Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,774 members • 6,747 posts

All posts for September 2020

Travel Insurance

Hi , can anybody please recommend a travel insurance company that covers GPA ? Doghouse.

Hi , can anybody please recommend a travel insurance company that covers GPA ? ...

•4 years ago

Does Azathioprine ever fail?

I had got myself into a good position with my ANCA marker after Cyclophosphamide and Prednisolone and after monthly blood tests it’s started to creep up from...

I had got myself into a good position with my ANCA marker after Cyclophosphamide...

•4 years ago

GPA shoulder pain.

Hi I’m currently in relatively good health and stabilised with GPA. Recently I have started to suffer with extreme pain in my right shoulder and it seems to be...

Hi I’m currently in relatively good health and stabilised with GPA. Recently I h...

•4 years ago

Want to take advantage of all our features? Just log in!

or

Blood test result

Hi my granddaughter has been having immune system problems for the last 6 months or more, up to great almondstreet hospital, our local hospital, backwards and...

Hi my granddaughter has been having immune system problems for the last 6 months...

•4 years ago

Medication after Rituximab

Hi My OH is due for his second infusion following a relapse of his GPA. He was diagnosed 3 years ago and went into remission quickly after chemo infusions x...

Hi My OH is due for his second infusion following a relapse of his GPA. He was...

•4 years ago

Prednisone Taper

Hi guys, I’m on a prednisone taper while I wait for my rituximab (date tbc). The issue here is previously every time I lower my steroids I end up in hospital....

Hi guys, I’m on a prednisone taper while I wait for my rituximab (date tbc). The...

•4 years ago

Blood clots and urticarial vasculitis syndrome

Hello everyone. I hope you are all feeling as well as can be. I wondered if anyone could tell me whether they have suffered blood clotting as part of...

Hello everyone. I hope you are all feeling as well as can be. I wondered if anyo...

•4 years ago

Blindness

Morning all tazmoe here Just a quick one I’m still have my symptomatic vasculitis after 5 yrs off various treatments ahh but seem to ok to a certain degree,...

Morning all tazmoe here Just a quick one I’m still have my symptomatic vasculit...

•4 years ago

Vasculitis

Hi there I was diagnosed with ANCA vasculitis last Aug after suffering 2 cardiac arrests due to high potassium levels. I'm stage 4 CKD and my EGFR is...

Hi there I was diagnosed with ANCA vasculitis last Aug after suffering 2 car...

•4 years ago

Patient opinion on Rheumatology services during the COVID19 pandemic.

🚨We're interested in hearing patient opinion on the impacts of COVID-19 on their care🚨 We created this short survey (<10 mins to complete) with patient...

🚨We're interested in hearing patient opinion on the impacts of COVID-19 on thei...

Volunteer•4 years ago

Concern re infections

Hi After a recent flare/relapse my OH has just had his first dose of RTX another booked for 2 weeks time. He is on 30mgs prednisone and is due to change from...

Hi After a recent flare/relapse my OH has just had his first dose of RTX anothe...

•4 years ago

Shortage of Breath with low Immune System

Hi Guys, any similar experiences re the above. I was diagnosed with GPA last December, done really well after treatment and down to 5mg of steroids but still...

Hi Guys, any similar experiences re the above. I was diagnosed with GPA last Dec...

•4 years ago

PR3 level

Hi guys I just want to get a understanding I was under the assumption that having regular blood test and your PR3 level coming down is an indication that your...

Hi guys I just want to get a understanding I was under the assumption that havi...

•4 years ago