Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for May 2016

Google Analytics for the VUK Website for Vasculitis Awareness Month April 30th - May 30th 2016

April 30th - May 30th 2016 Google Analytics for the Vasculitis UK website 25,000 users 71,000 pages viewed 2 mins 30 secs average session 74% new visits...

April 30th - May 30th 2016 Google Analytics for the Vasculitis UK website 25,0...

Suzym2u

Moderator•8 years ago

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Warts getting worse

Has anyone else got loads of warts? If so what do you do about them, I know it is because I'm on azathiiprine

Has anyone else got loads of warts? If so what do you do about them, I know it i...

Juliew123

•8 years ago

7 Replies

Some of you may recognise this lovely lady who has been fundraising for Vasculitis UK this last month.

Anna started and finished Vasculitis awareness month fundraising for Vasculitis UK. Anna is a nurse at Addenbrookes hospital if you follow this link you will...

Anna started and finished Vasculitis awareness month fundraising for Vasculitis ...

Suzym2u

Moderator•8 years ago

2 Replies

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Fungis infection

Black tiny splinter like lines and discoloured yellow on my big toes?? I have been taking terbinafine tablets for 2 months and have been using limsol cream.I...

Black tiny splinter like lines and discoloured yellow on my big toes?? I have be...

Hidden

•8 years ago

6 Replies

Just diagnosed with GCA Aorta and more- struggling with plan of sction

Struggling with diagnosis, way forward and whether to go through immunosuppressant course now after finishing horrendous Iv infusion of steroids . Side...

Struggling with diagnosis, way forward and whether to go through immunosuppressa...

Lizfm2002

•8 years ago

12 Replies

Cannabis & Vasculiti

Cannabis oil, a controversial *treatment* that a few hundreds have tried and has had success where all other medication has proved unhelpful. I can't help but...

Cannabis oil, a controversial *treatment* that a few hundreds have tried and has...

Jools52

•8 years ago

35 Replies

Learning how to cope with your illness

Can lupus cause itching very badly on

goddie06

•8 years ago

1 Reply

Hull Vasculitis Support Group Meeting

Richard, Jennifer and Lynne will be holding a new vasculitis support group meeting at St Barnabas Church Hall in Swanland on Sunday the 3rd of July. Swanland...

Richard, Jennifer and Lynne will be holding a new vasculitis support group meeti...

RichardE

Volunteer•8 years ago

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Vasculitis UK AGM - Retrospective View in photographs - Full Report in the 2016 Autumn Newsletter

65 members attended, although 75 booked, 10 sadly cancelled at the last minute mainly due to not being so well, so we hope everyone is feeling much better now....

65 members attended, although 75 booked, 10 sadly cancelled at the last minute m...

Suzym2u

Moderator•8 years ago

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PIP

Well what a blow today, been refused PIP after been on DLA unconditionally. I have WG, Diabetes and thrombocytopenia as if that isnt enough and 3pages of...

Well what a blow today, been refused PIP after been on DLA unconditionally. I ha...

SandieB

•8 years ago

8 Replies

Tiny bruises

Have just been noticing tiny black bruising on back of knee and front of legs which I have no explanation for.Just wondering if any one else gets the same?and...

Have just been noticing tiny black bruising on back of knee and front of legs wh...

Hidden

•8 years ago

6 Replies

A shot in the dark

70 year old male with Wegener's. This may have nothing to do with anything, but .... About 4 months ago we bought a mattress topper. It is made by Dorma and...

70 year old male with Wegener's. This may have nothing to do with anything, but ...

lfu2

•8 years ago

7 Replies

Silicosis

I have smoked for 40 years and also worked underground mining for 20years and about 25 years as a rock driller in an open pit coal mine How easy is it to...

I have smoked for 40 years and also worked underground mining for 20years and ab...

polearch

•8 years ago

5 Replies

Was your original diagnosis changed?

If your original diagnosis was subsequently changed , what was the original diagnosis and what was it changed too? ( please state if there was more than one...

If your original diagnosis was subsequently changed , what was the original diag...

Suzym2u

Moderator•8 years ago

44 Replies

Missing a dose of methotrexate

Hi all I am after some advice please! I have Churg Strauss Syndrome, controlled with methotrexate, with Plaquenil. At the moment I am struggling to shake off...

Hi all I am after some advice please! I have Churg Strauss Syndrome, controlled...

sarahdollygirl

•8 years ago

3 Replies

Bank Holiday is creeping up - Don't forget to order yours.

We have collected John's

Suzym2u

Moderator•8 years ago

1 Reply

Joint Pain - Wenger's

I was wondering whether they is anyone out there with WG vasculitis that has recently suffered severe joint pain - For the last 2 days the nagging pain has...

I was wondering whether they is anyone out there with WG vasculitis that has rec...

Lauriescott1

•8 years ago

6 Replies

Introducing myself

Hi, I have been diagnosed with Churgg Strauss vasculitis. I am 57 year old male, who until March 2016 was very fit and healthy. So far, I have been lucky and...

Hi, I have been diagnosed with Churgg Strauss vasculitis. I am 57 year old male,...

sealives

•8 years ago

16 Replies

It is Behcets Disease Awareness Day today

Behcets is an extremely rare type of Vasculitis - classified as a type of Vasculitis in 2012. It affects around 3,000 here in the UK. This is the page to the...

Behcets is an extremely rare type of Vasculitis - classified as a type of Vascul...

Suzym2u

Moderator•8 years ago

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CNS vasculitis

Is CNS Vasculitis curable? ??

Hidden

•8 years ago

10 Replies

Cns vasculitis

Got appointment for Lumber punture.Feeling emotional about it all.It's been 7 months of tests.And to think this test may either be the beginning or the end of...

Got appointment for Lumber punture.Feeling emotional about it all.It's been 7 mo...

Hidden

•8 years ago

5 Replies

Back pain and Rituximab

Hi, 6 days on and my back is very slowly getting better. GP wanted me to attend A&E last week but unfortunately my back went into spasm and ended up ringing...

Hi, 6 days on and my back is very slowly getting better. GP wanted me to attend...

Llinos

•8 years ago

3 Replies

Vasculitis UK AGM May 15th 2016

A very successful Vasculitis UK AGM was held yesterday, in Derby. Speakers were John Mills Chairman of Vasculitis UK and Dr Dimitrios Chanouzas Birmingham QE...

A very successful Vasculitis UK AGM was held yesterday, in Derby. Speakers were ...

Suzym2u

Moderator•8 years ago

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Wegeners Granulomatosis

Hi everyone has anybody got Wegeners Granulomatosis? I was diagnosed in 1995 and haven't met many Weggies online so if you are one let me know a wee bit about...

Hi everyone has anybody got Wegeners Granulomatosis? I was diagnosed in 1995 and...

Hidden

•8 years ago

3 Replies

Azathioprine and eye twitching

I have been taking Azathioprine for 2.5yr. For most of that time I have taken 150mg daily. 10 days ago my rheumatologist increased it to 200mg daily. Since...

I have been taking Azathioprine for 2.5yr. For most of that time I have taken 15...

Runrig01

•8 years ago

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BSR Roadmap launched to improve care for those living with a rare rheumatic musculoskeletal conditions

Tweet by the British Society of Rheumatology. Road Map launched to improve care for those living with rare rheumatic musculoskeletal conditions - including...

Tweet by the British Society of Rheumatology. Road Map launched to improve care ...

Suzym2u

Moderator•8 years ago

3 Replies

The newly elected ePAG (European Patient Advocacy Group) patient representatives have now been announced

This was announced yesterday that John Mills chairman of Vasculitis UK has been elected as one of the 5 patient representatives (ePAG) for rare immunological...

This was announced yesterday that John Mills chairman of Vasculitis UK has been ...

Suzym2u

Moderator•8 years ago

10 Replies

GPA mouth muscle problem

I have times when for no reason while eating a bite into my gum or lip. Its very strange! I did not have this problem before my diseases. Do you think it's a...

I have times when for no reason while eating a bite into my gum or lip. Its very...

KirstyW1999

•8 years ago

10 Replies

Back pain

Had my 5/6 rituximab infusion in April. Woke up today and my back was in agony, lumbar area is horrendous, now on ibuprofen, cocodamol and diazepam. No...

Had my 5/6 rituximab infusion in April. Woke up today and my back was in agony,...

Llinos

•8 years ago

2 Replies

Swelling on left side of face.

Just came back from doctors.After checking my temperature and looking in my mouth,suggested paracetamol.No cocerns.But as I am under a neurologist for possible...

Just came back from doctors.After checking my temperature and looking in my mout...

Hidden

•8 years ago

7 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for May 2016

Google Analytics for the VUK Website for Vasculitis Awareness Month April 30th - May 30th 2016

Warts getting worse

Some of you may recognise this lovely lady who has been fundraising for Vasculitis UK this last month.

Fungis infection

Just diagnosed with GCA Aorta and more- struggling with plan of sction

Cannabis & Vasculiti

Learning how to cope with your illness

Hull Vasculitis Support Group Meeting

Vasculitis UK AGM - Retrospective View in photographs - Full Report in the 2016 Autumn Newsletter

PIP

Tiny bruises

A shot in the dark

Silicosis

Was your original diagnosis changed?

Missing a dose of methotrexate

Bank Holiday is creeping up - Don't forget to order yours.

Joint Pain - Wenger's

Introducing myself

It is Behcets Disease Awareness Day today

CNS vasculitis

Cns vasculitis

Back pain and Rituximab

Vasculitis UK AGM May 15th 2016

Wegeners Granulomatosis

Azathioprine and eye twitching

BSR Roadmap launched to improve care for those living with a rare rheumatic musculoskeletal conditions

The newly elected ePAG (European Patient Advocacy Group) patient representatives have now been announced

GPA mouth muscle problem

Back pain

Swelling on left side of face.

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