going along to talk about the Rare Dis...

Suzym2u

Moderator•9 years ago

1 Reply

Cambridge Vasculitis Support Group Meeting January 23rd 2016

Dr Natasha Jordan, Consultant in Rheumatology and Vasculitis at Addenbrookes Hospital in Cambridge will be there to speak on her work with the Vasculitis Team....

Dr Natasha Jordan, Consultant in Rheumatology and Vasculitis at Addenbrookes Hos...

Suzym2u

Moderator•9 years ago

1 Reply

This Father Christmas is a little fatigued :-)

This Father Christmas aka John Mills, having a quick nap - after seeing and talking to over 250 children in the last two weeks plus fundraising for Vasculitis...

This Father Christmas aka John Mills, having a quick nap - after seeing and talk...

Suzym2u

Moderator•9 years ago

6 Replies

Father Christmas has been raising awareness of Vasculitis UK this last month

John Mills aka Father Christmas has been in our local free newspaper for the Peak District this week, so thought I would share a photo. :-) In the photo are...

John Mills aka Father Christmas has been in our local free newspaper for the Pea...

Suzym2u

Moderator•9 years ago

4 Replies

Merry Christmas and Happy New Year 2016

Dear ALL, We have all 'made it' through another year people! Yes despite everything, maybe in spite of it, we are all still here. So be happy, proud and...

Dear ALL, We have all 'made it' through another year people! Yes despite every...

AndrewT

•9 years ago

13 Replies

Ear/head pain

I am reasonably well and am on a maintenance dose of 5mg Pred and 100mg Azaathioptine daily. I have been getting an intermittent stabbing pain around my left...

I am reasonably well and am on a maintenance dose of 5mg Pred and 100mg Azaathio...

laidbackreader

•9 years ago

14 Replies

GCA and pmr

Need some advice ! I have been on prendisone for 8 mths . I'm down to 9 ml daily . My question is Should prendisone be controlling the pain in the shoulders...

Need some advice ! I have been on prendisone for 8 mths . I'm down to 9 ml dail...

grace_888

•9 years ago

4 Replies

Renal parenchyma disease

My fiance has MPO vasculitis. He recently had a kidney biopsy and was diagnosed as having Moderate Echogenic Left Renal Parenchyma. Does anyone know what that...

My fiance has MPO vasculitis. He recently had a kidney biopsy and was diagnosed ...

Christina1960

•9 years ago

8 Replies

Michael Berry

I have twice filled out the HealthUnlocked bio and questionaire but it won't click as accepted. Perhaps I am doing something wrong. It has uploaded my photo...

I have twice filled out the HealthUnlocked bio and questionaire but it won't cli...

berrybroadoak

•9 years ago

2 Replies

EMERGENCY DECLARED CUMBRIA

We are aware we have members in this area, state of emergency since 60,000 homes are without power, they urgently need help. Can we support our members during...

We are aware we have members in this area, state of emergency since 60,000 homes...

hsp1

•9 years ago

1 Reply

Updating the info on the website for Travel Insurance

Please could those who have used Travel Insurance Companies share details of any companies they would recommend? Also, has anyone had to make a claim to a...

Please could those who have used Travel Insurance Companies share details of any...

Suzym2u

Moderator•9 years ago

11 Replies

The latest news from Benefits and Work.

http://www.benefitsandwork.co.uk/news/3206-2-december-2015-newsletter?utm_source=iContact&utm_medium=email&utm_campaign=Benefits%20and%20Work&utm_content=+v2+2+

http://www.benefitsandwork.co.uk/news/3206-2-december-2015-newsletter?utm_source...

Hidden

•9 years ago

Be the first to reply

Google Analytics for the Vasculitis UK website November 1st - 30th 2015.

Thought we might share some Google Analytics with you for the VUK website www.vasculitis.org.uk From 1st November - 30th November There have been over...

Thought we might share some Google Analytics with you for the VUK website www.va...

Suzym2u

Moderator•9 years ago

1 Reply

Debbie's Delicious Desserts, Cakes and Bakes recipe book - all proceeds to Vasculitis UK

For those who do not know about Debbie, Debbie very sadly lost her life to Vasculitis on the 24th of January 2013. She was married to Nick, and was mum to four...

For those who do not know about Debbie, Debbie very sadly lost her life to Vascu...

Suzym2u

Moderator•9 years ago

3 Replies

Anti MPO

Hello - Can anyone help with advice. I have had at least 1 blood result where the anti MPO is 131. Was told rest of bloods were normal - have various symptoms...

Hello - Can anyone help with advice. I have had at least 1 blood result where th...

maybeornot

•9 years ago

3 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for December 2015

Hyposensitivityvasculitis

whats wrong?

Vitamin D and vasculitis

Predmisalone

Mri results breakdown....help?

Increased intolerance to Methotrexate

Vasculitis

Great day

Blood tests match how I feel......

Be Carful everyone

My son is 16 and diagnosed with cns vasculitis

CHRISTMAS

Sciatica??

Ongoing chest problems

Some important information regarding Mycophenolate Mofetil and Pregnancy.

South Wales Vasculitis Support Group Meeting January 23rd 2016

Cambridge Vasculitis Support Group Meeting January 23rd 2016

This Father Christmas is a little fatigued :-)

Father Christmas has been raising awareness of Vasculitis UK this last month

Merry Christmas and Happy New Year 2016

Ear/head pain

GCA and pmr

Renal parenchyma disease

Michael Berry

EMERGENCY DECLARED CUMBRIA

Updating the info on the website for Travel Insurance

The latest news from Benefits and Work.

Google Analytics for the Vasculitis UK website November 1st - 30th 2015.

Debbie's Delicious Desserts, Cakes and Bakes recipe book - all proceeds to Vasculitis UK

Anti MPO

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