Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for May 2014

My husband Steve is doing a sponsored walk for to raise money for Vasculitis Uk.

The walk ends with a barbecue we would like to take the opportunity to make the public more aware of vasculitis, any tips please.

The walk ends with a barbecue we would like to take the opportunity to make the ...

valwood

•11 years ago

8 Replies

Natalie Moulsdale , family and friends walked to the top of Snowdon this last weekend, in memory of Natlaie's dad, Neale.

This photo is of Jackie, Natalie's mum. Natalie has been fundraising for Vasculitis UK for the past 2 years....

This photo is of Jackie, Natalie's mum. Natalie has been fundraising for Vascul...

Suzym2u

Moderator•11 years ago

3 Replies

Hi all need your help ,have had a upper respiratory infection for last week ,and my muscles in my legs and arms are just so weak .

They was like this when I had started with the vasculitis before being g diagnosed. Do you think could just be due to the infection I've got or could be vasc...

They was like this when I had started with the vasculitis before being g diagnos...

shakeel1

•11 years ago

6 Replies

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Has anyone had a kidney transplant who has suffered from HSP? Did the transplant work.

Mattbest

•11 years ago

1 Reply

Behcet's Syndrome page - Vasculitis UK website

The Behcet's Syndrome page on the Vasculitis UK website has been completely re-written by Dr Nicola Ambrose and Prof Dorian Haskared of University College,...

The Behcet's Syndrome page on the Vasculitis UK website has been completely re-w...

PatriciaAnn

•11 years ago

1 Reply

Hi had a vasculitic rash & long standing ent issues which i posted before. Rheum assumed skin vasc. All prob went away 3 weeks ago. Week ago

got viral throat,hoarse unwell,got up today & eyes blood shot. Cud this be vasculitis? Should i be seeking help?

got viral throat,hoarse unwell,got up today & eyes blood shot. Cud this be vascu...

sleepy60

•11 years ago

7 Replies

Can shingles have an adverse effect on GPA?

I have shingles along my sciatic nerve and wonder if it can affect my GPA. I am on Aciclovir which I hope will help with the symptoms and pain. Has anyone had...

I have shingles along my sciatic nerve and wonder if it can affect my GPA. I am...

Skipper

•11 years ago

7 Replies

Pmr pro how can I find out more about the leeds group.

Louzoejf29

•11 years ago

3 Replies

Can prednisalone cause numbness and tingling in fingers?

Hi I have cutaneous PAN. I have recently started to get tingling and numbness in my little finger. I wondered if this is one of the many side effects of the...

Hi I have cutaneous PAN. I have recently started to get tingling and numbness in...

xxbluebooxx

•11 years ago

9 Replies

A FUNDRAISING couple from Kidderminster are hosting a shopping event to raise money and awareness for Vasculitis - Kidderminster Shuttle

Mrs Greenow-Phillips said: “Andy has suffered with Granulomatosis with Polyangiitis, a form of Vasculitis, since October 2012. “As May is national awareness...

Mrs Greenow-Phillips said: “Andy has suffered with Granulomatosis with Polyangii...

Suzym2u

Moderator•11 years ago

Be the first to reply

Can anyone suggest anything to relieve the itching from urticaria?

I am currently taking 40mg cetirizine, monteleukast and ranitidine. I have seen an Immunologist who gave me this prescription and waiting to see a...

I am currently taking 40mg cetirizine, monteleukast and ranitidine. I have seen ...

vickylou01

•11 years ago

6 Replies

a couple of days after easter I went down with what I thought was gastric flu .new doctor said it was a virus, nothing he could give me.4+

weeks later my bowels have not settled properly.the bottom bit is very painful when I need the toilet and also when I walk and tender to the touch I read...

weeks later my bowels have not settled properly.the bottom bit is very painful w...

gsmith

•11 years ago

5 Replies

Does anyone have any solutions to the problem of painful, sore, tender or burning feet?

Apparently in an episode of embarrassing bodies there was somebody with Lupus who had this problem and was prescribed some medication which made a big...

Apparently in an episode of embarrassing bodies there was somebody with Lupus wh...

Suzym2u

Moderator•11 years ago

7 Replies

Frustrated

A month ago had appointment with rheumy with various symtoms....pain, fatigue, swelling, heat intolerance..generally feeling very unwell and many more... Just...

A month ago had appointment with rheumy with various symtoms....pain, fatigue, s...

yorkshiregirl44

•11 years ago

14 Replies

can azathioprine cause skin cancer?

ive had WG for over 4 years now and always loved the sun my consultant as said I cant go in sunlight without factor 50 on and long sleeves, anyone know...

ive had WG for over 4 years now and always loved the sun my consultant as said I...

crazycaz66

•11 years ago

16 Replies

Can leukocytoclastic vasculitis be diagnosed without biopsy?

After weeks of having this non-itchy, non-burning, awfully ugly rash, I finally saw a dermatologist. He said it was leukocytoclastic vasculitis. Is it that...

After weeks of having this non-itchy, non-burning, awfully ugly rash, I finally ...

annc999

•11 years ago

3 Replies

Vasculitis Ireland Awareness

Vasculitis Ireland Awareness Bechets Support group meeting being held in the Wellington Park Hotel, Belfast on Saturday 24th May, between 11am and 1pm. First...

Vasculitis Ireland Awareness Bechets Support group meeting being held in the We...

Suzym2u

Moderator•11 years ago

Be the first to reply

An event aimed at getting the public more involved in rheumatology research is being held at Chapel Allerton Hospital on Tuesday 20th May

http://www.leedsth.nhs.uk/about-us/news-and-media/news-item/article/its-ok-to-ask-chapel-allerton-hospital-event-aims-to-raise-awareness-of-rheumatology-researc

http://www.leedsth.nhs.uk/about-us/news-and-media/news-item/article/its-ok-to-as...

Suzym2u

Moderator•11 years ago

4 Replies

Reduction in prednisolone

I have been on pred since 2011. I have been on maintenance dose of 5mg for over a year and reducing by .5mg every month. Had a really bad reaction last time...

I have been on pred since 2011. I have been on maintenance dose of 5mg for over ...

CathT

•11 years ago

6 Replies

Root canal filling?

Got to have a root canal filling....it's booked at the end of the month. I'm on 5mg of steroid and six monthly rituximab. Any advice, or suggestions about...

Got to have a root canal filling....it's booked at the end of the month. I'm on ...

BronteM

•11 years ago

13 Replies

Hi, my sister has churg Strauss and is about to go on to rituximab. What's others experience of the side effects on the first 2 infusions?

We've planned to go away the weekend of her first infusion and wondering if we should cancel.

We've planned to go away the weekend of her first infusion and wondering if we s...

Cloe

•11 years ago

7 Replies

Thames Walk yesterday in London raising awareness for Vasculitis and Vasculitis UK

10k walk from Victoria Station successfully completed and here we are outside the Tower of London at finish . We had a brilliant day with wonderful weather....

10k walk from Victoria Station successfully completed and here we are outside th...

JacquiM

Volunteer•11 years ago

8 Replies

Cath is 50 today! Instead of receiving presents Cath has opened a Just Giving page in support of VUK and to raise awareness of Vasculitis

Cath was diagnosed with Churg Strauss Syndrome ( EGPA ) in 2011 Please take a moment and read Cath's story. http://www.justgiving.com/Cath-Seal

Cath was diagnosed with Churg Strauss Syndrome ( EGPA ) in 2011 Please take a mo...

Suzym2u

Moderator•11 years ago

1 Reply

Thames Walk today in London raising awareness for Vasculitis and Vasculitis UK

This is Jacqui Danni Antony family friends just before they set off this morning walking the Thames Riverside walk. They have all completed the walk and are...

This is Jacqui Danni Antony family friends just before they set off this morning...

Suzym2u

Moderator•11 years ago

12 Replies

"Wear Rainbow" tomorrow to support sick and disabled children in hospital, school and the community.

Tomorrow is Wear Rainbow Day As part of raising awareness for #vasculitis awareness month. Vasculitis UK have been asked to share May 16th 2014 with Rosie's...

Tomorrow is Wear Rainbow Day As part of raising awareness for #vasculitis aware...

Suzym2u

Moderator•11 years ago

4 Replies

Vasculitis May Awareness Packs

Don't forget everyone, the May Awareness Packs are still available, which include a lovely cotton shopping bag, a shopper keyring, pen and 'to do' list, all...

Don't forget everyone, the May Awareness Packs are still available, which includ...

Emperor

•11 years ago

Be the first to reply

Methotrexate vs Mycophenalate

Rheumy appointment today. Agreed eek out my chemo infusions by another 2 weeks, but steroids remain unchanged, so that's chemo extended until end of October...

Rheumy appointment today. Agreed eek out my chemo infusions by another 2 weeks,...

Wellsie

•11 years ago

9 Replies

Anca negative but ent specialist thinks nasal and sinus problems are vasculitis. Is this possible

Was taken into hospital last year with suspected temperal arteritis. Then it was decided I wasn't the right age range. I have been on prednisone since last...

Was taken into hospital last year with suspected temperal arteritis. Then it wa...

elsieboo

•11 years ago

17 Replies

This website may be of interest to Vasculitis patients.

http://coolinginflammation.blogspot.co.uk

HiveMind

•11 years ago

2 Replies

I have cerebral vasculitis and also pmr, I finished a second course of cyclophosphamide Mid march, I was ok until about three weeks ago when

I had a chest infection, since both vasculitis and pmr have flared, any idea,s if this could be due to chest infection have had a course on antibiotics.?

I had a chest infection, since both vasculitis and pmr have flared, any idea,s i...

Louzoejf29

•11 years ago

7 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for May 2014

My husband Steve is doing a sponsored walk for to raise money for Vasculitis Uk.

Natalie Moulsdale , family and friends walked to the top of Snowdon this last weekend, in memory of Natlaie's dad, Neale.

Hi all need your help ,have had a upper respiratory infection for last week ,and my muscles in my legs and arms are just so weak .

Has anyone had a kidney transplant who has suffered from HSP? Did the transplant work.

Behcet's Syndrome page - Vasculitis UK website

Hi had a vasculitic rash & long standing ent issues which i posted before. Rheum assumed skin vasc. All prob went away 3 weeks ago. Week ago

Can shingles have an adverse effect on GPA?

Pmr pro how can I find out more about the leeds group.

Can prednisalone cause numbness and tingling in fingers?

A FUNDRAISING couple from Kidderminster are hosting a shopping event to raise money and awareness for Vasculitis - Kidderminster Shuttle

Can anyone suggest anything to relieve the itching from urticaria?

a couple of days after easter I went down with what I thought was gastric flu .new doctor said it was a virus, nothing he could give me.4+

Does anyone have any solutions to the problem of painful, sore, tender or burning feet?

Frustrated

can azathioprine cause skin cancer?

Can leukocytoclastic vasculitis be diagnosed without biopsy?

Vasculitis Ireland Awareness

An event aimed at getting the public more involved in rheumatology research is being held at Chapel Allerton Hospital on Tuesday 20th May

Reduction in prednisolone

Root canal filling?

Hi, my sister has churg Strauss and is about to go on to rituximab. What's others experience of the side effects on the first 2 infusions?

Thames Walk yesterday in London raising awareness for Vasculitis and Vasculitis UK

Cath is 50 today! Instead of receiving presents Cath has opened a Just Giving page in support of VUK and to raise awareness of Vasculitis

Thames Walk today in London raising awareness for Vasculitis and Vasculitis UK

"Wear Rainbow" tomorrow to support sick and disabled children in hospital, school and the community.

Vasculitis May Awareness Packs

Methotrexate vs Mycophenalate

Anca negative but ent specialist thinks nasal and sinus problems are vasculitis. Is this possible

This website may be of interest to Vasculitis patients.

I have cerebral vasculitis and also pmr, I finished a second course of cyclophosphamide Mid march, I was ok until about three weeks ago when

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