Posts - Vasculitis UK | HealthUnlocked

Moderator•7 months ago

Hi everyone. I have been on methotrexate and prednisolone for nearly three years for Vasculitis GPA along with blood thinners and statins etc, was also on...

Methotrexate and Prednisolone GPA

Hi everyone. I have been on methotrexate and prednisolone for nearly three years...

Wyllow

•7 months ago

18 Replies

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May - Vasculitis Awareness Month

May - Day 30 Vasculitis Awareness Month - Large Vessel Vasculitis is rare, can be complex and can be difficult to diagnose as symptoms may confuse the...

May - Day 30 Vasculitis Awareness Month - Large Vessel Vasculitis is rare, ca...

Moderator•7 months ago

May - Day 30 Vasculitis Awareness Month Vasculitis affects both males and females and sometimes comes with symptoms that can mislead the clinicians. And that...

May - Vasculitis Awareness Month

May - Day 30 Vasculitis Awareness Month Vasculitis affects both males and fema...

Moderator•7 months ago

Last chance to share your health care experience as a patient and help us get enough data to drive a change for the benefit of patients living with Vasculitis,...

Last chance to complete the survey

Last chance to share your health care experience as a patient and help us get en...

Moderator•7 months ago

May - Day 29 Vasculitis Awareness Month Our own 'nose ambassador's' story today! The impact of the ''limited'' vasculitis in her life was certnly not...

May - Vasculitis Awareness Month

May - Day 29 Vasculitis Awareness Month Our own 'nose ambassador's' story toda...

Moderator•7 months ago

I was diagnosed with EGPA in December 2020, following intensive treatment including cyclophosphamide infusions I went into remission the following April. Since...

Hearing loss/pain/tinnitus

I was diagnosed with EGPA in December 2020, following intensive treatment includ...

MIK65

•7 months ago

12 Replies

feel so helpless#meds#scaring#things to avoid#recovery#help

I am a mother of a 20 year-old daughter who was diagnosed with IGAv/HSP In February 2024. Her first flareup was very bad, ulcerated and has left pretty bad...

I am a mother of a 20 year-old daughter who was diagnosed with IGAv/HSP In Febru...

Dizzyliddy

•7 months ago

May - Day 28 Vasculitis Awareness Month HUV is a more severe type of vasculitis and almost always affects females. Vasculitis is a challenging illness to...

May- Vasculitis Awareness Month

May - Day 28 Vasculitis Awareness Month HUV is a more severe type of vasculiti...

Moderator•7 months ago

May - Day 27 Vasculitis Awareness Month Takayasu Arteritis (TAK) is a rare type of vasculitis affecting mostly young females, even children. It can be very...

May - Vasculitis Awareness Month

May - Day 27 Vasculitis Awareness Month Takayasu Arteritis (TAK) is a rare type...

Moderator•7 months ago

May - Day 26 VasculitiAwarenesMonth Whatever you do don't google GPA - go to https://www.vasculitis.org.uk/ for information. How is it to be diagnosed with a...

May- Vasculitis Awareness Month

May - Day 26 VasculitiAwarenesMonth Whatever you do don't google GPA - go to ht...

Moderator•7 months ago

Every time I have I have a blood test - about every 2 weeks currently - it's reported on as having raised neutrophils. The kidney function has returned to...

persistent raised neutrophils

Every time I have I have a blood test - about every 2 weeks currently - it's rep...

oldtimer2

•7 months ago

3 Replies

May- Vasculitis Awareness Month

May - Day 25 Vasculitis Awareness Month Fatigue: an extreme sense of tiredness and lack of energy that can interfere with a person's usual daily activities....

May - Day 25 Vasculitis Awareness Month Fatigue: an extreme sense of tiredness...

Moderator•7 months ago

May - Day 24 Vasculitis Awareness Month Wendy says: ''I’m always hopeful of discovering new solutions to the ongoing challenge of living with vasculitis.''...

May- Vasculitis Awarenss Month

May - Day 24 Vasculitis Awareness Month Wendy says: ''I’m always hopeful of dis...

Moderator•7 months ago

Hi all, my urine samples have started showing leukocytes protein and blood. I have GPA which mainly affects my lungs and now sinuses. I guess I just want to...

Leukocytes, protein and blood.

Hi all, my urine samples have started showing leukocytes protein and blood. I ha...

Vqueen

•7 months ago

5 Replies

May- Vasculitis Awareness Month

May - Day 23 Vasculitis Awareness Month Many times vasculitis patients have minor symptoms that are dismissed by doctors and even themselves. And suddenly...

May - Day 23 Vasculitis Awareness Month Many times vasculitis patients have m...

Moderator•7 months ago

Includes a transcript for those who like to read instead https://zoe.com/learn/podcast-inflammation-foods

Podcast on Food and Inflammation

Includes a transcript for those who like to read instead https://zoe.com/learn/...

eh66

•7 months ago

May - Day 22 Vasculitis Awareness Month Vasculitis is a life changing illness affecting many aspects of the patient's life. Being diagnosed with vasculitis,...

May- vasculitis awareness month

May - Day 22 Vasculitis Awareness Month Vasculitis is a life changing illness a...

Moderator•7 months ago

Hi all.Hope your all doing really well this Tuesday. Yesterday I went to my Dentist for my routine check up and Polish and had the polish and clean first then...

Possible Leukoplakia

Hi all.Hope your all doing really well this Tuesday. Yesterday I went to my Den...

Investigator1

•7 months ago

2 Replies

May- Vasculitis awareness month

May - Day 21 VasculitisAwarenessMonth Vasculitis is a life changing illness affecting many aspects of the patient's life. IgA vasculitis (formerly known as...

May - Day 21 VasculitisAwarenessMonth Vasculitis is a life changing illness af...

Moderator•7 months ago

hi Paula hear I was diagnosed 4 years ago with vascullituse of the lung it seems to be under control at min with retuxiban and prednisone I was on...

leg trouble

hi Paula hear I was diagnosed 4 years ago with vascullituse of the lung it seem...

Tellyblue

•7 months ago

Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and...

Vasculitis in the pancreas?

Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculit...

Sandalsforever

•7 months ago

10 Replies

May- Vasculitis Awareness Month

May - Day 20 Vasculitis Awareness Month Vasculitis presents in many different ways, can be difficult to diagnose and is definetely life changing. Take a...

May - Day 20 Vasculitis Awareness Month Vasculitis presents in many different ...

Moderator•7 months ago

Hullo,Does anyone have advice on what happens to your skin after stopping MTX.I have been on MTX for 2 years for LVV,the first year at 20mg the second at...

Methotrexate and sun sensitivity

Hullo,Does anyone have advice on what happens to your skin after stopping MTX.I ...

Oxfordboy2

•7 months ago

8 Replies

May - Vasculitis Awareness Month

May - Day 19 Vasculitis Awareness Month. Vasculitis is difficult to diagnose as it presents in many different ways and clinicians have to think out of the...

May - Day 19 Vasculitis Awareness Month. Vasculitis is difficult to diagnose as...

Moderator•7 months ago

Don’t want to bore you all but I have had a couple of developments recently apart from having my Rituximab extended for another year. Firstly I am on statins...

A few developments - anybody got similar

Don’t want to bore you all but I have had a couple of developments recently apar...

Investigator1

•7 months ago

10 Replies

Have your say on the way your services are working for your Rare Autoimmune Rheumatic Disease (RAIRD)

https://linktr.ee/rairdauk The link will tell you more about the survey Please complete this survey if you have not already done so - thank you Closing...

https://linktr.ee/rairdauk The link will tell you more about the survey Plea...

Suzi70

Administrator•7 months ago

I used to find the posts from other patients very useful but now I don't see any, just bits to say it is Vasculitis Awareness month or something.

Where have all the patient posts gone?

I used to find the posts from other patients very useful but now I don't see any...

amms43

•7 months ago

11 Replies

May-Vasculitis Awareness Day

May - Day 18 #vasculitis awareness month. Vasculitis can be an ''invisible'' illness. Ali says: 'When people see me, they tell me how well I look, and if...

May - Day 18 #vasculitis awareness month. Vasculitis can be an ''invisible'' i...

Moderator•7 months ago