Posts - Vasculitis UK | HealthUnlocked

Volunteer•11 years ago

Just for a bit of fun ! 1. Sly giggles SNICKERS 2. High class thoroughfare QUALITY STREET 3. Money making royalty MINT IMPERIALS 4. Dark occult...

fun quiz - Sweets ANSWERS

Just for a bit of fun ! 1. Sly giggles SNICKERS 2. High class thoroughf...

Volunteer•11 years ago

Will Alex beat the 2012 time of Denis Koech of Kenya in a time of 59mins 14secs when he takes part in the Berlin Half Marathon on 6th April? Maybe not, but you...

Alex Morton runs in the Berlin Half Marathon on 6th April

Will Alex beat the 2012 time of Denis Koech of Kenya in a time of 59mins 14secs ...

•11 years ago

The Harts and friends will be joining Jacqui Moran and friends to walk the Thames Path in June to raise awareness of vasculitis and funds for Vasculitis UK....

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Watch out the Harts are coming

The Harts and friends will be joining Jacqui Moran and friends to walk the Thame...

Totally unbeknown to me until yesterday, my 10yo daughter and her 2 best friends, 1 of which whose father has recently had testicular cancer, have been busy...

•11 years ago

1 Reply

A warming tale

Totally unbeknown to me until yesterday, my 10yo daughter and her 2 best friends...

Wellsie

•11 years ago

I was ill health retired from my job two years ago after continually trying to stay in my post as a social worker since my diagnosis of cerebral vasculitis...

Ill health retirement

I was ill health retired from my job two years ago after continually trying to s...

blackgolf

•11 years ago

9 Replies

Anyone with vascilitis ,on steroids, and with elevated hemoglobine.

My daughter have MPA.She had low hemoglobine but now she has high.She is on calcort and cellcept.

My daughter have MPA.She had low hemoglobine but now she has high.She is on cal...

tamidi

•11 years ago

http://www.vasculitis.org.uk/about/davids-story

David's tribute to his mum, David is 21 and was diagnosed with WG (GPA) just over 12 months ago.

they are on sale at ideal world online. they are filled with a stay cool gel, but not cold. I recommend you go & look. My friend swears by hers. I've...

Volunteer•11 years ago

1 Reply

"cool" mattress or pillow toppers

they are on sale at ideal world online. they are filled with a stay cool gel, ...

yet again. after looking online at a shopping channel's clearance. after trawling through endless slimming wear, the next pic was this... I'll tell you...

Volunteer•11 years ago

7 Replies

silly me :)

yet again. after looking online at a shopping channel's clearance. after tra...

I was diagnosed with Churg Strauss last year.Feel that I have been on a roller coaster.have not had a well day for over a year.what can I expect.

Volunteer•11 years ago

4 Replies

Churg Strauss

I was diagnosed with Churg Strauss last year.Feel that I have been on a roller c...

Lync

•11 years ago

I was chatting on the phone yesterday and commenting that it was snowing earlier that morning - " I looked out and saw lots of snow fluffies." it took me...

new word for snow!

I was chatting on the phone yesterday and commenting that it was snowing earlier...

On 22 June Jacqui Moran and friends will be walking from the Albert Bridge to the iconic Tower Bridge as part of the "Walk for Life" project. The walk will...

Volunteer•11 years ago

6 Replies

THAMES RIVER PATH WALK

On 22 June Jacqui Moran and friends will be walking from the Albert Bridge to th...

You and Yours will talking about Benefit changes all week. You can also have your say on how the benefit changes will affect you by contacting the programme....

•11 years ago

6 Replies

BBC 4 Talking about Benefit Changes about half way through the programme

You and Yours will talking about Benefit changes all week. You can also have you...

Volunteer•11 years ago

So I have now been dx with a bladder infection that has tracked to my right kidney. After 6 days I had no relief in the pain in my kidney area. So went back to...

More advice needed on ongoing pain

So I have now been dx with a bladder infection that has tracked to my right kidn...

CathT

•11 years ago

9 Replies

Wilkinson staff raise thousands in aid of Weight Loss Challenger David Tyzack... David 21, has Wegener's Granulomatosis (GPA)

WILKINSON staff have raised more than £2,000, fundraising for Vasculitis UK, in aid of one of this year's weight loss challengers who suffers from a rare...

WILKINSON staff have raised more than £2,000, fundraising for Vasculitis UK, in ...

Volunteer•11 years ago

Health and Social Care Act Act now against new NHS competition regulations http://www.bmj.com/content/346/bmj.f1819

Article from the BMJ from Twitter this morning.. scroll down after all the signatures ...last 3 paragraphs are probably the most relevant

Health and Social Care Act Act now against new NHS competition regulations ...

Volunteer•11 years ago

Jackie Williams is raising funds for Vasculitis UK by entering the Wolf Run which takes place in Warwickshire on 6th April. So what is the Wolf Run? The...

WOLF RUN - Wild running for V-UK

Jackie Williams is raising funds for Vasculitis UK by entering the Wolf Run whic...

•11 years ago

We now have V UK enamel lapel pin badges for sale They are about the size of a 1p piece and have a shiny enamel finish They will be...

Lapel Pin Badges

We now have V UK enamel lapel pin badges for sale They are about the size of ...

LynneJ

Vasculitis UK•11 years ago

I enjoyed the Cambridge group meeting yesterday. My first time, so didn't know what to expect. Good to meet up with other patients, and Dr Roberts gave a very...

Cambs. group, and my nose again!

I enjoyed the Cambridge group meeting yesterday. My first time, so didn't know w...

suffolkgirl

•11 years ago

Hi everyone, Would anyone be able to suggest good diet information i should be looking at having been diagnosed with WG? I had been told to reduce protein...

Diet Suggestions for WG?

Hi everyone, Would anyone be able to suggest good diet information i should be ...

richardremorino

•11 years ago

7 Replies

Disabled people can apply for chance to go to party conferences. Are you disabled and passionate about campaigning?

This was tweeted by LCD this morning. (Susan) Leonard Cheshire Disability is offering disabled people with a passion for campaigning the chance to meet...

This was tweeted by LCD this morning. (Susan) Leonard Cheshire Disability is...

Volunteer•11 years ago

Just a quick reminder for the 2nd Yorkshire North Support Group Meeting on 21st April. We are looking forward to meeting you at the Gomersal Park Hotel,...

Yorkshire North Support Group Reminder

Just a quick reminder for the 2nd Yorkshire North Support Group Meeting on 21st ...

LynneJ

Vasculitis UK•11 years ago

Hi everyone, After all of your kind replies and a lovely chat with John Mills i have finally seen my consultant again and begun IV Prednisolone and...

Started Treatment

Hi everyone, After all of your kind replies and a lovely chat with John Mills i...

richardremorino

•11 years ago

Researchers at Nottingham's Queen Medical Centre are looking at how the worms can affect the immune system of people living with the illness. Did...

Nottingham MS researchers infect patients with hookworms People with MS are taking part in a new research trial.

Researchers at Nottingham's Queen Medical Centre are looking at how the worms ca...

Volunteer•11 years ago

Hello. New to this forum. Was diagnosed in January with microscopic vasculitis. Exact description as above. Kidney function at 15% at time of diagnosis. 8...

Pauci immune glomerulonephritis (ANCA negative) anyone?

Hello. New to this forum. Was diagnosed in January with microscopic vasculitis. ...

Swissie

•11 years ago

6 Replies

Boils

I am on pred and have boils on my arms and shoulder. Anyone else with these?

matswesslen

•11 years ago

1 Reply

yesterday's biopsy

Well I survived the nasal examination and biopsy yesterday! Was a bit sore afterwards, but not as bad as previous time. Still getting headache, but was getting...

Well I survived the nasal examination and biopsy yesterday! Was a bit sore after...

suffolkgirl

•11 years ago