Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for March 2017

Mesenteic arteries

Hi ... anyone has mesentric problems of vasculitis and how is serious ???

Alexwwww

•8 years ago

18 Replies

Have many symptoms of vasculitis but a tone of blood tests are normal!!

Hi ... Im am jack .. i have a transplant kidney surgery in 2009 and i take cellcept and prednisolon 40 mg every day for it ... since 3 month ago i have...

Hi ... Im am jack .. i have a transplant kidney surgery in 2009 and i take cell...

Alexwwww

•8 years ago

11 Replies

North Yorkshire Support Group

Hi everyone. Just a reminder about the North Yorkshire support group this weekend. We'll be meeting in York at Huntington Memorial Hall again, on Sunday the...

Hi everyone. Just a reminder about the North Yorkshire support group this weeken...

RichardE

Volunteer•8 years ago

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Vascultis Lesions

Hi Everyone:) Thank you all for replying to my story. I just wanted to share my photo of what my AEC doctor diagnosed as Vasculitis/vasculopathy Been out...

Hi Everyone:) Thank you all for replying to my story. I just wanted to share my...

LauraMk30

•8 years ago

4 Replies

The 18th International Vasculitis Conference and ANCA Workshop - Tokyo - Japan

For those with an interest The Three Day 18th International Vasculitis Conference and ANCA Workshop ( 2017 ) is taking place this weekend at the Ito...

For those with an interest The Three Day 18th International Vasculitis Conferenc...

Suzym2u

Moderator•8 years ago

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Causes of vasculitis. ?

A friend of mine suffers with vasculitis, my understanding is very little to be honest, but can someone tell me if high homocysteine is a cause. ?

A friend of mine suffers with vasculitis, my understanding is very little to be ...

Michelle_Cheatley

•8 years ago

3 Replies

Vasculitis UK AGM - Derby - May 2017 - Speakers now confirmed

Vasculitis UK AGM May 2017 Speakers on this occasion are Dr Jacqui Andrews, Consultant Rheumatologist, Clinical Director/Honary Clinical Associate Professor,...

Vasculitis UK AGM May 2017 Speakers on this occasion are Dr Jacqui Andrews, Con...

Suzym2u

Moderator•8 years ago

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Strongly Suspected Vasculitis Awaiting Specialist Appointment With rheumatology and hematology... Which form that is the question..

Hi everyone, Jeez where do I start... hmm I've never joined a group before & I am at my wits end.. I have felt so unwell & even that doesn't give justice to...

Hi everyone, Jeez where do I start... hmm I've never joined a group before & I...

LauraMk30

•8 years ago

32 Replies

Hi I have been diagnosed with Mononeuritis multiplex does anyone else have this?

Its a Peripheral neuropathy, vasculitis of the peripheal nervous system, from what I understand the blood supply to my nerves is cut off due to swelling of the...

Its a Peripheral neuropathy, vasculitis of the peripheal nervous system, from wh...

logic38

•8 years ago

9 Replies

Trying to connect the dots

Hello friends and encouragers. I have a rare bone disease called Kienbock's. Wondering if anyone has been diagnosed with this along with vascultis or lupus OR...

Hello friends and encouragers. I have a rare bone disease called Kienbock's. Won...

autoimmunemystery

•8 years ago

10 Replies

Hearing loss?

Anyone else have hearing loss? If so, what type? I've had 3.5yrs of eye problems (anyone have those?) that have kept me housebound, now it's like its moved to...

Anyone else have hearing loss? If so, what type? I've had 3.5yrs of eye problems...

LH44

•8 years ago

17 Replies

A day of discovery in May about NHS research into Vasculitis and other conditions - Date for your diary

Wednesday 24 May 2017 at Norfolk & Norwich University Hospital 10 - 4pm in the East Atrium: Visit research teams as well as experts from a range of research...

Wednesday 24 May 2017 at Norfolk & Norwich University Hospital 10 - 4pm in the ...

Suzym2u

Moderator•8 years ago

3 Replies

Try not to get too frightened!

Dear all, I'm UK-based. I had a diagnosis of MPA renal vasculitis nearly 3 years ago, admittedly, caught very early; I was treated according to the current...

Dear all, I'm UK-based. I had a diagnosis of MPA renal vasculitis nearly 3 years...

SkinHorse

•8 years ago

7 Replies

I had to share this

The very talented Berkshire bird has made my granddaughter's drawing into this lovely permanent picture. My daughter in law is over the moon with her present.

The very talented Berkshire bird has made my granddaughter's drawing into this l...

Mooka

•8 years ago

3 Replies

Opticians X rays ?

Could they identify problems with vasculitus central nervous system?

skybluepink

•8 years ago

2 Replies

Update on ... ongoing pain following injection. 71 year old male with Wegener's

Consultation was positive. Attention was spotlighted upon the upcoming operation for bronchial stent/dilation. If another infection occurs in the meantime I...

Consultation was positive. Attention was spotlighted upon the upcoming operation...

lfu2

•8 years ago

10 Replies

Barb

Should i be taking methotrexate with my rituxin..

Mamaw8

•8 years ago

4 Replies

Neurology Appointment - Suspected Peripheral Neuropathy

Hi everyone, just looking for some advice and experiences please. I have a neurology appointment next week for suspected peripheral neuropathy (up to my ankles...

Hi everyone, just looking for some advice and experiences please. I have a neuro...

PCAD

•8 years ago

2 Replies

Travel insurance

Hi everyone- I have Churg Strauss syndrome and am seeking good worldwide travel insurance . I have just turned 66 and Virgin Money (which was an excellent...

Hi everyone- I have Churg Strauss syndrome and am seeking good worldwide travel ...

vivavida

•8 years ago

12 Replies

Henoch Schonlein Purpura Parent/Patient Focus Group Meeting - Sunday 5th March

Saturdays Patient Symposium and Gala Ball was followed by a parent/patient focus group meeting on the Sunday. 17 parents and 10 children attended this meeting...

Saturdays Patient Symposium and Gala Ball was followed by a parent/patient focus...

Suzym2u

Moderator•8 years ago

1 Reply

Vasculitis UK Charity Fundraising Ball - Manchester March 4th

Also wanted to say what an excellent evening we had at the VUK charity ball. It was attended by over 150 people. Also wanted to thank Emma Caldwell from Innov8...

Also wanted to say what an excellent evening we had at the VUK charity ball. It ...

Suzym2u

Moderator•8 years ago

1 Reply

Vasculitis UK "Vasculitis Symposium/Education Day" - Manchester March 4th

Just wanted to say what an excellent weekend we had in Manchester. The day was not only informative but patients also shared their experiences. The day was...

Just wanted to say what an excellent weekend we had in Manchester. The day was n...

Suzym2u

Moderator•8 years ago

2 Replies

West Yorkshire Support Group Meeting

Hi All Here is the Official invite for the Yorkshire Support Group meeting Please let me know if you can come...

Hi All Here is the Official invite for the Yorkshire Support Group meeting Pleas...

LynneJ

Vasculitis UK•8 years ago

6 Replies

Theses boots were made for Snowdon

https://m.facebook.com/story.php?story_fbid=10154980606712180&id=630767179

Neildougherty

•8 years ago

6 Replies

Ongoing pain following injection. 71 year old male with Wegener's.

I have been having a bit of a rough time of it over these last six months. October 2016 I had rib injuries due to excess coughing, (the pain is with me yet)...

I have been having a bit of a rough time of it over these last six months. Octob...

lfu2

•8 years ago

7 Replies

Vasculitis Ball this weekend - Dress Code

For those going to the Vasculitis UK ball , the dress code for the evening is smart/evening wear but you don't have to dig out the tux's... we have received a...

For those going to the Vasculitis UK ball , the dress code for the evening is sm...

Suzym2u

Moderator•8 years ago

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Online IT diagnosis ? Automatic Tag- febrile convulsion?

Why is automatic tag on my BLF post below saying febrile convulsion ? Does it know my late Mother & Father [ pharmacist] had same dental , rheumatic problems...

Why is automatic tag on my BLF post below saying febrile convulsion ? Does it k...

skybluepink

•8 years ago

3 Replies

NIHR Review of Research into Kawasaki Disease

Interesting report on the NIHR website about a systematic review of research in to Kawasaki Disease that I imagine might lead to changes to treatment...

Interesting report on the NIHR website about a systematic review of research in ...

RichardE

Volunteer•8 years ago

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Morning sickness .......

Hi all, I have Rheumatoid Vasculitis and am on sulfasalazine, prednisolone, hydroxychloroquine, gabapentin and rituximab infusions. I am still able to work...

Hi all, I have Rheumatoid Vasculitis and am on sulfasalazine, prednisolone, hydr...

CHARLIE49

•8 years ago

7 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for March 2017

Mesenteic arteries

Have many symptoms of vasculitis but a tone of blood tests are normal!!

North Yorkshire Support Group

Vascultis Lesions

The 18th International Vasculitis Conference and ANCA Workshop - Tokyo - Japan

Causes of vasculitis. ?

Vasculitis UK AGM - Derby - May 2017 - Speakers now confirmed

Strongly Suspected Vasculitis Awaiting Specialist Appointment With rheumatology and hematology... Which form that is the question..

Hi I have been diagnosed with Mononeuritis multiplex does anyone else have this?

Trying to connect the dots

Hearing loss?

A day of discovery in May about NHS research into Vasculitis and other conditions - Date for your diary

Try not to get too frightened!

I had to share this

Opticians X rays ?

Update on ... ongoing pain following injection. 71 year old male with Wegener's

Barb

Neurology Appointment - Suspected Peripheral Neuropathy

Travel insurance

Henoch Schonlein Purpura Parent/Patient Focus Group Meeting - Sunday 5th March

Vasculitis UK Charity Fundraising Ball - Manchester March 4th

Vasculitis UK "Vasculitis Symposium/Education Day" - Manchester March 4th

West Yorkshire Support Group Meeting

Theses boots were made for Snowdon

Ongoing pain following injection. 71 year old male with Wegener's.

Vasculitis Ball this weekend - Dress Code

Online IT diagnosis ? Automatic Tag- febrile convulsion?

NIHR Review of Research into Kawasaki Disease

Morning sickness .......

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