Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for September 2023

Shingrix vaccine - fitting it around rituximab infusions

Hi I understand the Shingrix vaccine is given as two doses, 2 to 6 months apart. I am under 60 and assuming I can persuade my GP of my eligibility, when...

Hi I understand the Shingrix vaccine is given as two doses, 2 to 6 months apart...

•1 year ago

Life After Rituximab - Is that it?

So that time has come when I am having my last Rituximab infusion on the 22nd November, it’s been 3 years on the treatment and my Consultant has told me that’s...

So that time has come when I am having my last Rituximab infusion on the 22nd No...

•1 year ago

Register for VUK's AGM

You still have time to register to attend Vasculitis UK's online AGM! The Vasculitis UK AGM & online webinar will be held on Sunday September 24th 2023,...

You still have time to register to attend Vasculitis UK's online AGM! The Vascu...

Moderator•1 year ago

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Rituximab adverse reaction to pre-meds

Hi I have Vasculitis GPA I have my fourth dose of rituximab coming up in a few weeks. I seem to have a reaction to the pre-meds they give prior to the...

Hi I have Vasculitis GPA I have my fourth dose of rituximab coming up in a few...

•1 year ago

”Progressive”

I have a progressive form of cerebral vasculitis, though am doing good to still be here after 29 years! It started in 1994 when I was just 22. Hugely...

I have a progressive form of cerebral vasculitis, though am doing good to still ...

Volunteer•1 year ago

Rituximab doses

Hi All Hope everyone is ok. This a question for anyone on rituximab, I’m really interested in the dose you receive . I’ve been having rituximab for years,...

Hi All Hope everyone is ok. This a question for anyone on rituximab, I’m really...

•1 year ago

Covid vaccination brand

I was diagnosed with ANCA+ Vasculitis 15 years ago. Currently treated with rixathon every 7 -12 months. I used to be treated with rituximab but that affected...

I was diagnosed with ANCA+ Vasculitis 15 years ago. Currently treated with rixat...

•1 year ago

Looking for patients and carers for a PPI group

Looking for people living in or around Nottingham to be part of a Patient and Public Involvement group. There will be an online event on Saturday 18th November...

Looking for people living in or around Nottingham to be part of a Patient and Pu...

Moderator•1 year ago

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Covid Vaccine - Anyone Booked In - And how

As above really I don’t seem to be able to book it online, and I have no faith whatsoever in my GP practice. Nick.

As above really I don’t seem to be able to book it online, and I have no faith w...

•1 year ago

Fundraising in John's memory

John Mills was a very passionate vasculitis advocate. He worked hard to get Vasculitis UK to the place it is is now, he believed in the power of awareness and...

John Mills was a very passionate vasculitis advocate. He worked hard to get Vas...

Moderator•1 year ago

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Vasculitis Awareness and Patient Education Day, Manchester

What a great day it was!It was lovely to see so many people attending. Awesome presentations and time to mingle. Well done Dr Silke Brix for organising this...

What a great day it was!It was lovely to see so many people attending. Awesome p...

Moderator•1 year ago

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Patient Education Day in Manchester

Tomorrow we will be in Manchester supporting the Regional Awareness Day and Patient Education Day. Vasculitis UK will have a stand there, come to meet us and...

Tomorrow we will be in Manchester supporting the Regional Awareness Day and Pati...

Moderator•1 year ago

John Mills MBE Memorial Service

John Mills #MBE: Memorial Service A celebration of John’s life will be held at midday on Saturday September 30th 2023 at St John’s Church, Winster – followed...

John Mills #MBE: Memorial Service A celebration of John’s life will be held at ...

Administrator•1 year ago

VUK AGM

The Vasculitis UK AGM & online webinar will be held on Sunday September 24th 2023, starting at 13.00 BST (12 noon GMT). Prof Raashid Luqmani will speak about...

The Vasculitis UK AGM & online webinar will be held on Sunday September 24th 202...

Moderator•1 year ago

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Fellow vascie lost the battle

I am very sad to let you know that Richard Eastoe passed away very suddenly on the 29th of August. Some of you may have met him at the North Yorkshire...

I am very sad to let you know that Richard Eastoe passed away very suddenly on t...

Moderator•1 year ago

Steroid tapering schedule

I'm on 12.5 mg predinosolone and I tried to reduce it to 11.25 as per Dr's instruction. I didnt have any symptoms for a week after taper and then again the...

I'm on 12.5 mg predinosolone and I tried to reduce it to 11.25 as per Dr's instr...

•1 year ago

chemo

I was diagnosed last fall with limited GPA (in my ears). Was on methotrexate and low dose prednisone until a few weeks ago. Diagnosed with breast cancer in...

I was diagnosed last fall with limited GPA (in my ears). Was on methotrexate an...

•1 year ago

MrFacts

Can somebody highlight the entire causes and side effects of IV steroids They cause osteoporosis, which is bone loss So where does this bone loss go and...

Can somebody highlight the entire causes and side effects of IV steroids They...

•1 year ago

Vasculitis Awareness and Patient Education Day

This is organised by Dr Silke Brix and the vasculitis clinic. Living with Vasculitis, join us for our #Vasculitis Awareness and Patient Education Day, Sunday,...

This is organised by Dr Silke Brix and the vasculitis clinic. Living with Vascu...

Moderator•1 year ago