Posts - Vasculitis UK | HealthUnlocked

Volunteer•11 years ago

5 Replies

Can anyone tell me of company I can get travel insurance at reasonable cost?

Hidden

•11 years ago

6 Replies

Is anyone treated for their Vasculitis at any of the hospitals in Derby?

Volunteer•11 years ago

Feel you travel to the beat of a different drum…then get into 2013 by dancing to a new rhythm with the Groove Body Dance Class. Join Isabel from 6 till 7pm...

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Travel to the Beat of a different Drum

Feel you travel to the beat of a different drum…then get into 2013 by dancing to...

Jann

•11 years ago

Be the first to reply

Is it safe to fly long-haul while on Mycophenolate? Hilary

Keymer71

•11 years ago

9 Replies

What is the best way to treat the scars and marks on my very thin skin?

My arms and legs are getting covered with nasty marks that take a long time to heal, and then don't really fade as they used to. I don't even know how most of...

My arms and legs are getting covered with nasty marks that take a long time to h...

BronteM

•11 years ago

9 Replies

Central nervous system vasculitus

hi - my 11 year old daughter has been diagnosed with csn are there any fellow sufferers here or other children and parents I can speak to. Were told it's rare...

hi - my 11 year old daughter has been diagnosed with csn are there any fellow su...

Traceymum

•11 years ago

12 Replies

I have recently been diagnosed with vasculitis in my lungs. I am being treated with Cyclophosphamide, steriods etc.

Having been really active I feel as though I have been slammed against a wall. I would just like to know anyones experience if I will get back to a good level...

Having been really active I feel as though I have been slammed against a wall. ...

dizzy49

•11 years ago

9 Replies

Referral to Hospital

I live in the Scottish Borders a town called Peebles. When I was diagnosed with ANCA positive Vasculitis 4years ago I was referred to the Edinburgh Royal...

I live in the Scottish Borders a town called Peebles. When I was diagnosed with ...

Bill1959

•11 years ago

I've been waiting for an urgent referral since early September, i.e. nearly 4 months ago. Cyclophosphamide and other treatments aren't working enough for me,...

Found out why no referral - computer lost it!

I've been waiting for an urgent referral since early September, i.e. nearly 4 mo...

vivdunstan

Volunteer•11 years ago

11 Replies

New Year Looming

Christmas over, New Year looming how are you going to keep all the resolutions? Start by joining in the Body Groove Dance Class Support Vasculitis UK and...

Christmas over, New Year looming how are you going to keep all the resolutions? ...

Jann

•11 years ago

So, i've been on pronisone for 3 months now and have found that the unpleasent side effects have started to kick in. I look a bit bloated etc. The one thats...

Pronisone and sleep. Anyone have any suggestions?

So, i've been on pronisone for 3 months now and have found that the unpleasent s...

MsAscerbic

•11 years ago

12 Replies

Vasculitis UK speak up for the chronically ill and disabled patient...

http://www.matlockmercury.co.uk/news/local-news/fear-over-cuts-to-disabled-welfare-1-5248173

http://www.matlockmercury.co.uk/news/local-news/fear-over-cuts-to-disabled-welfa...

http://www.matlockmercury.co.uk/news/local-news/fear-over-cuts-to-disabled-welfare-1-5248173

Volunteer•11 years ago

2 Replies

John Mills is in the local paper over Christmas.. :-)

http://www.matlockmercury.co.uk/news/local-news/fear-over-cuts-to-disabled-welfa...

Volunteer•11 years ago

Worcester is the place to be for high octane activities in 2013. In June 13 we have the more gently paced but marathon plus length walk of the Worcester...

Body Groove in January

Worcester is the place to be for high octane activities in 2013. In June 13 ...

Jann

•11 years ago

I would like to thank the management and everyone else who gave their time and energy and thoughtfulness to help me out during my time here. especially the...

Merry Christmas and Thank You

I would like to thank the management and everyone else who gave their time and e...

Dave_Buzzey_B

•11 years ago

Sending everyone best wishes for Christmas and a healthier 2013. Love Jill xxx

Has anyone lost all feeling in their fingers and feet, and got the feelings back ?

Chanel101

•11 years ago

5 Replies

Christmas

Essex-jill

•11 years ago

http://www.dancingsantacard.com/en/?santa=189502&source=FBshare

Merry Christmas !!! from the chairman of Vasculitis UK!! :-)

Reproduced in it's own blog, as requested by Sandra99b!! It's a romantic full moon, when Pedro said, "Hey, mamacita, let's do Weeweechu." Oh no, not...

Volunteer•11 years ago

5 Replies

CHRISTMAS JOKE! ;-)

Reproduced in it's own blog, as requested by Sandra99b!! It's a romantic full...

HiveMind

•11 years ago

Anyone without flare and of pronisone

tamidi

•11 years ago

A man walked up to the chilled counter in the supermarket. "Er pardon. du fromage a bethlehem sil vous plais?" the shop assistant said "Sorry?" " du...

joke [hope it's ok] :)

A man walked up to the chilled counter in the supermarket. "Er pardon. du from...

hamble99b

Volunteer•11 years ago

14 Replies

hug

a hug for everyone, regards, sandra x

hamble99b

Volunteer•11 years ago

8 Replies

A body that feels all 'wrong'

I have cerebral vasculits, since 1994, when I was just 22, and the symptom pattern is totally different from other more common forms of vasculitis like...

I have cerebral vasculits, since 1994, when I was just 22, and the symptom patte...

vivdunstan

Volunteer•11 years ago

14 Replies

Merry Christmas & Very Happy & Healthy NewYear

Sesons Greeting to you All (and I include "carers" in this too), I send my very best wishes to you all and I hope you're not participating in the seasons...

Sesons Greeting to you All (and I include "carers" in this too), I send my ve...

HiveMind

•11 years ago

hi, my name is david now my life since the age of 10 yrs 23thn my doctor sentenced vasculitis disease. from 10th until now I regularly take antibiotics,...

how to cure vasculitis that no recurrence..??

hi, my name is david now my life since the age of 10 yrs 23thn my doctor sentenc...

david_

•11 years ago

Hi I have just been refused DLA, I had a back operation in 2006 which went well and I returned to work a couple of months after it. I have suffered from then...

Been refused DLA with back/walking problems

Hi I have just been refused DLA, I had a back operation in 2006 which went well ...

scoobyjimbo

•11 years ago

What is vasculitis

robertno1

•11 years ago

I've just been prescribed Lefflunomide as the Methotrexate is now not doing much for me. Has anyone been put on this and how did you tolerate it ok?...

Has anyone been prescribed Lefflunomide?

I've just been prescribed Lefflunomide as the Methotrexate is now not doing much...

HiveMind

•11 years ago

Just wanted to say thank you to Dursley Lions Club for their very generous cheque for £2110 for Vasculitis UK. Also to Charlie and Charlie's grandad. :-)

Thank you to Dursley Lions Club for their very kind cheque ....

Just wanted to say thank you to Dursley Lions Club for their very generous chequ...

Volunteer•11 years ago