Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for June 2015

Mosquito Bites

Has anyone with Vasculitis had a big reaction from mosquito bites? big , plate size, very hot, painful but not itchy and are taking days to disappear, they...

Has anyone with Vasculitis had a big reaction from mosquito bites? big , plate ...

Suzym2u

Moderator•9 years ago

5 Replies

MPA query

Hi, I have had Rhuematoid Athritis for the past 8 years and now diagnosed in January this year with MPA. Due to poor kidney function I was referred to a renal...

Hi, I have had Rhuematoid Athritis for the past 8 years and now diagnosed in Jan...

Foggy56

•9 years ago

9 Replies

North/East Yorkshire Vasculitis Support Group

Hi everyone, We're holding the next North/East Yorkshire Vasculitis Support Group meeting on Sunday the 9th of August 2015 between 2:00pm and 5:00pm. The...

Hi everyone, We're holding the next North/East Yorkshire Vasculitis Support Gro...

RichardE

Volunteer•10 years ago

4 Replies

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Temporal arteritis

My friend went to her Gp who had been treating her for an ear infection for about 3 weeks . He referred her to an ENT consultant who told her she had Temporal...

My friend went to her Gp who had been treating her for an ear infection for abou...

Doghouse

•10 years ago

8 Replies

Kicking Vasculitis and cancer into touch

I would like to request some ideas from the group. I think my positive thoughts went on holiday for a while but that holiday is over and now it's challenge...

I would like to request some ideas from the group. I think my positive thoughts ...

Fennahj7115

•10 years ago

3 Replies

Temporal Arteritis

Hi, I went to see my Rheumatologist last week ( a very nice man) and my O.H. came with me, so that if I forgot anything maybe he would remember. Anyway even...

Hi, I went to see my Rheumatologist last week ( a very nice man) and my O.H. cam...

Lin-63

•10 years ago

7 Replies

Question from a member of the fb group if anyone can help or has experience, please

"Hi everyone, is it possible if you could help me. Yesterday I was told that I have atrophy/amnesia due to the brain damage caused by the amount of time that...

"Hi everyone, is it possible if you could help me. Yesterday I was told that I h...

Suzym2u

Moderator•10 years ago

7 Replies

Vasculitis is discussed on the Jeremy Kyle programme today

Not sure if anyone has seen the Jeremy Kyle Emergency Room programme but there was a lovely lady, called Annalisa, on the programme today discussing her...

Not sure if anyone has seen the Jeremy Kyle Emergency Room programme but there w...

Suzym2u

Moderator•10 years ago

6 Replies

West Country Summer BBQ - Change of Date

Hi everyone, I have had to change the date for the Summer BBQ, the new details are: The West Country Vasculitis Support Group Summer BBQ will take place in...

Hi everyone, I have had to change the date for the Summer BBQ, the new details ...

DevonLottie

•10 years ago

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My 10 year old and cerebral vasculitis

Hi I'm new to this site wondered if anyone could help me. My daughter had a stroke last year she was 9years old, after 9months they diagnosed her with cerebral...

Hi I'm new to this site wondered if anyone could help me. My daughter had a stro...

Shelley46

•10 years ago

13 Replies

Unexpected

I am finding myself feeling very low and really struggling to kick myself on. I am really surprised and disappointed with me I have always been a very positive...

I am finding myself feeling very low and really struggling to kick myself on. I ...

Fennahj7115

•10 years ago

7 Replies

Good news

I have just been to see my eye specialist and have passed the test and after 2.5 years I can now drive again. I am thrilled it has given me back some...

I have just been to see my eye specialist and have passed the test and after 2.5...

valwood

•10 years ago

11 Replies

Petition for Lewis Brimble.

https://www.change.org/p/nhs-england-commissioning-board-reconsider-your-decision-to-refuse-eculizimab-for-lewis-brimble?recruiter=83049680&utm_source=share_pet

https://www.change.org/p/nhs-england-commissioning-board-reconsider-your-decisio...

Hidden

•10 years ago

2 Replies

Live Vaccines

I suffer from GAP(Granulomatosis with polyangiitis) but luckily I have been in remission now for 2 years. Still taking methotrexate but no steroids. I am...

I suffer from GAP(Granulomatosis with polyangiitis) but luckily I have been in r...

Beaver

•10 years ago

11 Replies

A question about fatigue

I have been in remission now from MPA over two and a half year. I have also been very fortunate that post remission I have been able to resume a near normal...

I have been in remission now from MPA over two and a half year. I have also been...

Chris-Bromsgrove

•10 years ago

5 Replies

Inflammation! Any suggestions about ways to help reduce it?

I have PMR and Giant Cell Arteritis. I think the inflammation is in my joints, muscles and arteries. Is it wise to reduce the inflammation or is inflammation...

I have PMR and Giant Cell Arteritis. I think the inflammation is in my joints, m...

Hidden

•10 years ago

2 Replies

Boosting the immune system! Any suggestions?

My immune system is low, partly due to autoimmune conditions but also perhaps to prednisolone. I am happy to try something. Currently taking little pots of...

My immune system is low, partly due to autoimmune conditions but also perhaps to...

Hidden

•10 years ago

6 Replies

Root cause of autoimmunity

Video for alessio fessaro you tube The gut is not like las vegas▶ 1:04:51 www.youtube.com/watch?v=wha30RSxE6w Nov 24, 2014 - Uploaded by TheIHMC The intestinal...

Video for alessio fessaro you tube The gut is not like las vegas▶ 1:04:51 www.yo...

Hidden

•10 years ago

5 Replies

DVT'S Blood clot's

Can claim any benefits for blood clots?i have been told that i will have to take warfarin for the rest of my life as this is the second clot i have had in 12...

Can claim any benefits for blood clots?i have been told that i will have to take...

juju5691

•10 years ago

3 Replies

West Country Summer BBQ

Hi everyone, a date for your diaries: The West Country Vasculitis Support Group Summer BBQ will take place in Shaldon, near Teignmouth on Saturday 8th August...

Hi everyone, a date for your diaries: The West Country Vasculitis Support Grou...

DevonLottie

•10 years ago

1 Reply

Non Facebook users??

I know VUK has a closed group on Facebook and if I wanted to join I could send a request but I'm not on Facebook (and no offense but I can't stand FB) so I...

I know VUK has a closed group on Facebook and if I wanted to join I could send a...

Hidden

•10 years ago

28 Replies

sherree lewis

can anyone help have just been diagnosed with cerebral vasculitis and have told it is all over my brain and this is a very rare desease they want me to go on...

can anyone help have just been diagnosed with cerebral vasculitis and have told ...

sherree

•10 years ago

11 Replies

Flying abroad

Anyone have any tips for taking a holiday abroad? Extra mess? Paperwork? Assistance and who from? And tips to help me not get sick ! Thank you

Anyone have any tips for taking a holiday abroad? Extra mess? Paperwork? Assist...

SwgS

•10 years ago

6 Replies

Vasculitis Education Day at Imperial College

Back home after a trip down to London today. Privileged to be invited along to another post grad vasculitis education day at Imperial College. Really...

Back home after a trip down to London today. Privileged to be invited along to a...

RichardE

Volunteer•10 years ago

2 Replies

Information /support

I feel so much for you with regards to the heat. I can only agree with you the vasculitis does get worse. I have to manage it by using electric fans I have one...

I feel so much for you with regards to the heat. I can only agree with you the v...

Fennahj7115

•10 years ago

1 Reply

The Leicester Mercury tells Martin's story, being diagnosed with Vasculitis (Wegener's Granulomatosis) GPA

The Leicester Mercury tells Martin's personal story , being diagnosed with vasculitis Wegeners Granulomatosis . John Mills explains about Vasculitis UK the...

The Leicester Mercury tells Martin's personal story , being diagnosed with vascu...

Suzym2u

Moderator•10 years ago

3 Replies

Pain

Why in hot weather does my pain get substantially worse. I desperately need a good nights sleep!

Why in hot weather does my pain get substantially worse. I desperately need a go...

valwood

•10 years ago

1 Reply

Interesting inflammation article.

http://www.dailymail.co.uk/health/article-3125357/Furred-arteries-Diabetes-Eye-disease-Dementia-Depression-doctors-believe-triggered-one-SILENT-KILLER.html

http://www.dailymail.co.uk/health/article-3125357/Furred-arteries-Diabetes-Eye-d...

luggsey

•10 years ago

1 Reply

A very sad loss for Vasculitis UK

We are very sorry to inform you that Pat Fearnside died on 11th June after a short but painful battle with cancer. Many of you will have known Pat for her...

We are very sorry to inform you that Pat Fearnside died on 11th June after a sho...

Suzym2u

Moderator•10 years ago

9 Replies

Re-newing Blue Badge Poll

Dear all, If you are re-newing a Blue badge, or are currently applying to be a holder, then please take the time to answer this question. 1.) I have never...

Dear all, If you are re-newing a Blue badge, or are currently applying to be a ...

AndrewT

•10 years ago

9 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for June 2015

Mosquito Bites

MPA query

North/East Yorkshire Vasculitis Support Group

Temporal arteritis

Kicking Vasculitis and cancer into touch

Temporal Arteritis

Question from a member of the fb group if anyone can help or has experience, please

Vasculitis is discussed on the Jeremy Kyle programme today

West Country Summer BBQ - Change of Date

My 10 year old and cerebral vasculitis

Unexpected

Good news

Petition for Lewis Brimble.

Live Vaccines

A question about fatigue

Inflammation! Any suggestions about ways to help reduce it?

Boosting the immune system! Any suggestions?

Root cause of autoimmunity

DVT'S Blood clot's

West Country Summer BBQ

Non Facebook users??

sherree lewis

Flying abroad

Vasculitis Education Day at Imperial College

Information /support

The Leicester Mercury tells Martin's story, being diagnosed with Vasculitis (Wegener's Granulomatosis) GPA

Pain

Interesting inflammation article.

A very sad loss for Vasculitis UK

Re-newing Blue Badge Poll

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If you have had covid and contacted a medical professional/hospital what medication/treatments were you offered?

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