Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,774 members • 6,747 posts

All posts for October 2016

Hubby update. What a mess

Hi. I eventually got hubby to ask for recommended Dr at Kellgren centre. Hubby rang up. They said 18week wait for appointment. Thats too long. I have tried...

Hi. I eventually got hubby to ask for recommended Dr at Kellgren centre. Hubby r...

Footygirl

•7 years ago

5 Replies

Opinions on business idea - am I nuts?

I posted this message on a couple of other forums on HealthUnlocked so sorry if you've already seen it, I just need all the input I can get! I've had lupus...

I posted this message on a couple of other forums on HealthUnlocked so sorry if ...

Cookiecutter76

•7 years ago

6 Replies

Rituximab and prednisone

Hi everyone as anyone who has GPA been treated with Rituximab while on high dose of prednisone (40mg)i If so how did you feel for the following months? It is...

Hi everyone as anyone who has GPA been treated with Rituximab while on high dose...

102637

•7 years ago

12 Replies

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microscopic polyangiitis

Hi, I am 21 and I have been diagnosed with a microscopic polyangiitis vasculitiis since 2015. Since then I've been in remission. I would like to know, Does...

Hi, I am 21 and I have been diagnosed with a microscopic polyangiitis vasculiti...

Ytadakimas

•7 years ago

13 Replies

Can I claim ESA if I come medically unfit for work

How do you go about claiming essays if you become medically retired

Flashbang1

•7 years ago

4 Replies

Hubby update. Referral

Thanks to queueing at 8.30 am on the doorstep this morning hubby got appointment with GP. He told her his tale. Told her he had been on Vasculitis website....

Thanks to queueing at 8.30 am on the doorstep this morning hubby got appointment...

Footygirl

•7 years ago

13 Replies

Prednisone problems

I can't seem to get any doctors to help me with my symptoms. I have been on Prednisone for 6 months now and I have a lot of side effects. I look as if I am 9...

I can't seem to get any doctors to help me with my symptoms. I have been on Pred...

Cruelchic

•7 years ago

6 Replies

Vasculitis UK Autumn 2016 newsletter is now available on line via the VUK website.

Please follow this link http://www.vasculitis.org.uk/news/autumn-newsletter-2016-available

Please follow this link http://www.vasculitis.org.uk/news/autumn-newsletter-201...

Suzym2u

Moderator•7 years ago

2 Replies

Hubby secured referral to Man Roy Inf but to a dermatologist?

Hi, I wrote the other day about my hubby who had a vasculitis skin complaint, reminds me of those Great White Shark bites, from back under arm to front. It...

Hi, I wrote the other day about my hubby who had a vasculitis skin complaint, re...

Footygirl

•7 years ago

12 Replies

CSS / Vasculitis

Hi I've been diagnosed with CSS / Vasculitis and am now unable too work and I'm now in the process of trying too apply for PIP. Has anyone with the same...

Hi I've been diagnosed with CSS / Vasculitis and am now unable too work and I'...

Alanfern

•7 years ago

4 Replies

P I P Tribunal

Hi i have put in to go to tribunal for P I P and wondered if anyone else had been and if so what do i have to look out for. I havnt got my date yet but am...

Hi i have put in to go to tribunal for P I P and wondered if anyone else had bee...

SandieB

•7 years ago

3 Replies

Hello again only been diagnosed couple weeks with PSV since found out it is MPA with anca mpo ?

Taking prednisolone now reduced to 25mg and methotrexate! I still get pins n needles in hands and constant spasms of my fingers where they contort and can't...

Taking prednisolone now reduced to 25mg and methotrexate! I still get pins n nee...

lynnek2202

•7 years ago

13 Replies

Concessionary Travel Pass (Bus Pass)

I applied for a Concessionary Travel Pass, from Essex County Council, as I have a Blue Badge. I also have 'other benefits' but these were not needed. I had...

I applied for a Concessionary Travel Pass, from Essex County Council, as I have ...

AndrewT

•7 years ago

1 Reply

Methotrexate & Pred

My first dose if mtx tablets yesterday, previous 10 weeks were injections and I feel soo nauseous. Have had no sleep even though I am exhausted. No energy,...

My first dose if mtx tablets yesterday, previous 10 weeks were injections and I ...

Debba

•7 years ago

17 Replies

Vitamin D

Vitamin D has been flagged up as low on my Mums recent blood test. She gets as much sun as possible but this year has been pretty poor as we know. I think she...

Vitamin D has been flagged up as low on my Mums recent blood test. She gets as m...

luggsey

•7 years ago

16 Replies

Rheumatoid Vasculitis

My husband was diagnosed with Rheumatoid Vasculitis two years ago. I am sure he has had it longer. He was very, very poorly and hospitalised after eventually...

My husband was diagnosed with Rheumatoid Vasculitis two years ago. I am sure he...

PhoebeO

•7 years ago

2 Replies

"My Churg Strauss Story" ( EGPA ) Looking for personal stories.

We, at Vasculitis UK, would like to collect some personal stories about people's experience living with Churg Strauss ( EGPA). If you would like to share your...

We, at Vasculitis UK, would like to collect some personal stories about people's...

Suzym2u

Moderator•8 years ago

5 Replies

Coming off prednisilone

Diagnosed MPA early 2013. Done the usual run of meds. Cyclophosphamide, just finished number 19. Have had to keep reverting back to cyclophosphamide as other...

Diagnosed MPA early 2013. Done the usual run of meds. Cyclophosphamide, just fin...

cambs13

•8 years ago

16 Replies

The new BRS ROADMAP for us

I appreciate the pinned post regarding this monumental attempt to get our complex diseases better understood and more quickly diagnosed. I dont know if there...

I appreciate the pinned post regarding this monumental attempt to get our comple...

Hidden

•8 years ago

4 Replies

Hubby now given continuing Prednisolone but what else does he need please?

Hi. Ive been reading and learning a lot here. I believe my hubby has vasculitis. Sorry, bad memory. The four letter one that includes nasal polyps...

Hi. Ive been reading and learning a lot here. I believe my hubby has vasculitis....

Hidden

•8 years ago

23 Replies

Vasculitis and Peripheral Neuropathy

Hi everyone, I'm looking for some advice and experiences that Vasculitis sufferers have with Peripheral Neuropathy. Having suffered with Peripheral Neuropathy...

Hi everyone, I'm looking for some advice and experiences that Vasculitis suffere...

PCAD

•8 years ago

2 Replies

Focus on ANCA Associated Vasculitis Webinar - Thu, October 20, 2016 3:00 PM - 4:00 PM BST

For those who have an interest :- On June 23, 2016, The Annals of the Rheumatic Diseases, released the journal article: EULAR/ERA-EDTA recommendations on the...

For those who have an interest :- On June 23, 2016, The Annals of the Rheumatic...

Suzym2u

Moderator•8 years ago

2 Replies

Rituximab and Denosumab

Has anyone had Rituximab for GPA and Denosumab for osterpororis ? What I want to know is are they compatible ? Has anyone experienced side effects? I am so...

Has anyone had Rituximab for GPA and Denosumab for osterpororis ? What I want to...

102637

•8 years ago

7 Replies

As if Wegener's wasn't enough part 2

This isn't a bruise.... this is a BRUISE.

lfu2

•8 years ago

7 Replies

Immunologist

My consultant has said about going to see a immunologist and possibly a full body ct scan. I have said I would prefer a mri. My white blood cell count is 7 and...

My consultant has said about going to see a immunologist and possibly a full bod...

jan85uk

•8 years ago

3 Replies

Lupus and weganers

I have lupus,iv had 5 sinus ops,got last op in aug,had tubes stitched in to flush sinuses out for 7 days,was a specislist who done last op,however it hasnt...

I have lupus,iv had 5 sinus ops,got last op in aug,had tubes stitched in to flus...

Jeffscott69

•8 years ago

35 Replies

As if Wegener's wasn't enough

71 year old male with Wegener's. Sept 16th. 2nd infusion Rituximab. 4th cycle. As usual followed by cough... antibiotics... cough cleared. Oct 9th....

71 year old male with Wegener's. Sept 16th. 2nd infusion Rituximab. 4th cycle. ...

lfu2

•8 years ago

9 Replies

The British Society for Rheumatology 2016 Autumn Conference - Bath

The British Society for Rheumatology 2016 Autumn Conference was probably the best case presentation conference yet. John and Lynn will be giving feedback in...

The British Society for Rheumatology 2016 Autumn Conference was probably the bes...

Suzym2u

Moderator•8 years ago

1 Reply

British Society for Rheumatology 2016 Autumn Conference.

British Society Rheumatology Two Day Autumn Conference in Bath - Excellent Vasculitis Afternoon lecture led by Dr David Jayne plus fascinating and...

British Society Rheumatology Two Day Autumn Conference in Bath - Excellent Vas...

Suzym2u

Moderator•8 years ago

Be the first to reply

Exploring the Informational Needs for Vasculitis Patients and their Carers - Research Study

Vasculitis specialists Dr Richard Watts, from Ipswich Hospital and Dr Janice Mooney and research assistant Karly Graham, from the University of East Anglia are...

Vasculitis specialists Dr Richard Watts, from Ipswich Hospital and Dr Janice Moo...

Suzym2u

Moderator•8 years ago

8 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for October 2016

Hubby update. What a mess

Opinions on business idea - am I nuts?

Rituximab and prednisone

microscopic polyangiitis

Can I claim ESA if I come medically unfit for work

Hubby update. Referral

Prednisone problems

Vasculitis UK Autumn 2016 newsletter is now available on line via the VUK website.

Hubby secured referral to Man Roy Inf but to a dermatologist?

CSS / Vasculitis

P I P Tribunal

Hello again only been diagnosed couple weeks with PSV since found out it is MPA with anca mpo ?

Concessionary Travel Pass (Bus Pass)

Methotrexate & Pred

Vitamin D

Rheumatoid Vasculitis

"My Churg Strauss Story" ( EGPA ) Looking for personal stories.

Coming off prednisilone

The new BRS ROADMAP for us

Hubby now given continuing Prednisolone but what else does he need please?

Vasculitis and Peripheral Neuropathy

Focus on ANCA Associated Vasculitis Webinar - Thu, October 20, 2016 3:00 PM - 4:00 PM BST

Rituximab and Denosumab

As if Wegener's wasn't enough part 2

Immunologist

Lupus and weganers

As if Wegener's wasn't enough

The British Society for Rheumatology 2016 Autumn Conference - Bath

British Society for Rheumatology 2016 Autumn Conference.

Exploring the Informational Needs for Vasculitis Patients and their Carers - Research Study

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