Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,780 members • 6,752 posts

All posts for May 2023

Giving Up a Job due to Health?

Hi All I'm interested to see if anyone has been in this situation and can offer any input. So I've been pretty unwell for some time and had to take alot of...

Hi All I'm interested to see if anyone has been in this situation and can offer...

•11 months ago

Spring Covid 'Jab' Ten Out Of Ten.

Dear All, Today I had my Latest Covid 'Booster', I think about Seven so far, at a local 'Free' Church- of all places. Very Well 'organised' indeed😀, waiting...

Dear All, Today I had my Latest Covid 'Booster', I think about Seven so far, at...

•11 months ago

Newly diagnosed GPA without renal involvement. Sorry it’s long.

In March I went to a new rheumatologist at a world famous teaching hospital. He is co-director of the vasculitis program and quite expert. It took persistence...

In March I went to a new rheumatologist at a world famous teaching hospital. He ...

•11 months ago

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Red spots

Hi all Still new to this DX 4 months ago after multiple skin rashes etc , treatment oral steroids and antihistamines which work ,so far 2 x 10 day course of 6...

Hi all Still new to this DX 4 months ago after multiple skin rashes etc , treatm...

•11 months ago

Relapse vs flare

Hi, I have GPA. Two years ago I reached remission with rituximab prednisone and now on azathioprine. I've been feeling not quite right for a little and have...

Hi, I have GPA. Two years ago I reached remission with rituximab prednisone and ...

•11 months ago

ANCA question

I think my GP is suspecting I have vasculitis or lupus. I wrote a really long message but thought I'd keep it succinct. My question is, do the labs in the...

I think my GP is suspecting I have vasculitis or lupus. I wrote a really long me...

•1 year ago

Is there always a rash with vasculitis?

Hood morning everyone and thank you so much for your support so far. I’m still investigating how to try and get my my tested for vasculitis. She has a...

Hood morning everyone and thank you so much for your support so far. I’m still ...

•1 year ago

Antihistamines

Hi all again thanks to everyone who replied to my recent post about steroids. Now my question is about the use of antihistamines,at present my dermatologist...

Hi all again thanks to everyone who replied to my recent post about steroids. No...

•1 year ago

Oral steroids

Hi I'm still new to vasculitis DX 3 months ago at dermatology NHS after persistent skin rash mainly upper body,scalp,face groin area. Original I was started on...

Hi I'm still new to vasculitis DX 3 months ago at dermatology NHS after persiste...

•1 year ago

Vasculitis UK Spring Newsletter is now available on line

via the VUK website https://www.vasculitis.org.uk/news/autumn-2021-newsletter-out-now

via the VUK website https://www.vasculitis.org.uk/news/autumn-2021-newsletter-ou...

Administrator•1 year ago

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Bronchocentric Glanulomatosis?

We have literally had to fight to get a diagnosis of bronchocentric glanulomatosis for my Mum, after 5 weeks of steroids and her literally being reduced to a...

We have literally had to fight to get a diagnosis of bronchocentric glanulomatos...

•1 year ago