Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,815 members • 6,819 posts

All posts for July 2016

Exposure to Chickenpox

I know this subject has been discussed a number of times in the past, although there appears to be no official guidance on the Vasculitis UK website. Clearly...

I know this subject has been discussed a number of times in the past, although t...

Chris-Bromsgrove

•8 years ago

42 Replies

Pulsating Noise in my head, not tinnitus, Vascular ?

For the past year I have been suffering a pulsating ( with my heartbeat) noise in my head, seen ENT had MRI of head, It is Not Tinnitus, saw a cardiologist,...

For the past year I have been suffering a pulsating ( with my heartbeat) noise i...

Lazz

•8 years ago

15 Replies

Cerebal vasculities

Only message me if you have it please.Fed up with text book replys.My neurologist says I may have this.Was interested in any one who has it.Symptoms and any...

Only message me if you have it please.Fed up with text book replys.My neurologis...

jan85uk

•8 years ago

29 Replies

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Google Analytics for June 28th - July 28th 2016 - Vasculitis UK website

Google Analytics for June 28th - July 28th 2916 Vasculitis UK Website www.vasculitis.org.uk 23,600 users 67,000 pages viewed 2.30 mins average pages viewed...

Google Analytics for June 28th - July 28th 2916 Vasculitis UK Website www.vascu...

Suzym2u

Moderator•8 years ago

1 Reply

methotrexate and omazaprole

Can I take omazaprole continuously with Methotrexate?? I am currently on 25mg methotrexate weekly to control CSS

Can I take omazaprole continuously with Methotrexate?? I am currently on 25mg m...

sarahdollygirl

•8 years ago

5 Replies

Ultrasonography on kidneys and bladder

Just wanted to know if any one on here was diagnosed through having this ultrasound. Due to have it done nwxt week. I have already had a standard kidneys and...

Just wanted to know if any one on here was diagnosed through having this ultraso...

jan85uk

•8 years ago

9 Replies

Titre levels

Hi, I have MPA and just have had anca blood test come back ! It says a titre level of 1:80 ? Does anyone know what this means and and what are average levels...

Hi, I have MPA and just have had anca blood test come back ! It says a titre lev...

Jase222

•8 years ago

6 Replies

Wegeners and pip

Hi I'm 49 and have been seriously unwell for 7 years being diagnosed with Graves' disease and graves eye disease in 2011 after two years of being told I was...

Hi I'm 49 and have been seriously unwell for 7 years being diagnosed with Grave...

Bluecarol

•8 years ago

11 Replies

Low dose naltrexone for alcohol cravings intefere with Anca positive MPA vasculitis treatment?

Using low dose naltrexone 50mg to curb alcohol cravings after going through a course of rituximab and currently taking prednisilone 25mg. Is this going to...

Using low dose naltrexone 50mg to curb alcohol cravings after going through a co...

alcoman

•8 years ago

1 Reply

Anti c1q UV with Angioedema

Just wondering if the few member with HUVS suffer with Angioedema and how they are treated? I've just received my diagnosis recently and have been told that...

Just wondering if the few member with HUVS suffer with Angioedema and how they a...

Janey513

•8 years ago

2 Replies

Burst blood vessels in eye

Wondered if any one can tell me if you can have a burst blood vessel at back of eye with having vasculitis, optician writing to GP to explain what they found...

Wondered if any one can tell me if you can have a burst blood vessel at back of ...

valrene

•8 years ago

25 Replies

ANCA positive small cell vasculitis and coughing up stomach fluid

Hi to all, I am still into the process of having a definitive diagnosis so, right now, I am told it is ANCA positive generalised small cell vasculitis. I bet...

Hi to all, I am still into the process of having a definitive diagnosis so, rig...

Jools52

•8 years ago

15 Replies

HSP / Vasculitis skin rash

I was diagnosed 5-6 weeks ago with HSP, the doctor in A&E prescibed some cocodamol and told me to follow up with my GP in a couple of weeks. My GP prescribed...

I was diagnosed 5-6 weeks ago with HSP, the doctor in A&E prescibed some cocodam...

Iain71

•8 years ago

12 Replies

Where oh where is the ol' Facebook Vasculitis UK Group?

Hi folks! Facebook question here... I used to belong to a closed group on Facebook, "Vasculitis UK". Members included very, very informative Vasculitis...

Hi folks! Facebook question here... I used to belong to a closed group on Faceb...

michichgo

•8 years ago

20 Replies

Vasculitis and skin cancer

I was diagnosed with Wegener's in 2002 aged 54. After a year of heavy medication and not feeling too good I got back to something I could cope with. I have...

I was diagnosed with Wegener's in 2002 aged 54. After a year of heavy medicatio...

davidmills

•8 years ago

5 Replies

Vasculitis and Total Hip Replacement

Just wondering if anyone knows of any complications (other than the usual) that having Vasculitis could add to surgery. Due to being treated with steroids for...

Just wondering if anyone knows of any complications (other than the usual) that ...

Nova7961

•8 years ago

20 Replies

Always unwell

Now I have thrown up lots of water and this mornings breakfast and yesterday's food.Managed to sipping water and my husband is getting me some cold drinks....

Now I have thrown up lots of water and this mornings breakfast and yesterday's f...

jan85uk

•8 years ago

3 Replies

Dapsone antibiotic

Hi just been diagnosed with leukocytoclastic vasculitus following a skin biopsy. Dermatologist want to start me on 25mg of dapsone for 4 weeks and then if no...

Hi just been diagnosed with leukocytoclastic vasculitus following a skin biopsy....

Seh22

•8 years ago

7 Replies

Lumber puncture

Dear all, I just have a quick question. Has anyone had a successful lumber puncture which diagnosed their illness and with no reprocussions afterwards?...

Dear all, I just have a quick question. Has anyone had a successful lumber punct...

Suzywhizzo

•8 years ago

18 Replies

Leukoclastic Vasculitis

I live in Perth Australia and 2 years ago was diagnosed with Leukoclastic Vasculitis I feel alone and isolated without much support and information. Fortis.

I live in Perth Australia and 2 years ago was diagnosed with Leukoclastic Vascul...

Fortis

•8 years ago

18 Replies

Vasculities uk

Sent a email and have had no reply.Is this still running. Feeling disappointed.

jan85uk

•8 years ago

3 Replies

Expenses for fuel ?

I now attend hospitals so many times that I am finding that my fuel use is much higher. Now, before anyone starts about me being grateful for being treated, I...

I now attend hospitals so many times that I am finding that my fuel use is much ...

Jools52

•8 years ago

12 Replies

P.I.P

well been turned down yet again for my P.I.P, iam really getting depressed now. What do these people no about WG when your own GP struggles to understand it. I...

well been turned down yet again for my P.I.P, iam really getting depressed now. ...

SandieB

•8 years ago

6 Replies

methotrexate and stomach problems

Hi all I have been taking methotrexate for about 4 years to treat CSS along with other meds (but no steriods for about 3 years) and I have been suffering from...

Hi all I have been taking methotrexate for about 4 years to treat CSS along with...

sarahdollygirl

•8 years ago

2 Replies

tocilizumab for gpa?

hi all, my wife was diagnosed with gpa almost five years ago which seems to be rumbling on and has been refused funding for rituximab but has been told she...

hi all, my wife was diagnosed with gpa almost five years ago which seems to be ...

roobub

•8 years ago

15 Replies

Lumbar puncture

What is the best way to have this proceddure done???Solution to having this done.I already have to travel away from my local hospital.Sedated??be admitred?...

What is the best way to have this proceddure done???Solution to having this done...

jan85uk

•8 years ago

4 Replies

Surviving vasculitus

How to educate people as to what vasculitus is. SURVIVING VASCULITUS

ken13

•8 years ago

1 Reply

GPA with kidney involvement

Hello I live in the US and my dearest friend has just been diagnosed with GPA. She is 56 years old and has never been sick a day in her life. Last year she...

Hello I live in the US and my dearest friend has just been diagnosed with GPA. S...

Shels

•8 years ago

9 Replies

South Yorkshire Vasculitis Support Group Meeting

The next South Yorkshire support group meeting will be held at Broom Methodist Church Hall again, on Sunday the 21st of August. The hall is just to the south...

The next South Yorkshire support group meeting will be held at Broom Methodist C...

RichardE

Volunteer•8 years ago

3 Replies

Rheumatoid Arthritis

Been on Prednisolone for 11 years..On 7.5mg day but have cushiongoid body and want to come off..Rheumy started me on 20mg of Hydrocortisone today for...

Been on Prednisolone for 11 years..On 7.5mg day but have cushiongoid body and wa...

Presh

•8 years ago

2 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for July 2016

Exposure to Chickenpox

Pulsating Noise in my head, not tinnitus, Vascular ?

Cerebal vasculities

Google Analytics for June 28th - July 28th 2016 - Vasculitis UK website

methotrexate and omazaprole

Ultrasonography on kidneys and bladder

Titre levels

Wegeners and pip

Low dose naltrexone for alcohol cravings intefere with Anca positive MPA vasculitis treatment?

Anti c1q UV with Angioedema

Burst blood vessels in eye

ANCA positive small cell vasculitis and coughing up stomach fluid

HSP / Vasculitis skin rash

Where oh where is the ol' Facebook Vasculitis UK Group?

Vasculitis and skin cancer

Vasculitis and Total Hip Replacement

Always unwell

Dapsone antibiotic

Lumber puncture

Leukoclastic Vasculitis

Vasculities uk

Expenses for fuel ?

P.I.P

methotrexate and stomach problems

tocilizumab for gpa?

Lumbar puncture

Surviving vasculitus

GPA with kidney involvement

South Yorkshire Vasculitis Support Group Meeting

Rheumatoid Arthritis

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