Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,941 members•6,973 posts

All posts for January 2025

Support for Rare Disease Day

Good morning all, Tomorrow is the start of the lead up to Rare Disease Day. Zoi Anastasa will be posting official content… but if you want to show your...

Good morning all, Tomorrow is the start of the lead up to Rare Disease Day. Zoi...

Administrator•2 months ago

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Hello! how are they? I am new to the disease and I still have a hard time controlling my diet, so do you have any recommendations? Thank you

•3 months ago

Sores and blisters on right leg

High everyone , I have pr3 anca positive vasculitus, (GPA)?. Am in medical remission but my lower right leg has gradually getting worse as of late with...

High everyone , I have pr3 anca positive vasculitus, (GPA)?. Am in medical remis...

•3 months ago

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newly diagnosed and very confused, any advice appreciated

hi So pleased to find this board I’m 60 and was fit and well . Last Tuesday one elbow started aching a bit and my feet were a bit sore . Wednesday morning I...

hi So pleased to find this board I’m 60 and was fit and well . Last Tuesday on...

•3 months ago

National Institute for Health and Care Excellence survey - NHS Talking Therapies

From NICE (National Institute for Health and Care Excellence) If you’ve used NHS Talking Therapies, please complete our survey, about your experience of...

From NICE (National Institute for Health and Care Excellence) If you’ve used NH...

Administrator•3 months ago

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Rituximab infusion

Hi, I’ve had 6 Rituximab infusions now and I have to say it a life saver. I think I just felt tired from the first one but after that all good. And I have my...

Hi, I’ve had 6 Rituximab infusions now and I have to say it a life saver. I thi...

•3 months ago

Rituximab

Hi. I'm new to this platform and tomorrow I have my first Rituximab infusion. I was diagnosed with Vasculitis GPA last month. I've never had any hospital...

Hi. I'm new to this platform and tomorrow I have my first Rituximab infusion. I ...

•3 months ago

Zoledronic Acid Infusion

Unable to take the prescribed drug to protect my bones from ongoing use of steroids , I received a Zoledronic Acid Infusion last Friday. I was told I might...

Unable to take the prescribed drug to protect my bones from ongoing use of ste...

•3 months ago

ANCA titer ranges

Hi, I've posted a couple of times regarding my 21-year-old daughter and had lots of helpful replies, thank you. We have finally managed to get a copy of her...

Hi, I've posted a couple of times regarding my 21-year-old daughter and had lot...

•3 months ago

Fundraising opportunity for runners

Vasculitis UK has places available for runners who would like to take part in the Great North Run on Sunday 7th September. We can offer a free place on the...

Vasculitis UK has places available for runners who would like to take part in th...

Administrator•3 months ago

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Urgent help 😢 eye uveitis

Hi I have Iga Vasculitis and iv had problems with my eye for a few mo this.The optometrist seen me at home and said I have an ulcer and uveitis in tight eye....

Hi I have Iga Vasculitis and iv had problems with my eye for a few mo this.The o...

•3 months ago

Survey

Important! Vasculitis, rheumatology and other autoimmune diseases patient survey from the University of Cambridge. Thank you to those who have already...

Important! Vasculitis, rheumatology and other autoimmune diseases patient surve...

Administrator•3 months ago

Who should I request a referral to?

Hi everyone, I'm not yet diagnosed, and looking for advice in getting a diagnosis. Last month I had a positive c-anca test (but nothing else of concern in my...

Hi everyone, I'm not yet diagnosed, and looking for advice in getting a diagnos...

•3 months ago

Dentist and vasculitis

Hi looking for advice. I am currently waiting on confirmed diagnosis of anca vasculitis but based on my symptoms and anti-mpo test it looks like I have it....

Hi looking for advice. I am currently waiting on confirmed diagnosis of anca ...

•3 months ago

Headaches - is ANCA Coming Back

Happy New Year to everybody hope you all stay well this year now I need some advice. So I had my bloods done 6 weeks ago, my ANCA marker was really low and...

Happy New Year to everybody hope you all stay well this year now I need some adv...

•3 months ago