Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for February 2012

Marathon Blog 4

My name is Jamie Flanagan. This year I'm going to be running in the Rome and Berlin Marathons raising money for Vasculitis UK. I am a Wegener's Granulomatosis...

My name is Jamie Flanagan. This year I'm going to be running in the Rome and Ber...

jimdrum

•13 years ago

4 Replies

I have Cerebral Vasculitis, is there a support group in the South England, I see there is one in the SouthWest but this is too far away

milliewin

•13 years ago

13 Replies

Travel insurance

Hi, after reading here about travel insurance, I thought I would try Virgin however just been talking to them for an insurance quote for pre existing...

Hi, after reading here about travel insurance, I thought I would try Virgin howe...

JackieT

•13 years ago

8 Replies

Want to take advantage of all our features? Just log in!

Good news 2 years after it was promised.....please have your say:

http://www.dh.gov.uk/health/2012/02/consultation-rare-diseses

John_Mills

Volunteer•13 years ago

5 Replies

Can anyone else identify with me sometimes feeling slighty drunk?

Thats the best way I can describe it, I often have a feeling of just feeling not with it, finding it really hard to concentrate on anything, getting my words...

Thats the best way I can describe it, I often have a feeling of just feeling not...

Galaxy2

•13 years ago

10 Replies

Chest xray

Hello I had an x ray and today been told that there is a shadow and to repeat in 2 weeks. Has anyone else had this and what does ppl think .

Hello I had an x ray and today been told that there is a shadow and to repeat i...

NannyAlli

•13 years ago

7 Replies

Vuk/HU are carrying out a series of polls to collect data regarding Osteoporosis, Advice Given, Medication and Dexa Scans.

The polls will be divided into 3 or maybe 4 parts so we can collect as much data as we can. Please take part in the poll if you have been taking steroids...

The polls will be divided into 3 or maybe 4 parts so we can collect as much data...

John_Mills

Volunteer•13 years ago

Be the first to reply

Bone Density scans - how often SHOULD they happen if you're taking Pred. ?

I have just been told that my Lumbar Spine is crumbling (osteoporosis). I've been taking Pred. for 22 years at varying levels and, in that time, have had just...

I have just been told that my Lumbar Spine is crumbling (osteoporosis). I've bee...

Dbis22

•13 years ago

11 Replies

Hi every one. I am confused about dose of Azathioprine. My Chest Phys. says reduce the amount but Rheumatologist says not.

I have had Microscopic Polyangiitis for about two years which is controlled by 150mg Azathioprine per day, I finished taking steriods last March. I saw my...

I have had Microscopic Polyangiitis for about two years which is controlled by 1...

LynneJ

Vasculitis UK•13 years ago

3 Replies

Wegener's Granulomatosis: Living With The Disease

Hello everyone, I am a young female, 23 to be precise, who has been living with WG since 2009. Before I was diagnosed I was studying for a degree, I was...

Hello everyone, I am a young female, 23 to be precise, who has been living wi...

missm23

•13 years ago

1 Reply

Reminder about Oxfordshire Vasculitis Support Group Seminar on Sunday 4th March, Abingdon, near Oxford.

Talks by Dr Jo Robson and Prof Raashid Luqmani, followed by a buffett lunch. E-mail me on oxonvsg@hotmail.com for more details

Talks by Dr Jo Robson and Prof Raashid Luqmani, followed by a buffett lunch. E-...

SueAshdown

•13 years ago

1 Reply

Are you able to work with vasculitis?

Up until being hospitalised and diagnosed with Cerebral Vasculitis I worked as an English teacher in a secondary school. Since everything kicked off, I have...

Up until being hospitalised and diagnosed with Cerebral Vasculitis I worked as a...

ShortSarah

•13 years ago

17 Replies

Psoriosis

Has anyone experienced Psoriosis with a WG flare?? I've been in remission for almost 9 years, have never had any skin problems besides blood spots when I was...

Has anyone experienced Psoriosis with a WG flare?? I've been in remission for al...

bakermichelle1982

•13 years ago

6 Replies

dla

hello,im new to this forum,i have wg,diagnosed may 11 ,affected kidneys and nose. sufferered with mobility problems since,extreme shortness of breath,but was...

hello,im new to this forum,i have wg,diagnosed may 11 ,affected kidneys and nose...

quinnster

•13 years ago

9 Replies

Insomnia, how do you deal with it

Ive just got on top of another flare up of my WG. For the last couple of months I've been suffering from insomnia. Get off to sleep ok but after about 3 hours...

Ive just got on top of another flare up of my WG. For the last couple of months ...

BrianCrelling

•13 years ago

4 Replies

Marathon Blog 3

My name is Jamie Flanagan. This year I'm going to be running in the Rome and Berlin Marathons raising money for Vasculitis UK. I am a Wegeners Granulomatosis...

My name is Jamie Flanagan. This year I'm going to be running in the Rome and Ber...

jimdrum

•13 years ago

3 Replies

Marathon Blog 3

My name is Jamie Flanagan. This year I'm going to be running in the Rome and Berlin Marathons raising money for Vasculitis UK. I am a Wegeners Granulomatosis...

My name is Jamie Flanagan. This year I'm going to be running in the Rome and Ber...

jimdrum

•13 years ago

2 Replies

I was diagnosed with Wegener's on lst Feb following a chest xray (symptoms coughing and breathlessness and now my ears are popping).

II have had two sessions of cyclophosphomide and steroids and am seeing my consultant in two weeks time. My question is that I am seeing a Chest Consultant...

II have had two sessions of cyclophosphomide and steroids and am seeing my consu...

Dillybean

•13 years ago

5 Replies

It is Rare Disease Day on February 29th 2012 One of the main objectives of the events is to draw media coverage to rare diseases.

One of the main objectives of the events is to draw media coverage, as well as to raise awareness of rare diseases and their impact on patients’ lives amongst...

One of the main objectives of the events is to draw media coverage, as well as t...

John_Mills

Volunteer•13 years ago

3 Replies

i'm 35 & suffer with urticarial vasculitis, is there other people on this site of a similar age who also suffer?

pickle

•13 years ago

9 Replies

Can anyone recommend a holiday insurance company that will cover WG without charging the earth?

I'm off for just a 3 day trip to Europe so don't want to spend a fortune on holiday insurance!

I'm off for just a 3 day trip to Europe so don't want to spend a fortune on holi...

DevonLottie

•13 years ago

12 Replies

Vasculitis reaction-couldn't move legs

Hi All I was hoping someone will be able to help me. I have Hypocomplementemic Urticarial Vasculitis Syndrome. I had a reaction on Tuesday night and was...

Hi All I was hoping someone will be able to help me. I have Hypocomplementemi...

Sarahjh2004

•13 years ago

4 Replies

Charlie has Wegeners Granulomatosis, she is doing a bungee jump to raise money for Vasculitis UK, to raise awareness of Vasculitis.

This is Charlie's message on her justgiving page :-) If you feel you can support Charlie please follow the link below. "I have had Wegener's Granulomatosis...

This is Charlie's message on her justgiving page :-) If you feel you can support...

John_Mills

Volunteer•13 years ago

1 Reply

Marathon Blog 2

My name is Jamie Flanagan. This year I'm going to be running in the Rome and Berlin Marathons raising money for Vasculitis UK. I am a Wegeners Granulomatosis...

My name is Jamie Flanagan. This year I'm going to be running in the Rome and Ber...

jimdrum

•13 years ago

3 Replies

Has anyone with WG ever suffered "bleeding on the lungs" (pulmonary embolism) with a flare up?

mandijt

•13 years ago

5 Replies

West Country Support Group Lunch

If anyone is located in the West Country and would like to join the next support group lunch here are the details: Tuesday, 21 February 12.00 noon Mill on...

If anyone is located in the West Country and would like to join the next support...

DevonLottie

•13 years ago

Be the first to reply

Replying to questions

I just wanted to say that Susan and John, and myself as "Vasculitis UK" like to try and answer questions as quickly as we possibly can, if we feel we have...

I just wanted to say that Susan and John, and myself as "Vasculitis UK" like to ...

PatriciaAnn

•13 years ago

7 Replies

Could this be a flare?

I have a swelling between my eye and cheekbone, been to the doctors don't know how many times and they keep giving me antibiotics but they dont seem to be...

I have a swelling between my eye and cheekbone, been to the doctors don't know h...

ISABEL12

•13 years ago

7 Replies

Would anyone like to attend the North West Support Group Meeting on Sunday March 4th? If so contact Jann on the email address below.

A reminder that the next meeting of North West vascuilits Support Group is coming up North West Vasculitis Support Group Meeting “Vasculitis Related Talk”...

A reminder that the next meeting of North West vascuilits Support Group is comin...

John_Mills

Volunteer•13 years ago

Be the first to reply

North West Vascilitus Support Meeting

North West Vasculitis Support Group Meeting “Vasculitis Related Talk” Sunday 4th March 2012 1:00 for 1:30pm – 4:30pm Marriott Hotel Preston...

North West Vasculitis Support Group Meeting “Vasculitis Related Talk” Sund...

Jann

•13 years ago

6 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for February 2012

Marathon Blog 4

I have Cerebral Vasculitis, is there a support group in the South England, I see there is one in the SouthWest but this is too far away

Travel insurance

Good news 2 years after it was promised.....please have your say:

Can anyone else identify with me sometimes feeling slighty drunk?

Chest xray

Vuk/HU are carrying out a series of polls to collect data regarding Osteoporosis, Advice Given, Medication and Dexa Scans.

Bone Density scans - how often SHOULD they happen if you're taking Pred. ?

Hi every one. I am confused about dose of Azathioprine. My Chest Phys. says reduce the amount but Rheumatologist says not.

Wegener's Granulomatosis: Living With The Disease

Reminder about Oxfordshire Vasculitis Support Group Seminar on Sunday 4th March, Abingdon, near Oxford.

Are you able to work with vasculitis?

Psoriosis

dla

Insomnia, how do you deal with it

Marathon Blog 3

Marathon Blog 3

I was diagnosed with Wegener's on lst Feb following a chest xray (symptoms coughing and breathlessness and now my ears are popping).

It is Rare Disease Day on February 29th 2012 One of the main objectives of the events is to draw media coverage to rare diseases.

i'm 35 & suffer with urticarial vasculitis, is there other people on this site of a similar age who also suffer?

Can anyone recommend a holiday insurance company that will cover WG without charging the earth?

Vasculitis reaction-couldn't move legs

Charlie has Wegeners Granulomatosis, she is doing a bungee jump to raise money for Vasculitis UK, to raise awareness of Vasculitis.

Marathon Blog 2

Has anyone with WG ever suffered "bleeding on the lungs" (pulmonary embolism) with a flare up?

West Country Support Group Lunch

Replying to questions

Could this be a flare?

Would anyone like to attend the North West Support Group Meeting on Sunday March 4th? If so contact Jann on the email address below.

North West Vascilitus Support Meeting

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