Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,780 members • 6,753 posts

All posts for June 2021

Covid antibodies

I have great antibodies from my Covid vaccine. I am very immunosuppressed, getting IVIG infusions every 6 weeks. I had the finger prick test which showe no...

I have great antibodies from my Covid vaccine. I am very immunosuppressed, getti...

•3 years ago

Mycophenolate

Has anyone taken mycophenolate mofetil with rituximab. My In fusion of rituximab lasts approximately 4/5 months so it’s been decided that mycophenolate should...

Has anyone taken mycophenolate mofetil with rituximab. My In fusion of rituximab...

•3 years ago

Weight loss with Vasculitis

I can't understand why I have lost weight since having vasculitis. Yet I'm snacking between meals to try and put some weight on. Can anyone explain why this...

I can't understand why I have lost weight since having vasculitis. Yet I'm snack...

•3 years ago

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Churg Strauss

For a few months I've been getting upper tract infections nose and mild sinus problems, these clear up when I take antibiotics and steroids and then a few...

For a few months I've been getting upper tract infections nose and mild sinus pr...

•3 years ago

White blood cells

Hi, has anyone got big disparities with their total white blood count and neutraphils please. Regards the ratios. There's another white cell begins with L. But...

Hi, has anyone got big disparities with their total white blood count and neutra...

•3 years ago

Long Covid Vasculitis

Hi, I'm a newbie here. Is there anyone else out there who has vasculitis from contracting covid please. I caught covid in March and I have just been newly...

Hi, I'm a newbie here. Is there anyone else out there who has vasculitis from co...

•3 years ago

RAIRDA have launched a survey which aims to gather the views & experiences of people living in Wales with rare autoimmune rheumatic diseases

https://rairda.org/2021/06/14/rairda-launches-survey-of-patients-living-in-wales/ For those members who live in “WALES” only!! RAIRDA have launched a new...

https://rairda.org/2021/06/14/rairda-launches-survey-of-patients-living-in-wales...

Volunteer•3 years ago

IgA Vasculitis Workshop for children and parents/carers - HSP

Last day to book your place #HenochSchonleinPurpura IgA #vasculitis - Worksop for patients parents carers - #HSP

Last day to book your place #HenochSchonleinPurpura IgA #vasculitis - Worksop fo...

Volunteer•3 years ago

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A coalition of charities, including VUK has written an open letter to employers -

A coalition of charities, including #VasculitisUK has written an open letter to employers, calling for them to put protective measures in place for staff who...

A coalition of charities, including #VasculitisUK has written an open letter to ...

Volunteer•3 years ago

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Low Sodium after Rituximab Infusion

Hi all I hope you are all keeping well. I had my 6 monthly Rituximab infusion 3 weeks ago and 10 days later I got up on Bank Holiday Monday at felt really...

Hi all I hope you are all keeping well. I had my 6 monthly Rituximab infusion 3 ...

•3 years ago

Just to Lighten the 'Mood' a Quick Silly, but Cleaver Joke

What 'Smells and sounds like a bell'?.......DUNG! AndrewT

What 'Smells and sounds like a bell'?.......DUNG! AndrewT

•3 years ago

Following Rituximab, is this expected or is there cause for concern

Hi all, my GPA has flared after a few years of being stable, (damn it, was doing so well). As well as increased anca, I had pain in the joints in my fingers...

Hi all, my GPA has flared after a few years of being stable, (damn it, was doing...

•3 years ago

Up 'Late' AGAIN, so I'd thought I'd 'Post' some Good News

Dear All, I use Montmorency Cherry Capsules to help, very successfully, to Ward Off gout. I normally buy them On Line, as necessary, as 90 X 750mg capsules....

Dear All, I use Montmorency Cherry Capsules to help, very successfully, to Ward ...

•3 years ago