Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,775 members • 6,749 posts

All posts for December 2018

I’m new here. Just diagnosed with SVV, probably GPA.

My diagnosis is based on symptoms, blood tests, and mri scan of brain showing several lesions. More blood tests to come. I can find references to most of the...

My diagnosis is based on symptoms, blood tests, and mri scan of brain showing se...

•5 years ago

SUN- THE DEVILS BARGAIN

I have been plagued by many, many skin cancers, most squamous cell type. I have had a lot of sun exposure throughout my life which I loved and enjoyed, and now...

I have been plagued by many, many skin cancers, most squamous cell type. I have ...

•5 years ago

My mother just diagnosed GPA, help needed

Dear patients and specialists, I am currently working and living in the UK and my mother has been diagnosed as GPA vacuities on November in China....

Dear patients and specialists, I am currently working and living in the UK and ...

•5 years ago

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Study suggests Azathioprine may increase risk of relapse in some AAV patients.

Has anyone else read this study that says 1 in 10 AAV patients are hypersensitive to Azathioprine, which manifests as whole body inflammation, joint pain, and...

Has anyone else read this study that says 1 in 10 AAV patients are hypersensitiv...

•5 years ago

A very pleasant Break

Dear Everyone, As some, of you, already know I went to Corton Coastal Village- a Warner 'Camp'- for a Turkey & Tinsel break. The Holiday 'runs' as follows, you...

Dear Everyone, As some, of you, already know I went to Corton Coastal Village- a...

•5 years ago

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Nerves pain pins and needles

Hi I wrote the other day 9n here about this topic and I was asking does anyone how takes a dose off mmf 3g a day as I spoke to the doctor how said it maybe a...

Hi I wrote the other day 9n here about this topic and I was asking does anyone ...

•5 years ago

Feet

Although l have had vasculitis for many years l am newly diagnosed with HURS . I have started to have very sudden pain in my feet, so severe l cry out and can...

Although l have had vasculitis for many years l am newly diagnosed with HURS . I...

•5 years ago

Hand Foot and mouth disease

Does anyone know if there are any problems with hand foot and mouth disease as a sufferer of MPO Vasculitis? My son has it (he works in schools). As my...

Does anyone know if there are any problems with hand foot and mouth disease as a...

•5 years ago

Happy Christmas, Hope you All Remain Well

Dear Everybody, yes even You...…. This is an, admittedly Slightly Early, HAPPY CHRISTMAS. I Hope that, you all, are 'Well' and remain so, over the Festive...

Dear Everybody, yes even You...…. This is an, admittedly Slightly Early, HAPPY C...

•5 years ago

How IS Everyone?

Dear All, It seems, only Yesterday, that I was urging the Weather to Cool Down. Well it FINALLY has and, I caught a 'Nasty' Cold, my Joints are Aching and I'm...

Dear All, It seems, only Yesterday, that I was urging the Weather to Cool Down. ...

•5 years ago

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Long time GPA patient

I am 61 years old male and have had GPA on and off since I was 26. Had lots of treatments, some nicer than others, and have weathered some longer term side...

I am 61 years old male and have had GPA on and off since I was 26. Had lots of t...

•5 years ago

Nerves

Morning Does any one suffer with nerves ringing pins and neddles with vasculitis I suffer small and medium cell vasculitis with symptomatic symptoms I notice...

Morning Does any one suffer with nerves ringing pins and neddles with vasculiti...

•5 years ago

Signs of improving reading ability (living with cerebral vasculitis)

I've just blogged about improvements I'm currrently detecting in my ability to read print, which has been severely hampered since I fell ill with cerebral...

I've just blogged about improvements I'm currrently detecting in my ability to r...

Volunteer•5 years ago

Newbie

Is this disease treatable with prednisolone?

Is this disease treatable with prednisolone?

•5 years ago