Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for July 2020

Do I need to continue Shielding?

Dear All, I know that the Government IS 'relaxing' Shielding.... whilst at the same time 'Tightening' Lockdown in other areas. So one question- bearing in mind...

Dear All, I know that the Government IS 'relaxing' Shielding.... whilst at the s...

•4 years ago

Urticarial vasculitis syndrome & hydroxychloroquine

Can anyone help by sharing their experience of hydroxychloroquine. Specifically anyone who has not been able to tolerate it? I'm beginning to feel like an...

Can anyone help by sharing their experience of hydroxychloroquine. Specifically ...

•4 years ago

Vitamin D the sunshine vitamin

A study was done on breast cancer patients and found that most were lacking in vitamin D. I am a breast cancer survivor I take 8000 vitamin D daily. It is not...

A study was done on breast cancer patients and found that most were lacking in v...

•4 years ago

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Study: HSP with kidney involvement - The PINPOINT trial needs your help!

https://www.vasculitis.org.uk/news/study-hsp-with-kidney-involvement

https://www.vasculitis.org.uk/news/study-hsp-with-kidney-involvement

Moderator•4 years ago

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Help develop a testing tool

EULAR and ARC are conducting research to develop a tool for determining the efficiency of treatments for patients with Vasculitis. They are looking for...

EULAR and ARC are conducting research to develop a tool for determining the eff...

Moderator•4 years ago

Excess mucous/cough

Wondering what others use to get rid of excess mucous, relieve the condition. Can be quite distressing at times as he can become breathless until the mucous...

Wondering what others use to get rid of excess mucous, relieve the condition. C...

•4 years ago

Help with exercising with GPA.

Hi, I don’t normally post as feel a bit shy about asking for advice, but I am just interested in knowing anyone else’s experience. I have since my diagnosis,...

Hi, I don’t normally post as feel a bit shy about asking for advice, but I am ju...

•4 years ago

Treatment on the Isle if Wight

Hi, I am interested if anyone on the forum is receiving treatment for GPA or similar from St Mary’s hospital on the Isle of Wight. If so, what are their...

Hi, I am interested if anyone on the forum is receiving treatment for GPA or sim...

•4 years ago

ANCA PR3 Rising after finishing Cyclophosphamide and transferring to Azathioprine.

Hi Anybody out there, I have been doing really well reducing my ANCA PR3 Levels since diagnosis of GPO in December, they were off the scale but after 4...

Hi Anybody out there, I have been doing really well reducing my ANCA PR3 Levels ...

•4 years ago

Autoimmune disease

Hi, I was suffering from buzzing, tingling and numbness in feet (so painful some days I couldn't walk on them) hands, arms, legs and left side of face. I had...

Hi, I was suffering from buzzing, tingling and numbness in feet (so painful some...

•4 years ago

Vasculitis UK funds Covid-related research - see link

https://www.vasculitis.org.uk/news/vuk-funds-covid-related-research

https://www.vasculitis.org.uk/news/vuk-funds-covid-related-research

Moderator•4 years ago

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The FIRST Immunoglobulin A vasculitis (Henoch Schonlein Purpura) Online Patient Information Event - for patients and carers

https://www.vasculitis.org.uk/news/online-hsp-patient-information-event Patient Information Event An online event for all patients with HSP and their...

https://www.vasculitis.org.uk/news/online-hsp-patient-information-event Patient ...

Moderator•4 years ago

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